I’m just completely overwhelmed trying to keep everyone happy all while watching my mom waste away more each day. I came very close to moving them out but just can't bring myself to do that to my mom. I know she only has months at the most left. But still seeing no end in sight. The guilt, trying to be a good mom to my kids (10, 12) and a good wife, all while working FT. My dad is an ungrateful a**hole whom I can barely look at so I have to literally hide in my own home to avoid him :( I'm so tired and regret having them move in as it has forever changed my relationship with my dad and he will be asked to move after my mom passes. Again - the guilt :( so burnt out. So trapped inside because of Covid worries/precautions. So sad and tired, high blood pressure and pre-diabetes now from completely neglecting myself for years. Sometimes I wonder if modern medicine and longer life expectancies are a gift or curse we’ve put upon ourselves :( I myself have already told my kids that they are under no circumstances allowed to let me or my husband live with them when we are aging. I’ll even put it in writing in case I forget thru dementia later on in life. At least this rant helped me to stop crying for the night. Hugs to all trying to make it thru caregiving. People who don't do it have no idea what its like!
You are a selfless person...obviously and I'm sure your mom appreciates all you are doing and you are setting such a great example for your two children. At 10 and 12 years of age, they see what you are doing and the sacrifices you are making and continue to make. Bless you.
Try to take care of yourself although I know how hard it is. I lost over 18 pounds while caring for my ailing parents who both passed within the last two years. I'm down to 101 pounds but the consolation is I did what I had to do to take care of them as you are doing for your precious mom. I was with both of them the moment they went "Home". It was devastating but I would never, ever trade those two moments when I was there for both of them in their time of need.
Please try to stay positive. You WILL be okay.
I'm here if you need to talk.
Praying for you.
It was lovely to read your elegant, thoughtful response.
It's the hardest thing I have ever done, but I know I am a much better person for it. I will remember it as a positive experience.
Wishing you a lovely day and all the best.
My heart goes out to you. I understand all too well how you are feeling. My father is 91 now and has dementia and many other conditions. I'm no spring chicken and the physical work is starting to get to me. I moved in a year ago to help, pre-Covid. My brother already lived with my dad, and won't help with anything to do with my father. I had a breakdown last year and learned a lot from it, the most important being to put myself first.
It was hard to realize at first, but I did realize that what is happening to my dad isn't happening to me. I was letting myself suffer in an effort to ease his, got completely caught up in how I thought things should be, I tried to fix everything, be there in an instant, micro-manage everything, etc. The breakdown awoke in me the realization that I have the opportunity to choose how I am going to respond to everything that I allowed to break me. I take my time doing things now, centre myself when dad calls, to the way that I move; I get there, but it's at my own speed. (My father told a PSW that he likes to push my buttons and aggravate me. He didn't know I overheard. But it sure turned things around for me! :) ) The breakdown also showed me that I needed to clean the slate and start over. Why did I choose to do this in the first place? (A sense of duty? Because my mother told me I had to when I was young? Because it's what we do, my parents took care of me... etc?) To help my dad live in comfort, safety, and dignity at the end of his life. I need to live with comfort, safety, compassion, dignity, too. Do I have to do this? My father needs 24/7 care. I need 24/7 care too! The person who knows what I need at all times is me.
Women are amazing people. We are strong and we are human. We know ourselves the best and it's 100% important to take care of ourselves first, delegate, rest, walk outside, laugh with friends, be compassionate and caring, guilt-free.
So grateful for this forum and to read all your stories. I wish you all the best.
XO
A caregiving support group might help you find other people who really understand your situation. Given all you are trying to do, an online forum like this one might have to do for now. I can't imagine you have much time for in-person meetings anywhere.
Appreciate whatever time you have left with your mother. Arrange breaks for yourself and family time if you can. While you are still able to work FT, that is at least a break from care taking, and lets you be in a different environment for part of the day. Is your work something you enjoy?
Make choices as wisely as you can about what you are eating, how much you are able to exercise, and what time you spend with your husband and kids. Positive choices even for small things can give you some confidence and hope.
Keep "talking" to us.
I have health issues and a son with epilepsy so I have to take some time away from it all and recharge. My MIL was dx with cancer and passed away 4 years ago, I wonder how much the stress of caring for my FIL affected her.
Anyway, every 3rd night or so, I let DH take over. I eat dinner by myself turn on a movie, make a cocktail, and have a good soak in the tub. Every morning I get up an hour before he does and take time to enjoy my coffee, pray and just have me-time. At 9 pm my FIL goes to bed. My DH used to invite him to stay up if we wanted to be up later but I nixed that fast! DH and I need the time alone too.
DH wanted to take FIL on vacation with us, but has since changed his mind (thank God). We all need the break.
Gotta keep a balance. On nice days, I walk, sometimes with my FIL, we both enjoy it and it really lifts our spirits.
anyway, take care of yourself. When it gets too hard for me, I will insist on a live in caregiver at least overnight. And I’m not against memory care if/when he gets to the point his care is too difficult
I know with Covid the timing is not ideal , however there are agencies that can provide in home respite care.
You can contact your local Council on aging for assistance.
Maybe you and your family could get away for a long weekend!
Trust me when I tell you that you NEED to take care of yourself!!
I didn't heed the warnings!
Last year I was diagnosed with colon cancer, had a stress fracture in my foot and had to have major spine surgery.
If you're not seeing a therapist, I would highly recommend it. Also talk to your Doctor about medication to help you with depression/ anxiety.
Praying that you find a way to care for yourself! Your hubby and your children want to around!🙏🙏🙏
Is hospice involved? They come to your home and can help you with care for your mother and perhaps do respite care which means they will place your mother in a facility for 3 days so you can catch your breath. The social worker can help you organize your life while the CNA's can do physical care for your mother. Caregivers who set no boundaries become ill either during or after the death from multiple stressors such as fatigue, stress, anticipatory grief and so on.
You are not a victim in your caregiver role.
Peace,
Mark
I have no words of wisdom...but want you to know I feel for you...I know what it’s like to have your health go down hill trying to help and keep everyone happy.
I will put you in my prayers and if i were in person i would hug you.
Id also stand up to your dad and tell him to knock it off, or he can leave and you will help him. You shouldn't have to be on pins and needles around him. Set him straight. Your tolerating it and its making you miserable.
I had to take my dad in. He thought he would watch TV 16hrs a day and I would deliver meals to the chair he sat in. I told him wrong.
I told him he will be part of the family, eat meals in the kitchen/dining room and he will have nice conversation. Hes not going to be a lump in a chair. Im not the maid and I dont cater. He wanted 3 hot meals a day. I said no. He doesn't cook for himself. But I'm supposed to?
So you have to put your foot down. Tell him how the house will be run going foward. If he doesn't like it there is the door. You won't accept being grumpy or whatever he is doing. My husband noticed an immediate change and appreciated it.
So can you. Take a stand! If u have to find a place for them nearby do so. You dont need to get sick taking care of them.
Best of luck to you and your family
Many people do not learn how to set boundaries or even know what self-care is as they have / we have been taught to put others' needs ahead of our own. This destroys or never allows self-esteem to be built up or felt.
We are very lucky to have this forum - and people LIKE YOU sharing support. This society doesn't support making our self our priority. Be it religion or some other messaging we get. If we do not make our self the 'most important person in our life,' we will suffer and so will others as we are not available to an/other/s until we are whole beings.
-Find out the nearest place for 3 day stints in Hospice or Day Care for Adults
-Immediately sit your Dad down and tell him exactly how you feel. If he acknowledges his bad behavior and apologizes, tentatively go forward, if he outright denies his behavior, call he on it and set the rules in your house. Explain, just like you had to follow the rules at his house when you grew up, he will have to follow the rules at your house or suffer the consequences: finding a new place to stay or be isolated in his room as you have children to care for and you will not be retreating to your room anymore. You are raising your children with discipline and expect better from an adult. There will be no down talking to you, dismissiveness of your rules or your feelings. Sometimes, even we adults need to be shown the error of our ways.
-Find an agency or caregiver to come in so that your family can go on vacation! Go without guilt! It's important to keep fun memories in your children's upbringing.
If your Mom is that close, you may want to tough it out without moving her, but if physically her care is beyond your ability, it is best to place her where she can be taken care of properly.
Hope this helps. Praying for you and your family.
I agree, I want to die with all my abilities or die.
Old age can be a curse. Everyone of moms friends are suffering but too stubborn to die.
Being a care giver, we are the most abused group in the country, and it does not matter what country you live in.
My best stress releaser is prayer. Jesus loves you. Jesus cares, Jesus is always there.
You are on my prayer list and I will pray for you every morning.
You rock
* Guilt and other emotions that pull on your emotions and psychological needs/history, need to be examined. You need to address your self-esteem, your feelings about your self-worth.
* Until you feel solid in yourself, you will continue to split your feelings - and rationalize - everyone elses needs as 'more important' than your own survival and well being.
* I'm talking touch love here. Not easy to say and not easy to do. However, you see the results of your thought patterns and behavior now - it will only go down hill until and unless you address these needs NOW.
* IF YOU ARE NOT WHOLE 'ENOUGH' IN YOURSELF, how will you continue to be there / available to your mom?
STOP -
ACCESS -
SET BOUNDARIES -
MAKE DECISIONS -
LEARN HOW TO CARE FOR YOURSELF -
LEARN TO REALIZE YOU ARE THE MOST IMPORTANT PERSON TO YOU, first.
____________ Contact a friend or relative who is in your corner
____________ You need support from someone to shift from where you are now
* Making changes at this point will be very difficult for you due to your years or decades of conditioning and your mind-set. It'll likely go against all your feelings and behaviors up to now. However, you need to make some major life decisions otherwise, you will continue to suffer.
P.S. [stop taking] Don't take any B.S. or disrespect from anyone.
Remember this saying: "you teach people how to treat you."
This was not my game plan, being 38 years of age and with 2 children.
My husband is an amazing person, and it was actually his idea, I have the sweetest mom with a kind heart. I too see myself at times stuck and have had to incorporate my mom into my life. I see my mom happy and thriving, and with minimal memory loss. If for any reason this want working,i would find another alternative. I myself refuse to be miserable. I for one would never watch my
in-laws they are both argumentative. My husband even said.i will not ask you to do soothing,i wouldn't do myself. Would i ask my kids to repeat the favor, Never Its a true act of love and kindness, but not an obligation. My daughter in law an N.P, all i would ask of her is to make sure my pills are accurate, I am not taking something that will harm me. I wish you all the best. My mom health has never come before mine. I walk everyday to clear my mind. I read to see other places.
I garden to feel nature. I love my mom but,my husband and my children never came last, i still come first. I am a grandma of 4 and will always make time for them. You just need to sit down and explore other avenues, but you need to put yourself first at some point. You are valuable to your family, Sending big hugs.