At first, I was alarmed when I'd hear him (he sleeps on the sofa). His 47 year old son passed last year suddenly and I felt he was grieving in his sleep, but now I'm having second thoughts and don't know what to do.
I also feel that he is depressed, but when I ask him, he vehemently denies this. He will not talk to a physician about depression.
He is practically immobile, as he is hesitant to have his replaced knee replaced again. He has congestive heart failure, has a defibrillator and must take diuretics.
Since we were married for 20+ years and are divorced, (we still see each other all the time), would his docs speak with me? I have been to several doctors' appointments with him, so they know me.
I am very concerned here.
When I gently confront him about these questions, he makes up stories like he was asleep and dreaming. Oh, he didn't mean that or that I must have imagined something. He claimed that an anti fungal prescription he was taking caused him to hallucinate. I called the pharmacist and he said no way.
From the time I get to his house until the time I leave, I'm waiting on him hand and foot. He's nice about it, but so demanding. I have to go to my place to get some rest. Then he bitches.
OK. It's just going to get worse for him. I know it's Sunday, but I'm calling our cardiologist (who knows a little) and give him the whole story. He can tell me or my ex how to proceed. Period.
Thanks, everyone for your support. I'd have lost it long before now had I not had the blessing of reading your replies.
I wouldn't get answers of anything. Did dad's blood turn dayglow green today?
Just anything. Let me know how he is. For instance, Dad is fine, he is sleep now, the chemo kicked him on his ass today, but tomorrow will be different. I never go updates, drove me crazy.
I am sorry for his loss and your divorce. 2nd time for him I take it.
How long ago did he have the knee replaced the first time? How old was he.
You have been to doctor appontments after you divorced.
Do not force him to talk about being depressed. You know the answer. It is always a hard thing to lose a child or loved one, no matter what the age. Perhaps next time he has an appointment ask doctor about mood mellowing pills (antidepressants) even on a temporary basis.
Ask doctor if that is a possibility with his heart condition. Try getting him out a bit for some other type of activity if possible. Rent some fun movies. Libraries usually rent movies really cheap. They have a good selection too. I do this a lot. It's fun.
He thinks he knows more than the docs, most of the time and likes to stay 'aware' during surgery, so he can watch. (!) This caregiving ain't for sissies. This is going to get worse.
Wish I had known the power of a medical POA two years ago, when he was in intensive care and his alcoholic daughter would not put my name on 'the list' of allowable visitors. She lives in another state, always has to fly here, for obvious reasons and she doesn't like me.
I'm rather confused that since his son passed away, he appointed his daughter as 'emergency contact', but I remain with medical POA. What's the difference?
Thank you all for all your encouragement and advice. I'm glad I found this Forum.
Does this change my appropriateness in speaking with his physicians?
Then on the subject of his mental health, as it's been mentioned there are many things that can be affecting this, he has several possibilities going on but asking an adult especially of a certain age who hasn't openly dealt with depression in their lives, if they are "depressed" is likely to get just the response you got. Although it's better now admitting depression has long been considered a sign of weakness not a medical condition that can and should be treated. Grieving and depression get all tangled up in societal pressures especially for a male of his generation so it's not going to be easy to accept. Perhaps approaching it from the angle of grief will help, don't refer to being depressed refer to grieving, no parent should outlive their child and when you combine that with the inability to channel that grief into something physical, especially if he was a physically active person, makes it all that much harder. People really do "die of a broken heart" even if it's in pieces and not all at once. Does he have other children, grandchildren to focus on? The way we approach our LO's with these things really can make such a difference as well as being the hardest part to figure out because it's so individual to person and moment. You and I can easily say why did he go through the knee replacement if he isn't going to use the knee! But that doesn't mean he's ready to hear it that way. Even more importantly and again this involves doctors, using that knee is what's going to help prevent needing it replaced again, use it or loose it applies to many things as we age and that includes replacement parts. Of course not getting exercise, not being active only makes his CHF worse too and it all becomes a vicious cycle so you are so right to be concerned and want to find a way to interrupt the downward cycle it sounds like he's in just try being gentle, subtle even about it if you can first. I feel for both of you and he is VERY lucky to have you still involved in his life and caring for him.
I also feel that it all has stemmed from the loss of his son. There are no grandchildren and all that's left is his sister, who's a bit daft and his alcoholic daughter, who is better left out of the situation.
If you've read, I recently learned that both our Medial Powers of Attorney are still in force. Will this help me?
Your ex has CHF, which likely means his breathing during sleep is disordered. He may benefit from using a CPAP machine. The keyword there is *using*. Too many CPAPs are prescribed and never used.
Sleeping on a sofa is usually not ideal for anyone. Look into getting him a futon or daybed.
Your ex's son died suddenly. Such stress is inconceivable to anyone whose been fortunate to have it not happen. Your ex may not be adapting to the death of his son, and he may be experiencing complicated grief.
The Center for Complicated Grief defines complicated grief:
"Complicated grief is a persistent form of intense grief in which maladaptive thoughts and dysfunctional behaviors are present along with continued yearning, longing and sadness and/or preoccupation with thoughts and memories of the person who died. Grief continues to dominate life and the future seems bleak and empty. Irrational thoughts that the deceased person might reappear are common and the bereaved person feels lost and alone."
There is complicated grief counseling specifically for the elderly. It's usually weekly sessions for 3-4 months. In my opinion, a regular physician does not have the tools to help your ex with complicated grief.
If your ex is a religious or spiritual man, perhaps having a pastor (or someone whom he respects) visit him at home in order to discuss counseling will help him take the first step toward seeking help for himself. Your ex must want help and participate in order for anything to be effective.
Your advice about recording him in his sleep is spot on. I began my recording last night. Thanks to you, I will be armed with these audio recordings, as well as the Medical POA when I talk to the doctors.
Blessings!
If you are not listed you could ask your EX if you can be.
You could call or send a note to the doctor. Many doctors have a secure patient portal that you could use for this. Explain what you have witnessed. If your ex does not say that he is depressed there might not be much the doctors can do other than looking of other indicators and talking to him.
Many people see "depression" as a weakness. Many people also do not want to "share" and talk about problems I think men in particular have a problem with opening up.
I do hope you can get through to his doctors about your concerns.
RE his issues, I agree with others that you should report to his docs or family members what you witness, but be aware that they do not have to tell you about him because you are not his PoA for healthcare. Do not be offended. The law prevents them from talking to you.
I also agree that he should be evaluated for neurological issues. My husband who has dementia talks and moves his hands and arms in his sleep, but that does not mean your ex has dementia. The doc can determine that with tests. It could be his other meds are causing this strange behaviors in his sleep, so ask the doc too.
Night terrors come with Dementia. With heart failure he may not getting enough oxygen to his brain. Sleeping on the couch may not be a good thing either, unless a sofa bed.
It's not the sort of thing I'd normally go in for, but have you tried recording your husband's night-time disturbances and playing them back to him next day? It might bring home to him how big this problem is getting.
Grief changes the brain and I wouldn't be surprised if your ex-husband was experiencing depression as a result of the death of his son but if he doesn't want to talk to his doctor about it and if he doesn't want to get up and be more active there's nothing you can do. You can't force someone to do something they don't want to do. Although his immobility will bring him down. A body isn't meant to sit still all day. This will exacerbate his medical issues.