She refuses to shower and if it was up to her, would never shower again which obviously is not acceptable for a million reasons. I do not have the personality, patience or tolerance to deal with this behavior. I'm just sick of this situation and wish I could walk away from it because like I said, I don't have the tolerance to deal with this stuff. Not everyone has the temperament to deal with these kind of situations and that's okay, that's reality. I'm tired of guilting myself into thinking I should be more than I am or different than who and what I am. It's time to accept reality, that I am not able to handle this kind of stress and these problems. She needs professional help.
I would like to hear from others here is it possible for me to get her this care w/o currently having any type of legal rights over her, and if it IS possible, about how much does it cost per visit, and also, is she able to refuse to be bathed by professionals? Because if that's the case, then there's no sense in hiring someone for her to do exactly what she does to me.
Thank you for your time and consideration in this matter.
Like the others have said, sure, you can hire a carer to come in to bathe mom, but mom can kick her out. Nobody can force anybody else to do something they don't want to do in the first place. That said, you need to hire someone who KNOWS how to bathe someone with dementia; someone with experience in this very arena. Someone who will get to know your mother, earn her trust, and THEN bathe her. Someone who understands dementia and how to bathe an elder suffering from the affliction.
Who knows how much it costs? You'd have to call around and find out the answer to that question yourself, along with what the minimum hours the person would need to come into the home would be. Nobody will come in for a half an hour to bathe mom and then leave; there's a minimum of 4 hours usually, which would give the CG a chance to get to know your mom FIRST. Then go from there. So mom would have to agree to have a CG in the first place, and then she'd have to be paid for the minimum stay each time.
You say your mother has no short term memory but remembers certain things, etc.. Dementia is not a linear thing; she'll have certain deficits and certain areas where she appears perfectly normal. Your mother is showing her deficits in the area of bathing and not realizing she smells or is wearing dirty clothes; that is classic. Is she of 'sound mind' enough to kick someone out of her house? Yeah, probably. She'll have to AGREE to have a carer come in to help her in the first place, that's the key. Maybe you can get BOTH of them to agree to a 'housekeeper' type of person who can segue INTO helping them with more & more ADLs as time goes on. That's my suggestion. Someone who can help with cooking/cleaning/bed linen changes and THEN laundry and showers, etc. She can gently lead into more and more as time goes on.
The other thing you MAY get her to agree to is using large body wipes instead of getting in the shower. It's not great but it's better than nothing. It's a start. But first try to figure out if she has a fear OF the shower and what it is. If you can get that info sorted out, you can fix it. If your dad is also against showering, he may also be going down the dementia highway. You'll really have your hands full with BOTH of them, then. UGH.
But yes, you can hire people to come into help your folks, but you need their permission b/c they'll be paying the CG. And they'll need to accept their help in the first place, THAT is the obstacle to overcome.
So sorry you are facing this situation. Wishing you the best of luck finding a solution to this dilemma.
One thing I would encourage, step back and refuse to be a ride without showers. She gets to make choices for herself and that applies equally to you and what you do. I don't want my vehicle to smell terrible, so I am not giving rides to anyone that stinks, sorry, not sorry.
Do your parents have a shower chair? It the bathroom set up for ease of showering? Like a hand held shower head, no slip insert, good lighting?
Fear if falling could be a reason that neither of them are bathing, so creating a super safe environment goes a long ways in getting baths done.
Do either of them do sailor baths? You know, wash the stinkiest parts with soap, water, wash cloth?
Best of luck, this is a difficult challenge for you.
Coz, if so, this is really time for Dad to be in charge... Is he overwhelmed? In denial?
In theory, yes, I suppose you could arrange (& pay from your own pocket) an aide 2 X week. It may be worth trying, just to see the results - these are just my guesses based on my own experiences & reported experience.
1. Mom loves the attention of an aide & is willingly submits to being assisted to shower/sponge at sink. Possible? Instant win.
2. Refusal continues with aide BUT with some time, she agrees. Aides can coax but not force. Often aides do get better results than family, especially for folk who can showtime. Their pride to not allow family to help melts somewhat as they wish to be a 'good patient' for someone in uniform. Possible? Slow win.
3. Refusal continues for aide.
Now IF successful, who will pay long-term home help? Have you just started a precident to fund their lives? Have you just entered a contract of sorts to keep them propped up in their home? Is this a slippery slope you want to be on?
Or will you be the starter, then Dad takes over the cost?
Either Dad says, yes, I see the value. *Job done*
Or Dad balks at cost & back to square 1.
I have been in a similar boat & can tell you more & how we got things to float better, but trying to gauge first exactly how fast your folks are sinking.
Bathing or showering is the least of the problems I see right now.
Who makes decisions for her?
Who pays her bills?
You or someone responsible should be appointed Guardian so that decisions can be made if and when needed.
Now that that is out of the way...
For the time being you should assume the role of Guardian at least in the respect of her ADL's.
Yes you can hire someone. (eventually, if you are appointed Guardian you can reimburse yourself for the expenses. Or if you have been paying bills this would come out of her account. You do need to keep meticulous records and save EVERY receipt that indicates an expense that has been spent on her care. This includes Food, Clothing, household expenses....)
If you are not up the the role of full time caregiver this can get daunting very fast. It might be time to look into Memory Care for mom.
I typed alot out in my response to another person in this thread. All aspects of her care is already being taken care of by my father. Also, my brother lives on the same property as them so theyre not alone. My brother is very naive, very inexperienced in life responsibilities and struggles with pretty bad adhd that he wont take meds for because they make him worse off, so he is DEFINETLY NOT a candidate for assuming the role of caretaker in a passive nor legal way. Hes way too scattered and disorganized and i cant deal with trying to manage him and his issues as well.. Its up to me to somehow deal with all of this and with a father who mostly does not cooperate with me.
So as blunt as this is going to sound, as long as my dads around, i will not be in any legal control of her affairs.
They are pretty well off and the plan is to keep them both at home as long as possible. In all likelihood, he will pass first due to being a hemodialysis patient, high blood pressure, and heart problems. (My moms problem, thank God, is dementia and has no other health issues except slightly elevated bloodpressure and anxiety)
When he passes and im able to be in control of things, theres definitely enough money to have people come in for at least 1 eight hour shift a day, maybe 2 shifts. That will help her alot and alleviate my brother and myself.
I guess in closing, all i can say is im still unsure if i can legally hire in home services to come and assist and make her bathe.
A long time ago, i was given the impression that without POA or conservatorship, i would not be able to do such a thing, that without having the legal right, the care agencies would refuse to help and wouldnt provide their services to us.
Can you please tell me what you know about this, if anything?
Thank you so kindly for your help!
If she's not of sound mind and no one has POA -- and I'm not sure you'd be the right one to have it anyway because it's not some magic pill that creates cooperation from a cranky person -- then you should probably call Adult Protective Services to have the state take over her care.
My father has issues with relinquishing control of things so i am unable to do much. Shes not in any danger so Adult Protective Services is not appropriate at this time.
All i want to do at this point, since my father is the way he is and it will cause tremendous trouble to get legal with things, is to just hire someone to come bathe her 2x a week. I am still unclear whether i can do this without having POA or conservatorship of her. Of course, shes going to battle with them and most likely refuse to shower for them, because she is just that way. No one can tell her what to do. Not even when she was young and healthy.
So when you ask if she is of sound mind, things are mostly okay up there, other than the fact that nobody in their life would permit themselves to go as long as she has without a shower and even when you tell her to look at how dirty her shirt is, while looking down at her clothes seeing food stuck to them STILL say that she doesn't need a shower, you tell me whether this is sound mind...
Her sense of smell is gone so you can't reason with her from that angle either. Is she in sound State of mind to kick a careworker out of their house or not? cuz i cant figure it out:(