My mother, who has dementia, has in home aides a couple of hours a day. They are supposed to help her bathe, take medication, do light housekeeping, and drive her to her many social activities. (She has a LTC policy that pays for this.) Unfortunately, the home care aides do what she tells them to do , and not what I have told them to do, which means my mother seldom gets a bath, and that she forgets to take her pills without a reminder. I want her to move to assisted living, and I put deposits on two different facilities. Her doctor says she MUST move to assisted living or get 24 hour a day in home care (based on recent cognitive testing). She laughs in his face! I am thinking of starting the legal process to get a guardianship, but I have no support from my sister who says our mother is happy (living in squalor -- did I say she refuses to have her house cleaned?). Her friends are calling us with concerns. She is showing up to bridge in soiled clothes with holes and serving moldy food to guests. She put back in the refrigerator old food an aide had thrown in the garbage. My mother says if we go the legal route she will never speak to us. Advice please!
If you have a Durable Power of Attorney you can do this. If not you may need guardianship. Your doctor can back you up. If she never speaks to you - well, that will last about a day - but just roll with it.
Most elders have no idea how nice most modern assisted living facilities are. Yes, there are bad ones, but, in most states, they have improved immensely.Many are lovely and offer compassionate care. The same is true for many nursing homes. Both types of facilities often offer memory care.
I feel that this is a case where you have to override your mother's wishes because her brain will not allow her to think clearly. She needs your help. It's very hard, I know. We hate having our parents so upset with us. You'll need to be prepared for her to be nasty to you even after you move her. Just let it go. Eventually, she will likely get so that she enjoys herself, especially since you indicate that she is social. This could be the best thing that every happened to her, yet she may not admit it to you. Bite the bullet anyway and do what must be done.
Good luck to you with this. It's tough. Many of us know this.
Carol
Yes, you feel guilty, but the truth is, your mother is not your mom any more - you need to be her mom now - as hard as that is, it is for her own safety. She is incompetent and doesn't know it. Wouldn't a memory care unit be a lot less expensive than 24/7 aides? - and the upkeep and expense of her home, bills, etc (the stress of which is on you, not her) would be eliminated. Eventually you will end up cleaning out the house and selling it anyway. And you can use the money from the home sale to pay for her progressive needs for more and more care.
Our mother had many of the same behaviors, rotten food, filthy clothes, not bathing, forgetting to eat, stubborn, mean etc. Physically she was healthy, but unable to function in independent living. She couldn't be trusted to take medication, she wrote little notes all over the apt, then wrote notes directly on the refrigerator. My sister fought me on moving her for three years from IL (for 5 years previous to IL, getting her out of her house - where she refused to let anyone in except us - so we had it all). as she went further and further downhill mentally. Finally, the doctor agreed to document she couldn't live in IL with her level of dementia. IL then said we had to move her (which removed some of our guilt as it was a "higher authority" decision). The good thing is - you already have that from your mother's doctor, you just need to make it legal with the courts.
Of course Mom didn't want to move so we never told her the plans. Sis took her home for 3 days while the rest of us moved her to her new home. We gave her a tranquilizer, sat her down and informed her she no longer lived in IL. Then took her to AL and left her with the people who have dealt with these situations many times. Yes, we felt guilty, but at this point Mom could not make rational decisions and we knew she would be safer there. A plus over caregivers (some are good, others just babysitters) is AL has company of others her age, people to eat with and entertainment and professional staff there 24/7.
Even in AL, Mom struggled and 9 months later ended up in NH where she lived 5 months before passing in March. When the downhill mental slide begins, it is pretty fast but at least she had good care by people better able to deal with her problems than me (70 & sis 78)
Its been 9 months since Mom passed and I am still sad but know she is in a better place, and we did the best we could for her, as long as we could. Sad of the way things went for her because we waited too long to move her. We were so often frustrated and angry with her for not cooperating when we should have known it was not her fault, it was ours for trying to reason with a person who was no longer rational and not able to be there all the time.
I wish you luck. Try not to feel guilty, just tell yourself that you are doing what is best for her, and the situation is just like a child who resents a parent telling them what to do, realize this is the point in life when roles switch.
What choice is there?
You have to bit the bullet and do what is necessary.
I was in a similar situation. I did force my mother into the AL, it was awful, and then she began to receive the correct medications in the correct dosages. And life was good. That was 2.5 years ago.
Today it is all just a bad memory. I visit my mom and she knows who I am and we play cards.
Even if your mom won't speak to you, is that worse than what is happening now??? Are you having great conversations with your mom?
Do what is the best for her and let the chips fall where they may.
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