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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
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Hi Mary, and welcome! As far as finding an outlet for your concerns and frustrations, you've found it! This forum is full of wonderful caring supportive people all sharing (more or less) the same boat with you. If you're looking for a more physically interactive group where you'd go to meetings and connect with other people in your area coping with similar circumstances I'd suggest contacting your local Council on Aging. You say your husband was diagnosed with "a form of Parkinson's"....would I be correct in assuming it is a neurological disorder with Parkinson symptoms, and NOT specifically PD? My MIL has Lewy Body Dementia with Parkinsonism.
They are calling it atypical Parkinson disease. he is just beginning to also show some signs of dementia. We have just moved back into area and are working on our home to make it more handicapped accessible so that adds to the stress.
First, I'm so sorry you and your husband are facing this. Know that you can come here any time. Atypical Parkinsonism was my MIL's initial diagnosis as well. It's an umbrella term for a number of more specific neurological disorders, all of which are difficult to diagnose because symptoms tend to be similar among them and overlap each other. I strongly recommend doing as much research as you can; the more you can learn the better. I also highly recommend starting a journal...keeping a record of how he's doing from day to day...eg. any significant changes in mood, appetite, physical abilities, cognitive function, etc. It will be tremendously helpful in moving toward a more specific diagnosis...and you might find it to be a great cathartic release for you as well. Here's a list of the more common forms of AP. Try "Google"-ing" them and see if any of your husband's symptoms "fit" anywhere....it probably won't provide any real concrete answers but it's a good place to start:
Progressive Supranuclear Palsy (PSP) Multiple System Atrophy (MSA) Lewy Body Dementia (LBD) Vascular Parkinsonism Cortico-basal ganglionic degeneration (CBD)
Again, so sorry you're going through this. I wish you well. ((Hugs))
Personally, I prefer the on-line community.....I can be there whenever I want and not when I don't; don't have to dress and go out to meetings; don't have to worry that someone you meet at a meeting will start popping in on you; and can be rather anonymous!
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
You say your husband was diagnosed with "a form of Parkinson's"....would I be correct in assuming it is a neurological disorder with Parkinson symptoms, and NOT specifically PD? My MIL has Lewy Body Dementia with Parkinsonism.
Atypical Parkinsonism was my MIL's initial diagnosis as well. It's an umbrella term for a number of more specific neurological disorders, all of which are difficult to diagnose because symptoms tend to be similar among them and overlap each other. I strongly recommend doing as much research as you can; the more you can learn the better. I also highly recommend starting a journal...keeping a record of how he's doing from day to day...eg. any significant changes in mood, appetite, physical abilities, cognitive function, etc. It will be tremendously helpful in moving toward a more specific diagnosis...and you might find it to be a great cathartic release for you as well. Here's a list of the more common forms of AP. Try "Google"-ing" them and see if any of your husband's symptoms "fit" anywhere....it probably won't provide any real concrete answers but it's a good place to start:
Progressive Supranuclear Palsy (PSP)
Multiple System Atrophy (MSA)
Lewy Body Dementia (LBD)
Vascular Parkinsonism
Cortico-basal ganglionic degeneration (CBD)
Again, so sorry you're going through this. I wish you well. ((Hugs))