My mother has vascular dementia and my father a brain injury. My parents live in independent living with cargegivers coming into their home between 4 and 8 hours per day. I live 4 hours away. My parents will not move from their community. My mother has alzheimers. My father suffered a traumatic brain injury 3 years ago. Both have dementia, just very different. My mother is pleasant and loves to socailize. She has high anxiety. She needs help with bathing, dressing, personal grooming, and can not perform household tasks. Her memory is bad. My father is paranoid, very private and protective, and thinks he is fine. He does not need assistance with personal care or with other activities. His memory, judgement, and basic mental ability is getting worse. The caregivers we have are for my mother. My father hates them and thinks all they do is prepare meals. He thinks they have been "training" my mother to bathe herself, dress herself, etc and should be done by now. He thinks she does not need their help. He not only does not comprehend his true situation, he also does not comprehend my mother's true condition. He has been told to run his errands while caregivers are there yet he feels he must keep an eye on them and then drags my mother out after the caregivers leave. he leaves her in the car while he shops, etc. he probably should not be driving but if I stop that he will not use the services available and will walk to the store with her (has done in the past) - she can not make that walk anymore. He is so paranoid that he thinks I am stealing from him, conspiring with doctors against him, and constantly tells my mother that. He tells her over and over how all their problems are my fault and that he wishes i would move further away. He goes to the bank daily to make sure I am not pilfering their money, and is still sure I am. All his pestering of my mother regarding his paranoid thoughts are exhausting her and upset her so much she starts crying. She is going downhill. However, she depends on him and being away from him is very hard on her and has resulted in her dementia worsening in the past ( during his rehab, and during her own following hospital stay). I am currently planning on putting my mother in assisted living because she needs more care and supervision and to get away from his constant complaining. There is no way I am getting more caregivers hours in their home. I know he will not agree and he will push me completely out as being the cause of all their problems. I feel like I am just rambling and jumping around and not explaining very well, but I am so very distraught over what I feel I have to do, and what I think may result from it. So - I think I need to separate them due to my father's mental state and unability to comprehend and address my mother's dementia. I know my mother will not handle separation well and fear her dementia will progress rapidly due to it. I will probably hurt them both trying to help them, but leaving them as is is not working either. What do I do????
You and I and many others are in the same impossible place: elders are not quite legally incompetent, can't force them to do what's best, but for all practical purposes they are an inch away from disaster.
As tough as this sounds, bad stuff is going to happen and probably happen soon. My mom struggles around the house, has probably fallen since I left today, but she refuses any help much less assited living. She will end up in ER, then to rehab and then to skilled nursing care. Dad will then go to memory care, hopefully in the same facilty. And this is the way it will go for your folks.
After years of trying to perform miracles, worry and aggravation I accept this reality now. We do as much as we can, as much as elders will allow, and that's all we can do. I might have to drive back down next week or next year. Who knows....
Is your dad followed by a geriatric psychiatrist, who might be able to medicate the paranoia? If not, I would get him evaluated for psychiatric meds, either by taking him to a geriatric psychiatrist, or by requesting that he be "Baker Acted"--a 72 hour involuntary psychiatric inpatient evaluation. Talk to his PCP about how to best get him evaluated for meds. There are now Senior Behavioral inpatient facilities that specialize in this sort of evaluation.
One thing you need to remember. This is NOT YOUR FAULT, even though your dad says it is. Your mother has a fatal disease called dementia. She needs and deserves 24/7 care and a restful environment, not the ravings and "ministrations" of your unhinged father. What she "wants" right now? Are you really thinking that the dementia patient should be driving the bus? If her dementia progresses when separated from Dad, it's because her dementia is progressing. Not because of any of the many difficult choices you are going to have to make.
I watched this play out for 10 years; again and again, EMS would show up and offer to take uncle in for a psych eval; I have very polite relatives who always said "no, thank you; we're managing". their dad survived her by three years, in memory care and then a VA facility. Once on the proper meds, he was somewhat manageable for the staff.
Look, I'm just passing on second hand experience. Folks who've done this themselves will have better advice.
The other thing that has worked some for me is to write my father a letter that was very loving and factual. He is an intelligent man but because of the dementia and paranoia which was there even before, he can't remember my mother has Alzheimer's and that he has a dementia disease. I explained the history to him and talked mostly about the best way to help mom. I attached a half page list for both of their illnesses of the diseases and symptoms for the stages they are in as well as mentioned the doctor's diagnosis. This has really helped because of his logical brain. He realized the truth and understood more the situation. I don't know if this would help you at all but it is one of the things that has helped me.
She is now used to her environment and knows it is home - she still does not recognize many family members and needs caregivers for daily living. She is enjoyable to be around when she is in a good mood. My father can be very gentle and loving with her, but is not equipped to be a caregiver. He just goes off sometimes with his paranoia and denial of their situation.
There is no good answer to my question so I apologize for even asking it. There is a logical answer - separate them. If I did not love my parents and want the best for them that is what I would do. Somehow I have to find a way to balance the logic with the compassionate. I also have to put up with my 4 siblings who know something must be done but won't do anything - if my decision turns out to have bad results they will blame me as well. There is no good answer here except do my best and remain strong.
Do you have her Healthcare POA and Durable POA? I'd get the input from professionals, such as her doctor and other professionals who do assessments and move her to where she needs to be. Your concern about her separation might be valid, but, her welfare must be taken care of. I'd keep in mind that with dementia, sometimes, it's not possible for the patient to be happy and content, regardless of where they live. If she's anxious or depressed, discuss medication with her doctor.
If you don't have the proper paperwork to act on her behalf or you fear your dad will forbid it, I'd get legal advice from an attorney, so you know your options. I wouldn't hesitate to go that route if necessary.
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