For the last couple of weeks we've noticed that mom isn't swallowing all of her food. I see her breakfast in her mouth hours after she's eaten. The weird thing to me is that she doesn't even know that it's there and that it's not bothering her. yuck! I'm just wondering if this is typical in late stage ALZ or something else. She is on Hospice and can not longer feed herself. What can I do to help get the food down and out of her mouth? Any light shed on this will be greatly appreciated.
Thanks
Her stories were the best...Tom Selleck, the police commissioner of NYC went to Washington, and arrested John Wilkes Booth for killing Lincoln. Brought him back and put him in jail.
You just go along with the stories, don't say they aren't true, because that's what they believe.
He would have taken care of that jerk!!
Please, use your common sense if you really, really, love your parents. It is our time to pay back to them for their time and dedication to us when we were kids.
I am pretty sure that there is some few CNA, nurses, etc that really care about these patients, but .... they must follow orders and they will not have time to dedicate to your own parents the same attention that you expect from them!
So, please, keep your loved ones at home. Or at least, have a hospital bed at home to facilitate what should be your task every so often and the one of your siblings, or others that might come to provide services or help you with it.
I will always be thankful to this webpage for allowing me to tell all about my own and sad experience I had with my mother in the hands of those so-called doctors, the hospice and my siblings that did nothing for my mother!
Check the medications you mother/father is being given by nurses; google the side effects of them.... you will find the answers to why your mother is in that state you see her!! And then, you will act accordingly!
Two remedies that have been helpful to us.
1- When my wife forgets to swallow and no prodding does the trick, we give her a spoon of a food which is in contrast to what she has in her mouth, for example a spoon of ice cream.
2- We have a portable suction device, much like what the dentists use to get rid of the water in the mouth of the patients when they work on their teeth. It operates on electricity and batteries which means we could take it along when we were going our of our home. You can suction the leftover food from the patient's mouth. My wife sometimes stopped swallowing right in the middle of her lunch or dinner. We suctioned the food out and she would start swallowing again. This is important and a must to do because the food can get aspirated and cause lung infection.
mom is living in a facility so I will talk to staff about it tomorrow thanks 💕💕💕
Sissy
My DH had Dysphagia and all it took was thickening his drinks/foods.
Difficulty swallowing foods or liquids, arising from the throat or esophagus, ranging from mild difficulty to complete and painful blockage.
Mom pockets her food too. They did an evaluation of and found she also has Dysphagia. Many have commented on "pocketing" so I need not go into that phase.
I've been caring for Mom for over 6 years now, this started about 2 years ago and progressively got worse. However, with patience, and small pieces of cookies on between bites, she eats her food. The sad part is that the care facilities do not have someone that can "sit for an hour" to feed one resident. In addition, if her mouth has food in it and they lay her down she may possibly aspirate. I suggest you google Dysphagia, Aspiration, and aspiration Pneumonia. "Patience for Patients IS KEY."
Alzheimer's does not kill the person, but the complications of it will. Most die of either a fall or pneumonia. Feeding tubes are not a good idea with someone with end-stage Alzheimer's because they will tend to yank them out. They can still vomit and aspirate with tube feeding, and the tube insertion area can get infected.
One study showed 40% seemed bothered by the feeding tube to the point the patient had to be tied down or sedated to prevent them from pulling it out
see https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3254052/
Another complication of tube feeding appears to be diarrhea..more likely from "dumping syndrome" and this can set off urinary tract infections.
https://www.managedhealthcareconnect.com/article/8614
Maybe when it comes down to letting them die vs. trying a tube as a last resort it still requires decision making by the family. I suppose in a nursing home you all will not have to see your loved one tied down or sedated because they are trying to pull it out, but it is a risk you have to take.
At this stage a speech therapist is usually sent to evaluate and a modified barium swallow test to see if food is quite literally going down the right pipe or not is ordered. This is to ensure she’s not aspirating good into the lungs and recommend the proper food and fluid textures.
A change in diet texture to mechanical soft such as eggs and soft toast, to purée which is where food is given after puréed in a blender and even thickened liquids are given to help her swallow them efficiently.
As a long term care nurse for over 20 years, I can also recommend that a urinalysis is given and possibly a chest X-ray and lab work too. So if you haven’t called the Dr. yet do that. If she is ill especially with a urinary tract infection, this could be a very treatable indicator that an infection is taking place and will slowly resolve as it is treated. Even if no other symptom is present.
Sometimes even in the presence of an infection the set back has already continued to stage them further along and they do not regain the ability that was lost. The longer the set back goes on the more true this appears to be.
I would start there first with tests then get the speech therapist next or simultaneously.
The sweet taste is helpful to trigger the swallowing reflex as is the massaging as the first poster said. Definitely do these tips in the meantime.
A decision as to place a feeding tube or not is pretty common with end stages of dementia and Alzheimer’s as well. It is generally not recommended however, for many reasons, that I won’t go into here. But I will say this a huge decision not to be taken lightly or thought of as obvious. An educated decision and family feedback is warranted. Aspiration is generally just as big of a risk if not more with a tube feeding. I only mention this now as once the pocketing of food starts this decision is often not far behind.
Lets hope it’s a treatable infection and she recovers from this fully. All my best!
I also used a swab after he ate to remove any debris that was there.
I did this for 2 reasons.
1. So the food would not stay there and become a problem as it broke down.
2. So he would not aspirate food particles.