Have you found with your LO that mentation fluctuates. That at some point you thought they were maybe better?
It seems like there is a plateau and then that drops, another plateau, and that drops too. Is that common or specific to a given stage?
Has been a real head scratcher.
My Husband was "diagnosed" with Alzheimer's but later I was thinking that he also had Vascular Dementia. That typically will have steep declines. I said Alzheimer's is like walking down a ramp, slow, steady decline while Vascular is more like stairs with landings between the declines where things will hold steady for a while. The two combined was like a ramp with a few stairs thrown in every few paces. I never got an "actual" diagnosis because by the time I learned enough he was past the point where it would matter, no medication would help and knowing would not change the outcome and there was no reason to subject him to tests that would not help.
What does help is a set schedule, being consistent with getting up in the morning, shower routine, breakfast and everything else that goes on.
If your LO is a candidate for Adult Day Care take advantage of that. Socialization is good and if this is part of the routine even better. And it helps you get a break. And decide at what point you will consider a Memory Care facility. Get all the papers you will need in order POA for health, finance, DNR or a better document is a POLST. there is a document you can get on line called Five Wishes that will help a lot with planning.
You never know who will wake up tomorrow, loving gentle g'ma or satan on steroids. It is not easy and when we come to terms with the reality that there is no reality for them it helps us cope better.
Hugs!