It's confusing in these days of healthcare that uses what they call "step down" from acute care to rehab or long term care. The case workers and the doctors etc talk to each other but unless the caregivers are proactive they get lost in the decision making. My concerns are that number one , my husband doesn't hear well with hearing aids and he is a gentle and good patient that never asks questions or says no. That causes me to feel like I have to be there every day , all day and because of that I get nothing done at the house. The time that I have to be away from the hospital, I am fearful that they will decide things that will affect us both. There is a time for trusting the medical people ad a time to be cautious. What do you do? It stresses you but you have to try to keep your fears from your spouse so they don't worry as they try to get better.
The social worker and patient advocate will be your best helpers here. Doctors are hard to pin down anywhere. Carry your DPOA in your purse at all times. The hospital has a copy but if you can present it when needed that doesn't hurt. You've gotten very good advice from the community. We wish you the best in this very difficult situation.
Take care,
Carol
Tell the nurses and techs about your husband's hearing problems, make sure they know he may be agreeing to things he hasn't properly heard or understood. It would be good to get a medical power of attorney or advance directive in place. If you can get your husband on board, perhaps he can tell them he doesn't want to make any decision until he's talked it over with you.
Is there anyone who could help out at home, come in to do chores for you? I just let things go at home, knowing all the dust, dishes, and dirty laundry will still be there. My priorities were rest first, food, clean clothes, pay bills, everything else was catch as catch can.
I wish you all the best.
Caseworkers and social workers are also great sources of information although the information they have may be a little dated as I'm not sure the Dr.s orders gets passed along to a caseworker/social worker as quickly as it does the nurse. But people get into the social work knowing that it's a thankless job that doesn't pay well but they do it because they want to HELP and are usually very nice, proactive people. They have a passion for what they do. Find your husband's social worker, get his/her number, and stay in touch.
Yeah, it's tiring. Frustrating. Makes me angry. But I make myself push my personal feelings aside and Keep Bugging Those Who Don't Fill Me In.
When you are in their face in a manner that does not come off as obnoxious I can assure you that you will be taken notice of.
When my cousin was in a SNF, I would phone the medical person who wrote the order. Funny thing happened: they started calling me when something changed about her care. Unfortunately, the squeaky wheel syndrome still seems to work.
Family members still have every right to ask questions of the medical and nursing staff and get answers.
Also, each state has an Ombudsman program to advocate for residents in all types of care facilities. Find out who is your local ombudsman and make contact.
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