My husband won't do anything about his condition. Before anyone suggests depression, he has always been like a big kid expecting me to take care of everything. He just enjoys eating and doing nothing. Since he seems to be on the road to major complications, at some point he may need to be in assisted living. At this time, at least, I am healthy and will not.
However, assisted living is so expensive, so I doubt we would be able to afford for him to be in a facility and for me to live elsewhere. I've been in these places when my dad was in assisted living, and I found it to be depressing and suffocating. I don't want to live in assisted living unless I have to.
I'm so angry with him for not taking care of himself. He doesn't listen to me or his doctor and just does what he pleases. He expects me to make his decisions for him and takes care of nothing.
Anybody else in this situation? Has anyone gone into assisted living with a spouse when they didn't need it? If my husband ends up with amputations, are there other options? Is there any financial aid to get a handicap van? I am about ready to dye my hair and run away.
You are not obligated to stand by and watch your husband commit slow suicide. You can leave, split the family assets and live the rest of your life without worrying about him. He does not care, so why should you?
He is an adult and you are not responsible for making his decisions, he is choosing to ignore medical advice, that is not your problem.
My grandson's grandfather on his Mum's side is another man who chooses not to manage his diabetes. He will lose his feet and likely his legs from the knee down sooner than later. He also smokes constantly and I doubt he will see our grandson's 5th birthday.
You do not need a handicap accessible van, you need a car large enough to pack your bags and get out of Dodge.
My husband went through toe amputations, diabetic ulcers and neuropathy. He had heart attacks, bypass surgery and was into kidney and liver failure and had become a 24/7 job yet I still had to work full time. After a series of falls he was released from the hospital to a NH with a physical therapy program. The next day, the facility went on lock down. Long, sad, story short, I never got to see him again in person. We would video call, but the last hug I gave him was when he was admitted. He lasted 32 days in the NH before everything caught up with him and I got the call that he'd passed unexpectedly.
So I know where you're at. You don't say how old your husband is, or if his diabetes has started to kill his organs but if he is Medicare age I suggest you look into Medicare advantage plans during the next enrollment period. It is complicated, and confusing but well worth your effort. Medicare has a good comparison app on their site that is priceless. The thing with Advantage plans is that they are strong in different areas. There were years of me picking a different plan each year to get the one that paid for whatever crisis he was having at the time. One year it was one that had a good drug plan because he was on so many meds, but stable. The next year, his feet had started to have ulcers so I found one that had a low co-pay for his podiatrist. This year it was obvious, to everyone but him, that he was going to soon be having hospital visits so I went all out and I found a good one that paid for all his hospital stays and 100 days in a NH. Yes, it cost an extra $300 a month. But that was less than one day's deductible in the hospital for some of the cheaper plans and was just barely doable with a tight budget.
I strongly suggest that you research and contact an attorney who specializes in Medicaid filings. They will be able to advise you of the intricacies of your state's Medicaid system and what you can do to minimize your losses. Many offer a free consultation. In my case, if my income had been low enough then I would have gotten his social security even while he was in a NH. Half my retirement account (that I had pre-marriage) had to be spent down, but it could be spent down to pay on the house, or even a dependable car that isn't extravagant (mine is quite old.) It could even have been spent to buy an immediate annuity. They don't count money that is producing income. They couldn't touch my 401K either since it isn't available to me unless I quit my job. Of course, YOUR state may be different, but you won't know until you speak to an attorney. Medicaid is extremely difficult to navigate by yourself.
My husband passed before I had progressed too far in the application, but I got an education nevertheless.
One other thing, get a burial policy for him. My husband didn't qualify for life insurance but anyone can get a burial policy. I was able to get a $10,000 policy for $66.00 a month. Lesser amounts are cheaper. That's pricey for the coverage and he had to live for two years after I started paying, but he lived for two and a half years. That money has come in very handy because after losing him, I lost my job too. Start planning NOW.
I think that is where you have to get to. You may want to tell him there will come a time when you will not be able to care for him. Since you can't afford an AL and really don't want to live in one, it will be Medicaid and a nursing home. Tell him you have looked into it, and as a Community Spouse, you will not be made impoverished.
Just a quick explanation concerning Community Spouse. Your finances will be looked at. With GFs parents, they had 60k in the bank, SS and pensions. Not sure how the SS and pensions were split, but the 60k was split in half. Her father needed NH care so his 30k had to be spent down and then Medicaid took over. Each state is different as is each situation but that info is basic. If u have a home, you will be able to stay and have one car.
You know...you can't change stubborn.
Three years passed before she went to any diabetes education. She always said it was ok to cheat on her diet, not take her blood sugar, skip her meds etc. I could go on and on...it was a nightmare. Twenty years later she has caused a lot of damage to herself and lives in assisted living. You won't like this but you will probably be in assisted living with your DH if you don't do something. Talk to his doctor, don't buy unhealthy food, attend diabetes education classes to learn about the disease. Contact the American Diabetes Association. Get help for yourself because you can't make it your problem. Then you can make a plan for what you want to stay or leave. He likes you doing all the work for him-time for big boy pants. Gotta grow up sometime.
Properly managing Type II diabetes is a huge job. A lot of people don't take it seriously. Many ignore it and eventually, it catches up with you. I'm a Type I diabetic, which is different from II, but, I have no choice, because, if I don't devote ample attention around the clock, I will die within hours. I have a pump.
One thing that I would consider is if your husband is REALLY able to manage his diabetes. Does he have cognitive decline? My cousin, FORGOT that she had Type II and went about with her life. Sad things followed her though. She forgot she had hypertension too. This can cause small strokes, that in turn causes the dementia. So, there is more that can happen than organ failure, amputation and blindness. It's very real and scary. But, if he is able and wants to work on it, there are ample online programs, webinars, websites that help one manage diabetes. Often it involves medication. Does he take medication?
Selfish choices never hurt just the person making them. There are ugly consequences to many, unfortunately.
Your husband expects you to make his decisions for him and to do everything because that's what you do. It's what you've done, and so it's what he now expects. If you want to change that, then change it. Give him a list of responsibilities you will no longer be in charge of, and let HIM handle them. Be prepared to have everything all screwed up, however...........so then you'll throw your hands up in frustration and say Forget It! I'll Do It Myself! And he wins again. Back to square one. Put your foot down and KEEP it down, that's my suggestion. Stop doing so much for him.......he can do for himself, he just chooses not to.
As far as taking care of himself goes, you can't care more about him than he does. He has to WANT to practice healthy behaviors or else he won't. He will bring both of you down, like my uncle did, and that's the sad truth.
If you can afford to place your husband in Assisted Living, why not do it? The trouble with moving in with him is the size of the space. It's very small for 2 people, generally, and the costs are much higher for two than one. I had to move my parents into Assisted Living in 2014 after dad fell and broke a hip. My mother wasn't really too badly in need of assistance herself at the time, but after 68 years of marriage, my dad felt like he couldn't live without her. So she begrudgingly moved in with him and wound up liking it there; she went downhill pretty fast and needed a LOT of help in short order, so being in an AL turned out to be a good thing.
I don't blame you for wanting to run away.......but why do you have to dye your hair? :)
All joking aside, maybe you can go stay with one of your children or a relative for a couple of weeks and leave DH to his own devices for a while. When you get home, he may have changed his tune after seeing what it feels like to be alone and on his own. Just a thought.
Wishing you the BEST of luck in a difficult situation, my friend. Sending you a big hug and a prayer for peace.
I get so frustrated. It isn't just his life that is being affected, it's mine, too.
To me, it sounds like you don't really WANT to leave your DH, just unhappy with his choices. As others have said, I don't think you can really stop him. I do wonder at the long term effects of hyper/hypo damage, the brain is permanently changed. The apathy you describe is like stroke or vascular dementia. Have these ever been mentioned?
If he does get to the point of amputations... It may be possible to manage at home with a lifting machine & wheelchair IF you are fit enough, get extra help in for bathing etc AND you are committed to this level.
A friend's diabetic Dad did as he wanted, not as advised. Became double amputee. Went hospital-rehab-NH from there - as wife had already decided that was her line in the sand.
This IS a sort of default plan.
And it's OK to not do it ALL for him. A NH close by, you can visit frequently while starting some new hobbies & interests of your own.
Note I mentioned NH, not an expensive AL that leaves you nothing to live on.
You may benefit from elder care legal & financial advice to work through the options, to be more prepared.
To be honest, I have thought about leaving but we can't afford 2 households. Splitting our income wouldn't work. Also, my religion frowns on divorce unless there is infidelity or abuse, neither of those apply.