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Spouse doesn’t know why he wanders. Says he can’t sleep, has to go to the bathroom, gets hungry. Since he doesn’t remember most of our conversation, there really is no reasoning. I thought I could train him to stay in bed, but it’s just not working. I let him wander so I can get some sleep. He never goes outside and he seems safe enough that he hasn’t fallen or had an accident.

The dementia component in your husband's co-disorders is going to be more devastating in the short term than Parkinson's. Put some alarm chimes on the doors for now, just in case.
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Reply to AliBoBali
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He never goes outside until he goes outside. You won’t expect it and will be devastated if he is lost and can’t find his way home. It happens all the time, and the end is tragic. He needs to be in a locked facility now. Please do the right thing before he comes to harm…..PLEASE.
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Reply to Fawnby
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Oh honey, you can't reason with dementia, nor can you train your husband to stay in the bed.
And you most certainly shouldn't allow him to wander while you sleep, as he could very well wander outside when you least expect it.
We now in the city I live have a 69 year old man with dementia who wandered outside and has been missing now for 4 days, and our temps have been at night in the 20's. I doubt that he will be found alive.
You need to either place your husband in a memory care facility where he will be taken care of 24/7 and locked in, or you need to hire some full-time in-home help.
What you're allowing is VERY dangerous. Please educate yourself about this horrible disease of dementia so you will be better prepared for what lies ahead.
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Reply to funkygrandma59
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Do speak with the doctor and get a new neuro-check on him. It sounds the Parkinson's has progressed to a more generalized dementia mix. I think you likely have seen this progressing slowly. Now if this is a sudden change be sure to get a u/a, C&S check to rule out any confusion coming from a bladder infection.
Sorry you are going through this.

Doc may be able to help with some calming medication, a mild anti-anxiety or anti-depressant and I hope that is the case. If not, only you can decide when things are too much for you to handle at home on your own. He sounds so cooperative and amenable over all. I wish you the very best.
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Reply to AlvaDeer
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