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82 mother moved into our home, from hers, after falling back to back, breaking a few bones and spending a several weeks in a rehab center. Staff says she shouldn’t live by herself anymore, due to cognitive decline. She is getting to be a lot of work to properly care for her and I’m not sure how long this can go on. I help some with meals and housework, wife deals with getting her dressed, showers, meds etc. We both still work, as well. We have someone come over during the day. Advice?Advice?

I'll start by saying that my mom lived with us for 2 1/2 years before her passing at age 96. While difficult at times, I don't regret having taken her in. I worked at home and did have an aide come to provide personal care, some light housekeeping, mobility exercises and activities. What made it easier is that my mom was the epitome of "a sweet little old lady" who never wanted to be a bother. I'm happy that I was able to make this work.

Only you can decide if your mom living with you can work. You can look for resources such as Meals on Wheels, Adult Day Care, and an aide/companion. Other things to consider is are there personality issues, how much she can do for herself, how mobile is she or is she needing assistance at night. Are you trying to do too much? My mom liked staying in her pajamas, so being homebound, why not (and one less time to change) Are there nearby famiy members who can help or give you a break...or is there a place that provides respite care?

Of course the other option is to find a facility for her to live in. I wondered what I would do if my mother's care became too much. After a hospitalization she went to rehab. It wasn't a good experience, I signed her out early (and got Visiting Nurse services at home) and knew I wanted to avoid this option. They were short staffed and used contract help and that seems to be common.

Hope you can find arrangements that work for everyone!
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Reply to gnyg58
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”Putting mom/dad/etc. in a home “to die” as our parents made us promise not do is a wrong-headed and certainly outmoded prejudice. The best “placement “ is where needs can be best met with resources available. It is not shameful to take one route or another. It is different for each family and individual. In seven of the eight family members/friends who I helped with care, there came a point earlier than expected where it simply not safe to care tor them at home (mine or theirs). Even when someone quit working to care for them, that person had to go to the bathroom and stuff happened in that short period of time. If you have not already been conned into that promise , don’t promise; most of the time you won’t be able to keep that promise. If you have made the promise, a discussion is in order. I am very lucky; my 97 y/o dad is still at home, but it is closing in on a time I won’t safely be able to meet his needs. I reassured him that I would always be involved in his care and love him, no matter where he lived and he was receptive to it. God bless you all. It is a hard road.
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Given her age, she probably qualifies for skilled nursing facility that will take Medicare.
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ConstanceS Jan 15, 2025
Medicare does not pay for skilled nursing care on a long-term basis, it is limited and probably hospital has already discharged her because Medicare wouldn't pay any longer. You have to pay privately for that type of nursing home unless you qualify for Medicaid due to not having any money/assets left.
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Tfolger: Perhaps she requires managed care facility living.
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Reply to Llamalover47
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Move her into assisted living. Believe me, these kinds of situations where a needy parent or in-law gets moved in go very bad very fast.

While your mother is still able to acclimate to a new environment move her into one. Find an AL facility.
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Reply to BurntCaregiver
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Tfolger Jan 18, 2025
Yes I’m thinking she would benefit from being around others her age, as well as full time assistance. My wife is getting overwhelmed/frustrated.
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I live with my soon to be 82 mother. In my opinion, she shouldn't live by herself. I do not work; thus, I'm taking care of mother 24/7 365. You are already fortunate to have someone coming over. I don't have that. It's me and my husband (he still works). I am beginning to find help; however, the help I'm needing isn't available. My husband and I see subtle signs of decline. She still wants to do activities; I make adaptations to accommodate her and enjoy the moments. This is a very difficult journey, there are no right or wrong ways to travel. Do what you believe is the best for your family.
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BurntCaregiver Jan 19, 2025
@Marine301

As it so often happens with a woman who does not work outside the home. People take this to believe that she is available for everyone's child and elder caregiving needs.

You don't have to do it all single-handedly. If your mother likes to be involved in activities, put her in adult daycare a few days a week. You don't have to do it all alone.
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I don't know your whole situation but... the next time she is in the hospital DO NOT LET HER COME BACK TO YOUR HOME! She will be assigned a case worker and you can usually get them into an assisted living situation easier that way. That is how I got my daddy into his. I told him it was a hospital and that when the doctor released him he could come back home.
If your mom is open to the idea of being in an assisted living situation DO IT ASAP!
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Tfolger Jan 18, 2025
Yes I’m thinking she would benefit from being around others her age, as well as full time assistance. My wife is getting overwhelmed/frustrated.
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I would have advised you while she was already in rehab to sign her for long term care at the facility. If she has medicaid it would pay for her stay. Sounds like she needs 24 hrs care. So does my mom, who thinks that she doesn't and refuses to go to a facility because she thinks she will lose all of her income, life insurance and her independence and acts like the nursing home is a prison. We let her live with us for a few months and it just did not work out. I was exhausted, my health was declining and stressed to the limit and so was my family. Now she is living in a motel room waiting on a apartment to become move-in ready and has been for 2 months paying 459.00 week. I am always afraid she is going to fall in the motel being by herself, and I don't even know if she can live alone. Because her legs are limited to walking, she is in a wheelchair. She can bearly stand up and get in-out of her chair or bed. She is always crying, and stressed about money and wanting to come back and live with me. This is why you need to make other arrangements, because this is what happens when you don't. I hope you luck with your decisions.
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Reply to Butterfly62
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I have moved in with my mother who has vascular dementia. I gave up work and my husband works. I'm in UK we get given £400 a month to help towards care and she goes to a day centre once a week.
I do find it difficult, but not every day. I would not even dream of putting her into a care home, I have worked in many and I have seen horrendous attitudes towards the elderly.

You have done the right thing and you should be proud of yourself.

I do get woken up alot, but they have just put her on to a low dose of melatonin. hoping it will help. So I sleep when she sleeps. no matter what time of day.

It's a very American and British thing to do. is to put parents into care homes. Other countries this isn't a thing. families come together to help look after there aging parents

Ask family members to help out, if possible, I do have a carer who comes in once a week so I can go out and breathe.

Don't feel guilty about your bad days, or your patience was not great. You remind yourself that she is at home.loved and cared for by her own family not strangers.

Find time for yourself no matter how small that time is. Find what relaxes your mum. Mu mother loves old musicals so we watch alot of those and cooking shows. We go out for long walks in parks in her wheelchair and cheap places for lunch. This help both of us get out of the house and stress also boredom of staying home.

But please remember what you are doing is honourable and you won't regret it when you look back on your life and your mother has gone

I wish you love

Angela in Coventry UK
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HappyGarden Jan 14, 2025
You are fortunate that you have a situation as a caregiver that works for both you and your mom. I wish you wouldn’t use your own experience to judge others who cannot pull that off because of higher support needs, a demanding life stage, and financial limitations. It’s not kind to steer someone away from the support they need and attach stigma to care homes when they have communicated that the current at-home situation is *not* working.
I’m in the US and I can’t quit my job. I’m helping support my own family, raise my young kids, and fund my own retirement and healthcare. I’m sure your situation isn’t easy by any means, but it’s a luxury to be able to quit and manage a loved one’s care and not an option for many of us for many reasons. I just felt I needed to push back against the stigma of residential care here because fear of judgement and a negative view of residential facilities keeps people from accessing the support that both they and their loved ones need. My mother is doing very well in her assisted living facility and I still spend a lot of time and energy supporting her. She loves the staff and she is clean and well cared for in a private room.
To the OP, I recommend taking some tours of assisted living facilities or other facilities depending on what is possible financially and with her support needs.
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Yikes! If you had asked whether you should take her into your home before you did it most of us would have said no. She will need 24 hour care. if not now, soon. One of you will likely have to quit your job or pay the very high cost of in home care help to be with her. Also if she doesn’t sleep through the night, expect to be awake a lot of nights worrying about her or getting up to help her. Your patience will be tried. I advise you to start planning on placing her in a good facility, but if that is not going to be an option for you then I advise you to build your reserves of faith, strength and patience.
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Reply to mstrbill
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I advise you not to let your elderly mother move in.

Now that you have learned how much work it is to help care for her, you definitely need to hire home care aides to help! Use mom's money, not yours.

You say you have someone who comes over during the day. Why are you and your wife getting mom showered, dressed, and making her meals? The person who comes to the house when you are gone should be doing ALL of that! If they are not, get someone else! You can also hire additional help to tend to her needs even when you are home. It can feel a little awkward having an extra person in your home, but if you find the right person, and set clear boundaries (let them know they are there to do a job, not to hang out with you!) they may be able to alleviate some of your stress. It might be worth hiring a housecleaner to come once a week, or twice a month, just to take something off your plate and let you spend more quality time with mom and tend to her needs.

Where was your mother living prior? She may not be able to go "home" again, ever. It is time to look into assisted living, if she qualifies. Her needs may be beyond what assisted living can provide, and require a skilled nursing home, or memory care, if that is appropriate for her.

You may be able to accommodate her comfortably in your home for a little while, but use this time, right now, to set up tours of at least 3 care facilities. Go on your own, without mom, first. You don't want to scare her by visiting one that looks bad. They will have an admissions director who will be happy to meet with you, answer questions, and provide a tour. Once you find one you like, then you can take mom, if you feel the need for her opinion. Almost Everyone says they don't want to go to a nursing home, they want to stay in their own home.
At some point, you just need to make the best decision for her.
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Reply to CaringWifeAZ
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Not easy but as you say needs to be done .. calmly tell her that it’s time to look at a proper care plan for her
- you are finding it hard to manage work and looking after her properly
you have made some enquiries and found a really nice place
that has someone able to watch over her and look after her day and night

nothing will change in sense you will visit her as often ( to settle her in)
but she will be looked after properly by trained medical staff ?

( maybe you can explore a couple and tell her when you’ve found somewhere - good luck
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Reply to Jenny10
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Tell Mom that you have realized both you and your wife cannot work full time and do her full caregiving. You and your wife are not medical professionals with training. Her care requires more than you can do yourselves, especially working full time. Of course neither of you can quit your jobs, either...not an option.

Emphasize you want her to have proper, professional staff handling her care needs 24/7. You want her to be where there are medical staff on site, in case anything happens. You have realized this and need to make proper arrangements for her. Remind her you only want the best for her, and you now realize that you seriously can't provide it. Even a daily aide visit is not enough. It sounds pretty hard for your wife, bearing the brunt of her MIL's care while working full time.

Hopefully Mom doesn't have that old fashioned idea of a "home" being an asylum, or possible prison cell. You need to get the ball rolling, the longer she stays with you, it will be harder to move her out. You will end up trapped in caregiving for years and the stress will be hard to tolerate. Hiring 24/7 caregivers for Mom in her house will be way too expensive.

Good luck!
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Reply to Dawn88
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Tell your wife this can not go on and look for a facility with the appropriate level of care that MIL needs .
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pamzimmrrt Jan 11, 2025
I think its HIS mom,, not his MIL
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I would place Mom in a nice Assisted Living. There will be a Nurse and aides 24/7. I was retired when I had Moms care and I can't imagine holding down a job and then coming home to care for someone. In an AL Mom will have socialization and activities. Yes, you will still have some responsibilities but it will be as a sonnot as her caregiver. Moms AL took charge of her prescriptions. I made sure the Depends and toilet paper were in stock. Her laundry can be done by them.

You sell her home andbyse the proceeds for her care.
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Reply to JoAnn29
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You have the horse kind of after the cart.
You already took mom into your home.
Now is the time to consider if this can be done, if this works for all involved, or not.
If it does, you will learn as you go, all the while knowing to expect the unexpected with aging changes and increasing needs.
At present you are caring for your mother in home.
It is for you all to discuss together if this works, or does not.
If it does not, then placement in-facility is really the only option.
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Reply to AlvaDeer
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I would like to echo what several people here have said already. It takes a TEAM of people to manage a very sick person‘s care, and not just an individual. Also, the caregivers in a facility or those who come to your home have been trained how to do these things, and there is a reason they had to go through training. It is not easy and the care takes skill.

If I had it to do over again, I would have put my mother and my sister in a care facility very close to my home so that my own obligation would have been visits and room decoration and doing the things that would make the situation a happy one. And other people would have managed medications and general healthcare.

I would also like to say that, even if your mother is in a facility, there will still be plenty for you to do. Most likely you will still be the ones who take her to all of her outside doctor appointments. I was surprised at how little medical care was actually offered at the AL my family members were in. There were still many outside obligations. And unless your loved one is mentally very sharp, going to the doctor alone on the provided van won’t cut it.

We used a Christian healthcare service that was in the area to handle many general things for my sister. I chose to put my sister in in a assisted living facility, and then instead of paying for the care levels there, I had an outside agency go to the AL and handle showers, general cleanup, laundry, and changing linens. It was much cheaper to do it that way; so just AL rent plus outside care. Perhaps the outside care people would be enough at this time if you have them come to your home.

It was helpful for me to sit down and make a physical list of the things that had to be done and then go from there. I was feeling so overwhelmed that it all felt totally out of control; it helped me a lot to really define the situation and develop steps to attack the problem. If I had to use one word to describe my feelings about my family members’ care, it would be “overwhelmed”. I truly did not know how to do any of this, didn’t know where to start and had no one to even ask questions. This forum was a godsend for me. I didn’t really post very much, but was able to search the posts over the last years and got lots of good guidance from other people who had already walked this path.
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JoAnn29 Jan 8, 2025
" I was surprised at how little medical care was actually offered"

They aren't suppose to provide medical care. They do exactly what their name says, assist.
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She, for everyone's well-being needs to be placed in AL with a step up program to move her to MC when it is time. She needs 24/7 care by a team of workers, there is no way as she progresses that you and your wife can care for her and have any life whatsoever.

Place her and become her son once again, not her caregiver.

She will be around ppl her own age and have activities to keep her busy if she so chooses.

One does not have to sit in the row seat to care for a loved one.

Sending support your way.
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Reply to MeDolly
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The other option from what has been suggested, hire help. Use your mother’s funds to hire daily caregivers. Private care can be found but you need to find it. Get list from local hospice agencies or word of mouth. The closer the better. Or agency. End game will probably be facility care. In my area, it works to keep her at home with caregivers 7 days but not 24/7. It’s easier on you. Don’t let the expectation be established that it’s only you for help. Hire a caregiver some hours every day so this is the new normal. Good luck. It’s hard. It will consume your life if you let it. Don’t. Engage resources and don’t count on family to help.
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Reply to Beethoven13
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Yes, either Assisted Living of Memory Care (depending on how much she has declined cognitively. Do you have her POA?
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Tfolger Jan 7, 2025
Yes
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It will go on until she dies or you do. I’m sure you and your wife wanted to help her, and that’s admirable. Unfortunately, home care of someone with such serious issues is usually not sustainable.

Please admit to yourselves that mom needs to be in professional 24/7 care at a facility where they can care for her in the way she deserves. Start looking now before the next health problem with her occurs. Then you’ll be prepared for that step.

I am sorry that you and your wife are going through this.
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