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Finally got a diagnosis of FTD in 2018 but he had his first hospital stay in 2016. He went into full time dementia care in November 2019. He is now at a stage where he needs a walker even to go a short distance or he would fall flat on his face. He has Parkinisms as well. it’s a hard road for everyone thanks.

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Cleveland clinic says that the "average" lifespan after diagnosis with FTD is 7.5 years.

As you can imagine, with any individual "guessing", it depends so much on overall condition, care, and happenstance. Anyone's experience with dementia is as individual as his or her own fingerprint.

I sure do wish you much luck.
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Well according to "Google" the life expectancy for someone with FTD is 6-8 years.
So I would say just enjoy whatever time you may have left with him, as this journey will be over soon enough.

My late husband was diagnosed with vascular dementia in 2018, though was showing signs a good year before, and because vascular dementia is the most aggressive of all the dementias, with a life expectancy of just 5 years, I knew he wouldn't be around very long.
He died in 2020, and now in retrospect, I am grateful that his journey of suffering wasn't that long like some with Alzheimer's who can live for 20+ years with it.

May God bless you and keep you.
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PandabearAUS Oct 2023
So true. That’s how I feel. The shorter the time the better esp for my husband
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I think having Parkinsons speeds up the timeline. My Aunt showed clear signs of dementia in her late 80s. She was a very healthy person even at that age, and had very good in-home care by family. She lived to almost 101, but had shimmied out of bed and broke her hip. She was in rehab when she passed away... possibly from a clot. Had she not broken her hip I'm sure she would have lived a few more years sincer her very healthy older sister is stil alive at 104 (with no dementia).

My SFIL had Parkinsons and Lewy Body dementia. I think he lived about 8 years from diagnosis, if I recall correctly. He also didn't have any major health problems but balance issues and falling were occuring regularly. He lived out his last year in a county Medicaid facility, so not the best care.
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We first noticed something was amiss with my stepmother 10 years ago, she has FTD, she is in stage 5 or 6, not really sure exactly. She has been in MC for two years, AL before that.

Might go on for a couple more years.

Sending support your way!
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