He was diagnosed with cognitive dementia about 3 years ago. Since then he has become more unreasonable, argumentative, has OCD behaviors, I worry about his going up and down the stairs, if I make a suggestion about pretty much anything he refuses to listen and argues til I walk away. I try to explain to him things are for his safety and health, he walks away in mid sentence… I work night shift, sole caregiver, had a senior helper during the day who he hated. When is it time to think about assisted living? He doesn’t shower, wears same clothes til I sneak them in the wash, sits all day and looks out the window tells me he can do whatever he wants cause he busted his balls!!! I am 67 work full time in a very busy ED. His son not a big help, our son has 2 little ones and both work full time
i take him to all his appointments do everything in the house and take care of the finances… I had a break down at work and took 2 months off without pay and now I have to worry about work again and how I am going to pay the bills. I get very frustrated with him, long history of his being a jerky husband anyway . I am living my childhood all over, my dad was the same to my mom and she took care of him til he died at home but I used to get angry with him because my poor mom was exhausted even with my help
If that doesn’t work, your only alternative is probably to reconsider yourself and what you choose to do. If you stop your care, his children are going to have to face a decision about their father. You took 2 months off without pay for your health. It might be better to take another 2 weeks off without pay, and go away for a break. Suggest that one of the offspring move in to care for that time. Your talk with them might also cover your finances – why are you worrying about how YOU are going to pay the bills?
If that too doesn’t work, just leave him on his own for the two weeks. Sometimes things have to get worse before any change can happen.
Divorce is not an easy step (though marriage can be more of a hole than a step). But there are ways to bring things to a head that come before the finality of a divorce and an asset split. The ‘steps’ above at a minimum mean that divorce wouldn’t come out of the blue for anyone involved. You all need a fresh consideration about what to do.
You are still relatively young and have a job, which means you have enough independence to change your life to whatever makes you happy. If you own your home jointly with your husband, the POA gives you the power to sell it, split the funds, and divorce him. His share pays for his memory care, your share buys you a smaller home or rental without him in it. If you don't have POA, you still own the home jointly and a lawyer can tell you how to safeguard your interest in it.
He is probably beyond assisted living at this point, so memory care's the place he needs to be. Ask his doctor for help in placing him, and please take care of your own mental health so you'll have the strength to move on by yourself. Wherever you end up, if it's without him, you'll be much better off.
When it's no longer safe for him to live at home(which it is no longer)changes must be made, as you can't go on much longer the way things are. You will end up being the caregiver that dies before the one they're caring for due to stress.
Please don't be.
I suggest you read this 33 page booklet which has the best information ever about managing dementia and what to expect with an elder who's been diagnosed with it.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia. The reviews for her books are phenomenal b/c they are written in plain English & very easy to read/understand. Her writings have been VERY helpful for me.
The full copy of her book is available here:
https://www.amazon.com/Thoughtful-Dementia-Care-Understanding-Experience/dp/B09WN439CC/ref=sr_1_2?crid=2E7WWE9X5UFXR&keywords=jennifer+ghent+fuller+books&qid=1657468364&sprefix=jennifer+ghent%2Caps%2C631&sr=8-2
Here is a list of useful tips from her e-book I found to be excellent:
The “Dont's”
· Do not reason and argue
· Do not demand that they reason or problem-solve
· Do not demand that they remember
· Do not demand that they get their facts straight
· Do not correct their ideas or scold them
· Do not reorient them
· Do not think that they are being uncooperative on purpose
· Do not think that they really do remember, but are pretending not to
· Do not use a “bossy” dictatorial attitude in care
· Do not act with impatience
The Do's
· Enter into their frame of reality, or their 'world'
· Be aware of their mood or state of mind
· Use few words and simple phrases
· OR use no words, just friendly gestures and simple motions
· Do everything slowly
· Approach from the front
· Wait for a slow response
· Constantly reassure them that everything is 'OK'
· Keep people with dementia comfortable 'in the moment' - every moment
· Maximize use of remaining abilities
· Limit TV or radio programs which they may feel are frighteningly real
· Maintain privacy
· Provide a safe physical environment
Language Needs
· Use short words
· Use clear and simple sentences
· Speak slowly and calmly
· Questions should ask for a “yes” or “no” answer
· Talk about one thing at a time
· Talk about concrete things; not abstract ideas
· Use common phrases
· Always say what you are doing
· If they repeat their question, repeat your answer as you did the first time · Give them a longer time to process information
· Wait patiently for a response
· Be accepting of inappropriate answers and nonsense words
· Speak softly, soothingly and gently
Care Needs
· Recognize that receiving personal care feels intrusive
· Reassure with your tone and manner
· Do one thing at a time
· Talk through the care “play-by- play”
· Be aware of your body language and use it to communicate communicate relaxation and reassurance
· Be sincere
· Use a soft, soothing touch
· Be aware of the individual’s unique triggers
· Be aware that a person with dementia may not accurately judge whether a situation is threatening to them
· They may respond to fear, pain or anxiety by defending themselves with what we call “aggression”
· If they become distressed, stop immediately and allow them time to calm down – don’t try to restart the activity right away
You need need to change your behaviour to adapt to the dementia because the person with the disease cannot.
Good luck to you.