I know more now about such dementia, and i am proud to say that lately my loved one is doing so well on certain days, i.e, 1 day he might've had a bad more angry day at times, and then later will always say,"i am sorry."he apologize,to mom, and i. But then the rest of week he is doing so well...Completely coherent. Is this normal?I make sure to continue to study such,as i am an advocate for over 12 to 13 yrs,for rights of kids,family,parents,grandparents,inmate advocate,and elderly rights et.al., and i am learning now so much more about this disease. I am happy that our loved ones can yes, and will have their "off days,with light to mild dementia,et.al.,"but i am always happy to say my parent (dad)early 80s is doing better (his dr.saying than most) It is a blessing. and may God bless you all. Question again is has anyone experience what we are seeing,(When the loved one is completely happy,coherent etc.al., )as this is what i am seeing with my loving dad and i get happy each time i see him more coherent,happy,joyous.)It is a blessing to see,as for my mother.")
I find it normal and just enjoy the good and count down the bad until it's done and breathe a sigh of relief when it turns good again. It doesn't get any easier or better per say, just different and more challenging. Just keep enjoying what the day brings you and enjoy the time you have with him. Make as many memories as you can on the good days and understand that bad days will happen but so will good days.
But we will learn what type of dementia it is."My friend jose father had it."(Still do) since young at only 59/60.He still do but again he is doing superb!(He is almost 77 or 78 by now.)So i guess it affect people in different ways, Jeanne. Dad was not diagnose until again this January/February 2017.
But, he is doing as dr.say, "better than so many and how he is responding so far to his medication fairly well and it helps dr.,saying to be consistent with it."Dr.,even took him off one 2 weeks ago as it was making him(i.e.,violent outburst/yelling alot/saying curse stuff,and he is not usually this way,and dr., since doing so,as we told him is doing even better now.)Not getting that way,at least for now.)So that is a great thing to see.Dad again has his off day or 2, but rest of week he is fine, and i am so happy i am here for as long as i am staying, then heading back home toward my own NJ area,where i reside,but came down here to visit mom/dad last sept.2016,and extended my stay for which i know dad,mom is appreciative of so much.I love him so much.and i smile at seeing him do well,and hope it continue as long as humanly feasible,as yes i know the dementia has no cure and i pray one day for others,it will,as i know we all here wish for that.
We are going out for a 1hr., road trip,lil longer drive,and he love to be in my car. He drove his entire life, still could. But he is not "rushing it" and we know this help him so much,when out,also being an avid Golfer for decades!Thanks again,and God bless you."Thx again, Jeanne.
My husband had 10 years of Lewy Body Dementia: 1 year severe, 8+ years mild/moderate, and the final stage which was pretty calm. The severe year came first! His doctor was a world-renowned LBD researcher and clinician. I asked him how come Coy's first year was so terrible and then he improved? Everyone knows that dementia only goes in one direction. He said that he has been discussing this with other experts who have seen similar cases. At that point their theory was, 1) good care, 2) good response to the medications, and 3) initial inflammation in the brain. What we saw in the first months was a combination of dementia and inflammation. Once the inflammation cleared up we were only dealing with dementia. That remained in the "early/mild stage" with occasional fluctuations into moderate, for most of the rest of his dementia. I don't know whether there have been trials to test this inflammation theory.
Dementia itself does not improve. But it seems reasonable to speculate that there may be other issues going on as well as the dementia.
Is your husband fully aware of his diagnosis?