My mother is 83 years old, she has lived alone for decades. She has high blood pressure, high cholesterol and is prone to old-age depression. The past 2 years her memory has started to decline and her conversations are very repetitive. In the past year she had 1 or 2 minor falls and sustained some bruising. In June this year she fell on the coffee table and fractured a rib. 6 weeks later she fell again and fractured her hip, she could not crawl for help and we only found her 12-24 hours later. After a long stay in hospital and rehab, she is finally home with 24 hour care. During rehab, she would not listen on how to manouvre with her hip and walker. Once at home, she would walk without her walker as much as possible and ignored our pleas that she could not do this. She would not go out anywhere because she was embarrassed of her walker, she said she didn’t need a walker, a walking stick would suffice and she would start to socialise again if she has a walking stick, my sibling gave in and purchased a walking stick. She is not happy having careworkers in her home 24/7 and insists she can live on her own if someone comes to check on her twice a day and helps with her medication etc. I am not comfortable with this, as I believe she is no longer able to live alone. My sibling is on the brink of giving in to her request to get rid of the 24 hour care and only have someone look in on her twcie a day. What is the general consensus out there?
I've been in this very similar situation for quite a while.
I will say, if your not poa be very careful what you say to your siblings and mom, because if they know how you feel you could be pushed out of any of not all decision making.
Many people age at home and choose to, they would rather die on the bathroom floor than go into the system. That is what some of us here have had to accept.
What I have done is put my worry about mom out of my mind, as much as possible. I have no power no control, it's me against mom and 3 siblings.
What I have done, was tell my family, what I'm willing to do and not willing to do. If I see that I'm enabling mom to stay home when she definitely should not be alone, I'm walking. Mom has a degenerative spine, if she has another episode where she can't walk , I'm done. I will not watch her in pain again. I will not bring her to doctors in a wheelchair again I will not do physical care. It's been like 6 months since her last episode and physical therapy has been done for over a month, so I'm filling expecting, that it's about time for more decline, soon.
So id advise you to figure out your boundaries now, and stick to them
Of course I agree mom should not be left alone for long periods of time, but it does happen
Partner is 84
We live independently. With stairs. A two flat and old building; he still does more than a few repairs. We are still taking long walks, fostering a dog, cooking, cleaning, gardening, driving, shopping........................SO FAR.
I am a retired RN, so I have seen a lot.
Our children, as the vagaries of life would have it, are crumping before us. Illnesses, and auto immune stuff and debilitating falls (daughter's doctor looked at her hip MRI and said "What happened, you fell off a horse and then the horse fell on YOU?").
So basically, we are on our own with the decision of "How long can you do this".
The the thoughts, now, for both of us is that independent living is a joke when it would cost in our area about 15,000 a month and we are already DOING IT in our own building. ALF isn't something we are ready for. So....................
Here we are. Still. Today.
I took a flier in the street Saturday; balance is an issue, and so are our streets and sidewalks; I can't recover myself on a trip-and-fall. Nothing busted....................THIS TIME. I do look as though the old man beat me.
I am just saying, if something DOES happen, and I make it back home, I will look askance at the one who tells me what I must use and what I must not do and etc. 24/7 care I can't much imagine unless we are talking billionaire status. We are said to have lots of them; haven't seen one on Forum yet. That I know of.
All this to say, back away as much as you are able.
Let us IMAGINE that it ALL GOES SOUTH badly. The truth is that we all die. Is dying at home not as good as doing it in a nursing home? Perhaps better?
More and more (and of course it is MY AGE) I think that it's an option this going out of the home feet first. The nursing homes are to make YOU feel better. Not us. And you won't feel better, because you can read in this very thread someone worrying about her mom's bruises. You will STILL WORRY. Feel responsible. And you AREN'T.
Only you know the fine tuning in this, your own situation. I don't.
Only you can decide just how much to interfere. But you won't be thanked for it, and you may be thanked a lot more for just allowing her to be in her home so long as she is able. She fully understand that the grim reaper will soon be a-knocking.
Just some food for thought from someone who is "there". Be glad I didn't tell you about my partner's stroke two weeks ago!
Now go and do it your own way, best you are able.
Tell your sister that if she gets rid of 24/7 help, you are not her Plan B. She can go that road alone.
Your mom needs to be tested for dementia.
She needs to go to assisted living.
The memory problems , possibly causing her to burn the house down is the problem . Sounds like she shouldn’t be alone. If you lose this debate with your sibling and Mom is alone , I would disable the stove , get rid of candles matches , lighters etc.
My Mom (90+) was one of them. After numerous falls, there was one fall that changed her life forever, it was a fall with a major head trauma. Mom fell in her kitchen. She could no longer function as the head injury accelerated her mild dementia into later stage, plus she kept forgetting she couldn't no longer stand up, so she was placed in a skilled nursing facility as she needed a village to help her.
After what Mom went through, my Dad was quick to sell their home and move into a senior living facility. Oh how he wished my Mom would have agreed to this so that she could have still been with him. He loved it there, especially being around people from his own generation :)
Perhaps you could talk sensibly to her, and tell her that there is a real chance that she will fall and be in serious pain until she is found, possibly die. Does she want to take that chance? What does she think about death, and how would she like it to happen? You may find it easier to accept her choice if you are confident that she is competent to understand the risks and it is genuinely her choice, no matter how it turns out.
Perhaps a good idea is to write her a (legible) letter after the conversation, saying that you are sorry about her choice (if that is true), and that she can change her mind at any time she wishes. If she would like to try out a facility, you can arrange respite for a couple of weeks so that she has a real understanding of the options. I am 77 at present, and I certainly wouldn’t want either of my daughters to decide how I live my own life - now or in the foreseeable future.
After a long period of contemplation and reading this forum, I have come around to agreeing with Margaret, Alva, Elizabeth and others. My mom’s mind is intact and she has the right to make her own decisions. It’s me who struggles with the idea of her dying alone after hours in pain on the floor after a fall. Or me who fears finding her that way, either alive and injured or dead.
She actively prefers this to the idea of moving to AL or a facility of any kind or having live-in help. A few really do die quickly and at least relatively quickly in their own homes or soon after a fall. This is actually a best case scenario. It just took me a long while to realize it. Of course, most falls don’t lead to quick death.
What I now fear more — and I think she does too — is a long period of increased helplessness. I am pretty sure if she broke a hip and needed rehab and physical therapy, she would hate it and be uncooperative, so would wind up in a wheelchair and then could not live alone.
In the hospice facility, he ended up getting aspiration pneumonia and passing away a few days later. It was so sad and stressful but I believe in the end a mercy because he wasn’t going to get better.
My mom and I both had POA for my dad. Had it been entirely up to me I would have put him in a memory care place sooner because it was hell on my mom and hard for me too. But she was determined to keep him at home as long as possible and I tried to respect her wishes.
in a nutshell, twice a day visits should be ok……recommend getting granny cams though
After my dad died 12 years ago, the first thing she did was add me to her bank account. Paying her bills frustrates her, so I took that over about 6 months ago.
So the point of all that is, reach out and find someone to help you. It was amazing to me how many services were out there.
accidents move her into a more serious level. time for some hard decisions
Wonder if care facilities allow her to stay a night or two
my friends mother was against it but once moved in settled in very well
other alternatives
maybe a camera in her home so you can check up on her ? Emergency buttons
altho those other alternatives look like patching up a problem rather than fixing it ( sometimes you need to tho)
depending on the personality of the person
good luck
Maybe a slow transition
Home health care workers often require minimum shifts of 3 or 4 hours per shift. She may not need that much time. If there is a community college nursing program or a nursing school in her area, maybe a student could be hired for shorter shifts. I think I would investigate that for myself if I were in her position.
I she is or becomes diagnosed with cognitive declone, these options may change
If she is budget conscious you can add up the monthly cost of running her own home with outside help and of a facility.
If family is providing the outside help then stress and fatigue are large factors.
This is the end of her journey and a large part of yours. I wish you all joy through this transition.
So many of us here have heard these words.
With 2x a day check-ins, what if she fell right after the person left? She could lay on floor for 12 hrs or more before the next check in.
Tell her to prove her ability. Every single step indoors and out must be with a walker. Get Dr to order in home physical and occupational therapy to build strength and balance and she must agree to participate when therapist is there and on days therapist doesn't come.
You may find she really gets stronger and could cut some caretaker hrs back. If she wants to continue without putting forth any effort, 24 hr care is needed.
You might ask her if she knows about a good nursing home in the event the next fall renders her bed bound for the rest of her life. You'd refer she has caretaker help and remain at home, but her cooperation is needed
How about senior daycare?
I suspect that the 24x7caregivers is driving her bonkers, especially after all the quiet and independence she had. My Mom said the caregivers were a waste of time because all they did was watch over her. My brother pointed out that they had caught her occasionally before she fell, however she just didn’t like being watched.
Jemfleming: I think you are spot-on with your comments. My mom is 87, lives alone, and we have 3 internal remotely accessed PTZ cameras (living room/dining room, bedroom and pointing in to her bathroom/kitchen...can't see her toilet or inside her shower, but can see if she is IN the bathroom), safety bars for her to go up the two stairs to her house, two 4-wheel walkers for her to use (one for in her house, and one in the garage for when she goes for a walk). We did pay to convert her tub to a shower with several grab bars inside and out, and a chair for her to sit on in the shower. It's a 1900 house, so believe me, that was a good safety upgrade...pink tub and all. LOL
Additionally, she has an emergency pendant she wears that has 2 way communication on it if she falls, both in the house and a miles away (this has been tested).
I installed grab bars for her to get in and out of her bed, and I call her once a day to see how she's doing.
We're not having anyone come in to check on her yet, because I'm not sure how to find a trustworthy person, and hiring a company is out, as they want a commitment of at least 4 hours a day a couple of times a week and she can't afford that...again we can't pay for it for her. I'm often visiting her every other weekend (Friday night to Sunday afternoon), as I live 2.5 hours away with my husband. (I'm her only child). During those visits I help her get rid of things she doesn't need any more...hauling unneeded items from upstairs down to the first floor where she stays now (master bedroom is downstairs) so we can get rid of things...I've cleaned out 2 of the 3 bedrooms upstairs, in case I can ever have someone move in and help her as part of rent. I also take her to Costco, and assist with odd jobs around the house.
We do not want to move to her town, and moving her to our house is a no go...not only because I flat don't want her living with us, but because all her doctors are in her town and shockingly she can actually get in to see them with just a few days notice, vs MONTHS notice in the town where I am. Plus, she knows the area where she lives, and I've talked her in to walking every day she can get out, to stay mobile.
She has some age related memory loss, maybe a little Altzheimers (not sure), but doesn't seem to have dementia...I went through it with my dad, who definitely had dementia....my mom and dad divorced over 50 years ago, and he was remarried.
You have to take each person's abilities and situation under consideration. Staying at home is ALWAYS less expensive, and you can't really force someone to move. My mom doesn't have enough equity in her house, or enough in her savings to get her into assisted living....in her town there are no facilities with Medicaid beds, just assisted living facilities where you pay until you can't afford it any more and they kick you out. In my town there ARE adult family homes where you CAN transition to Medicaid after self-pay for 2-3 years...but she doesn't even have enough money set aside (or in equity) to self pay for even 1 year. We can't pay for it for her and impact our retirement savings. We have no kids and have been diligent and responsible in saving for our own retirement...she has never been one to save....too interested in buying a bunch of crap (mostly craft things) she never used and never needed (much of the items I got rid of were brand new from years before), never thinking of her future needs. I guess she always thought "I" was her long term plan....
I'm sure at some point I'll HAVE to live with her, but I'm putting it off as long as I can, as it will disrupt our marriage when I do that, and I have never felt close to her (she's always been a narcissist). It will NOT be a good situation for any of us (her, me or my husband).
Regarding 'trustworthy' there are never guarantees, be careful, but know that risks are unavoidable. My teenage daughters were babysitting for neighbors in their houses, and the risk of pilferage (for that matter of injury to children) were the same as a teenage 'pop in' if your mother lives in a reasonable neighborhood.