I've tried to ask this question before but I guess it was unclear exactly what I was asking so let me attempt this again. I am curious about the space in between stages. If your going with the seven stage guide then it would be the space between the six and seven stage when a person will go from ranting and raving to single word non sequiturs. What is your experience with the crossover? Is the transition like falling off a cliff or more like a slow but steady decline toward their last days?
My LO had slow progression to the point that no one knew what was going on with her until it hit big with full blown Stage 6. (Four years ago.) Those things continued, along with double incontinence and being wheelchair bound, until she progressed to Stage 7 and that's taken about one year. Over that year, gradually losing ability to feed self, gradually losing speech, gradually stopping smiling, gradually needing support to sit up, So over the last year we are at 7e.
Since we are restricted in posting links, I'm going to PM you one that I have looked at it. I'm not sure if it has value, but, it's something. I know it gets frustrating and we want answers, because we are so apprehensive about the future.