Hello. My mother is 85 and has dementia, uses a walker and wheelchair and is incontinent. She currently lives with my younger sister and brother in California. I live in Georgia. My Mom adores my brother and does not like my sister. My brother is moving across the state at the end of the year. Although my Mom wants to stay at her house, I know she will not be happy once he moves. I feel I would be the next best place for her and can give her the care she needs. This obviously would be a huge change. Has anyone out there moved their loved one across country? Any input would be welcomed!
Don't do it.
If you must move Mom, move her to an assisted living facility near you, but not into your home.
At first, it seems like a great idea. Almost immediately you will find your life enveloped and consumed with elder-sitting. Even if your mom is in the best shape (and she's not) you are bringing upon yourself a complete change of lifestyle.
You have no idea what you are signing up for.
HOWEVER, this is just my opinion. You can certainly do what you feel is best, but an incontinent, wheelchair bound dementia patient requires 24/7 care.
Good luck.
Parents, especially those with dementia have a tendency to dislike the child who is doing the bulk of the caregiving.
Before I committed to this, I would go to mom's house and give sis two weeks of respite. See if you can do what she does.
I agree with Barb that if your sister is the caregiver in the current equation, and your mom says she doesn't like her, just know that YOU will be the one she doesn't like when you are providing 24/7 care.
Bottom line is she is probably NOT going to be "happy" anywhere. That ship has sailed. She needs to be safe and cared for and you should look for moments of contentment and happiness and treasure those.
I haven't moved old demented folks acros the country but may have to in the next couple of years. It depends on the level of their needs. It could be done in a car, an RV or a medical transport service for some big$.
Keep in mind elders don't like change, especially with dementia.
Also your mom might be manageable now but this only goes one way. It will get much harder very soon.
Take a few days and read the bazillion posts on this site about caring for elders in your home. Most don't describe pleasant experiences, many portray living h*ll, but some have been successful.
Study this long and hard. I'm responsible for my failing parents. I discovered this site a while back and learned a lot. I may have to move one or both to a facility near me but I will not move my folks in with me and my wife.
Barb, above, had an excellent idea about you going out to be with Mom for two weeks giving your sister and brother a much needed break. Then you can see how 336 hours would be caring for Mom. Caregiving is extremely exhausting especially if an elder has memory issues and if you need to transfer Mom from the bed to the wheelchair.
As for Dementia, read these articles to get a better idea what kind of journey you will be facing: https://www.agingcare.com/alzheimers-dementia
Please read this article and the comment that follow it: https://www.agingcare.com/articles/living-with-elderly-parents-do-you-regret-the-decision-133798.htm
Oh, if your Mom is on Medicaid [different from Medicare] then Medicaid stops at the California State line. Mom would need to apply and be accepted in your State.
I think the idea of assisted living near one of the children is a very good idea if your mother can afford it.
Can your mother transfer herself from the bed to a wheelchair? For me that would be a deal-breaker if she can't.
My mother moved in with my sister. Mom had dementia, used a walker and sometimes a wheelchair. She was not incontinent. Two of us each took Mom for a long weekend each month and a third sister stayed with Mom one evening a week. Two of us shared a week when caregiver sister and her husband took a vacation.
In general this worked well. The three of them got along. But mother fought taking a shower each and every week. She became more and more home-bound, even canceling hair appointments. Her health began to deteriorate and she couldn't transfer from bed to wheelchair. We placed her in a nursing home. She'd been with sister 14 months. It was sort of her "assisted living" experience.
We were all amazed at how much Mother blossomed in the NH. She willingly took showers. She loved having people around, especially men to flirt with. The trip to the hair dresser was just down the hall. She went to almost all the activities. (Our mother?? Going to crafts???) She had 4 or 5 visits from family per week. She was content.
In some ways living with my sister was great for Mom. In other ways the NH suited her better.
Here are some things to consider:
Can she transfer easily from bed to wheelchair to toilet to recliner? (My mother was a two person lift in the NH.)
Did you have a good relationship with her while you were growing up? (The past tends to creep in, with dementia.) How about more recently? This should not be one last chance to earn your mother's love.
Do you have a plan for respite? One person cannot, I repeat CANNOT do 24/7/365 care alone and retain her sanity. Figure it out well before the move.
Have you read any articles or books about dementia? Personally, I think that is essential. Know what to expect. Dementia always gets worse. Always.
How accessible is your house? Are there stairs (inside or outside)? Can you rearrange or remove furniture to accommodate a wheelchair? Will she have good space of her own, in addition to her bedroom?
I think BarbBrooklyn gave excellent advice: Go to California and do the caregiving, ideally for at least two weeks. And as Midkid suggests, check out assisted living near you. Even if you don't move her into one now, you may have to later. Be aware of what is available.
Please let us know how your decision process goes! We care.
Have you thought about the fact that California is a much different climate than Georgia and that she may not like living with so much humidity?
I completely agree with Barbara that before you do anything, you ought to give your sister at least two weeks respite and take care of your mom to see what exactly your brother and sister are dealing with. Your mother's dementia will only get worse and her needs will only increase.
I also agree with everyone who wrote that many old people are just not happy and there isn't anything to be done about it. If you think you will make your mom happy by moving her to Georgia (or you moving to California) you are fooling yourself.
Think long and hard before making a rash decision which sounds good on PAPER. Reality is another matter entirely. At an ALF, you pay THEM to care for your Mom, to entertain her, to feed her, to clean up after her, to change Depends, to shower her, to hand out medications (which in itself can be a part time job!), and to provide social stimulation that you CANNOT.
Best of luck, you will need it.
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