My MIL is in Assisted Living. Someone had recommended to me to try to get home health care via Medicare as it could help in various ways we may not even realize. I'm trying to figure out how it might help, and feel like it may be a lot of time and stress to come up empty yet again (as it is with most medical appointments we try for MIL for her various issues).
We have an appointment in a couple of days to talk to her GP's nurse practictioner about possibly getting home health via Medicare to help with MIL's feet and anything else they can help with. She has hammertoes, and the podiatrist said he can't operate as too risky. Recommended soaking in epsom salt for relief. That was where we thought we'd start, asking if home health could help with that and any other things they could help with, but we don't know what.
MIL uses a rollator walker, but can barely use it anymore. Mostly sits in it and rolls herself around room, has never been interested in leaving room to socialize. Knees are very bad, has moderate dementia. The nurse at the facility as told me she is having more and more trouble transferring and may soon surpass the care they can give (meaning it's time for nursing).
The nurse told me the main problem seemed to be MIL's knee, we got her in to her knee doc to see about that (though the doc had long ago said they couldn't do surgery, and we knew it was a long shot we could do anything). MIL had been complaining about her knee and was thrilled to see the knee doc. She had fallen and said it felt like "something shifted" in the knee. But on the day of the appointment, she told the doc her knee was fine, that her foot was the problem. She had no recollection of going to the podiatrist, or being told the couldn't do anything for her hammertoes. My husband told the knee doc about the fall and what she'd said, but the doc didn't even take x-rays of the knee. I wasn't there, and he's bad about pushing for more info. I stay away, because she's sure I'm trying to kill her and gets paranoid when I talk to docs. Anyway, I doubt there's anything they could've done and they knew it.
So here we are, stressed as hell at the thought of getting her into the doc for what may be no reason - MIL can be nasty, and it's gotten hard to get her in and out of car. We had home health before when MIL needed a bandage changed daily for several weeks. Knowing this, home health still could only come out once a week and did not even keep us informed of if they'd come or not. The facility she lives in doesn't do wound care.
So I'm not sure if there's any point going to this appointment. What can home health offer her that might let her stay in AL longer?
Oh, and it can't be PT - the facility has people on site for that, and MIL won't let them touch her anymore. Says they hurt her. Maybe the exercises did in the past, but the most recent round, for her knees, she declined doing any exercises, they just helped trying to get her to use her wheelchair (she's not interested) and trying to find safer ways to shower. But she is convinced they hurt her knee, even though she didn't do any exercises with them.
I will tell you honestly from 25 years experience in being a homecare caregiver. Don't get homecare aides to go to the AL for your MIL. All that is is an extra cost that will be for nothing. She needs a higher level of care and that means a nursing home/memory care.
As for the next doctor's appointment. You might as well have her go. It will give you and your husband a chance to talk to the doctor and ask him to help get her placed in a higher level of care. In fact, if I were you I would call the doctor's office ahead of time and explain about the dementia and that your MIL doesn't remember anything so she cannot truthfully answer anything they ask.
She needs placement now not homecare.
Hopefully you will be encouraged as you find people willing to help you encourage her.
as an aging wife with a husband in early Alzheimer’s, I am interested in how CNA or traveling caregivers and helpers might help us as well. Kitty Larsen
If the MIL is so far gone in her dementia that she can't answer questions at the doctor's and thinks her DIL is killing her, art therapy, a church group, or flower arranging is not going to help her. She needs a higher level of care than the current AL facility she lives in can provide. She needs memory care and skilled nursing.
There are activities in memory care that are for people with every level of dementia. It would be better to get her placed there now while she still may be able to acclimate to a new environment.
You are correct about anti-depressant medication possibly helping. I've heard of good results with anti-depressants and people with dementia.
I think home health is one of the best decisions a senior can make the minute they can qualify for it. It kept my mom at home until her death at age 97. I could not have done w/o. I counted the visits as priceless.
Now my DH aunt, 98, in a NH for the past three years bedbound, has the same aide my mom had years ago, now through hospice. The same aide is still my right arm. Counting my dad’s care before my moms, I’ve had over 25 yrs experience dealing with home health. It is truly a blessing for those who fit in the sweet spot that qualify and can understand the services they offer, which they have been paying for since age 65. The fact that her health will decline, so what? Doesn’t all of our health decline. All any of us have is today. And the older we are, the more important today is. If you can extend her stay in AL by a few days or weeks or months vs a NH, hallelujah. Job well done.
ALF will charge you for every service they perform. Home health is covered by your mil insurance. Find one that also offers hospice and the same co can follow your MIL as her needs change. It can even help kerp her in ALF and out of NH while on hospice.
Based on what you have written, the doctor can give an order for MIL feet to be soaked. The nurse can check her feet, her vitals and whatever her comorbidities are. This helps with any future doctoring needed. She has someone watching out for her on a weekly basis. The aide has to touch her. She doesn’t have to bathe her. She could help her soak her feet. The doctor can decide if it helps or not. If it is a good doc who understands the issues of travel, a virtual appointment can be made for follow ups. The feet show up great on camera. Probably better than in person as it can easily be magnified.
Tell the home health your primary concern is mil feet when you speak with them. What do YOU have to lose by having home health check on MIL?
Oh and home health does do wound care. Again, they follow the doctor’s orders. If the doctor orders wound care three times a week, that’s what it will be. A good home health will have a schedule of what days they will be there. They use telephones. If MIL is in an ALF then she would most likely be there whenever they arrived. In rural areas I found them much more punctual than the doctors appointment times.
Thanks for the tips, but we won't be finding a new gp or gerontologist for her (couldn't find a good one nearby when she moved here) - she knows and likes this gp, and even still barely wants to go. I really just wanted to know what home health could possibly do to help, though it's seeming like not much, as I suspected. Just trying to decide if I should cancel this, which I hate to do again on short notice, but hate even more going through the stress to all of us to get her out if home health won't help. And she will not like hearing about what the podiatrist said and think it's all just lies we made up because we're out to get her, and it is something I volunteered for and suggested, but dread as we get closer and see how she acted when we told her she had an appointment - she was not happy about it. If it's pointless, I need to save us a shred of our mental health by not doing it.
Your MIL will think things can be fixed, will think things can be treated and she will get better.
That won't be happening.
Things will be getting worse.
So yes, you are going to need as POA to be in charge of deciding what should not be done, and a lot of stuff is absolutely worthless running around. You are better to give a good sugar pill daily (recommend d-mannose; it's a simple sugar even diabetics can take, and hey, it seems to help prevent bladder infections, another unavoidable and problematic thing.
You know your MD situation best. Great, set that to the side and forget about it. She keeps the doc she loves. But you need to stop the merry-go-round of nothing-rounds for little reason.
This is aging. As I said, I guarantee you as an 82 y/o retired RN. Won't get better. Will get worse.
MIL needs now a doc who sympathizes, understands we are on our way out, but helps us stay on our feet long as we can and deal with chronic problems. Again, these are aging issues and there will be more the longer we live. Not a lot a home care worker can do other than what ALF already does. Try to keep us upright as we toddle toward the MC down the hall.
So yes, some of this is about the right MD.
Some of this is about the right care.
Some of this is about MIL's own determination and/or lack of, right walker, right footwear, best arthritis rub.
Some of this is about balance.
Some of this is about pain.
Some of this is about acceptance.
But it all adds up to a downhill trajectory. And no amount of going to doctors is going to change it. At some point a "make me better" attitude has to change to "How can I be comfortable and as self-sufficient as I am able to as I await the Grim Reaper's knock at the door".
We are all different, and as you can see, there isn't going to be one answer for everyone or everything. A lot can't be fixed. Some things can. But a good gerontologist will take more time in knowing which is which, and will help us accept and make as tolerable as we can this last time we have.
Practice the serenity prayer with MIL> I say that as an atheist who uses it all the time.
I wish your MIL all the best. As my brother said of his ALF when he was alive "We all sit about and discuss our medical woes and watch the ambulances and hearses come and go". We laughed. But it's kind of true. MIL and I would have LOTS to talk to one another about!