I choose to keep my husband home and not in a nursing home. He requires very much care and on lots of meds. I also test his blood surgars and Inr levels. I do everything for him because of his severe condition and cannot even work part time out of the home. Was told just because we are married I cannot get paid. This so unfair. How do I fight it?
I guess when we promise to cherish "in sickness and in health" we sign up for this role. Sigh.
Perhaps it would be good to accept some help from someone else. Medicaid won't pay you but they would (depending on their evaluation) pay to have help come in for a certain number of hours. That might allow you to do a little parttime work (which could be good for both of you). For a few years I had my husband in an adult day program 2 or 3 days a week. When his needs surpassed that I had a PCA come in and free up some of my time.
If keeping him home is your goal (as it was mine) please accept any help that might be available. Cash would be nice, I understand that fully and I sympathize, but as things stand, take what you can get.