So my ppaFTD mom out of the blue was acting a little sleepier than normal for a cpl days, then all of a sudden on Monday she's so tired she's at a near lethargic state. Its almost impossible to arouse & when finally aroused awake she's so drowsy can't keep her eyes open. Around supper time oddly enough what would be her normal sundowners time I can get her to get up walk around become alert & act herself for pry good 30mins then as soon as she sits back down immediately drowsy asleep, to the point having to wake her up in between bites of food at meal times..I refuse to believe this is disease progression as it hit in an almost immediate way. I think maybe UTI but like most with this condition getting meds down can be a chore, was suppose to be 2pills 3xs a day for 2 days...yea didn't happen so trying again started last night hoping it's just a uti but need advice any suggestions what may be going on...sick to my stomach with the thought of this being the possible new norm...I'm in desperate need of advice. I pray as tomorrow is Christmas & her birthday I can help whatever has caused this abrupt change!
I am curious, and maybe grasping at straws for hope here, but how is your mom doing now??
I hope you can find out what is going on with your mom because as you I too am feeling totally nauseated and upset but am going to reach out on another post to list some other concerns.
How is his condition now? Has he improved? How long have you been dealing with the change?
You say your mother is still eating well. That certainly makes this increased sleepiness much less worrisome. You are able to wake her for meals and she is having no new swallow difficulties. That is very good.
You mention that you have a nurse present weekly. Great. She is the one you should currently be asking about what to do about the changes or about how worried you should be.
You have said that you don't want to worry medical personnel about "every little thing", yet it seems that you are worried about her current condition, and that it is ongoing. That takes it out of the realm of "every little thing".
Do contact the nurse who sees your mother weekly about the change you are seeing. Follow her advice; she knows your mother. The rest of us do not and can only guess.
Wishing you the best and good luck.