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Tonight, my dad is once again wanting to go to the hospital and he just got out and is doing fine. He called me and said his stomach is killing him. I know that he has eaten some things he should not have. Long story short, the nurse said he has been fine all day. He said he wanted me to approve for him to go. I told him i was leaving it up to him and he said no its up to you and I said no, it is not. Then he said if he dies, its on me. I know there are probably others who have heard these words and I know some is due to dementia. How do you cope with this?? Lately it has been a crisis every week!

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If he dies, now or when it happens as it will for us all, it’s because it is his time to leave this earth. It’s never going to be “on you” Please cope by having the firm knowledge that as a mere human, you don’t control any of this. I wish you peace
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Reply to Daughterof1930
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Trust the nurse.

It's attention-seeking behavior. Remember the story about the boy who cried "wolf".

It will be on him.

Everything about dementia is hard. His brain is broken so he can't control his behavior and neither can you. The only thing that can change is you not reacting to his every drama.

There's no fix for this. Trust the nurse's opinion to guide your decisions. This is when you throw up your hands and say "It is what it is".
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faithfulbeauty Dec 2, 2024
@Geaton777,
He has also started calling me during my work hours. He never did this before. I know he gets the days and times confused.
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Faithfulbeauty, for your mental health, you really have to pull away from dad, I know your trying to do the best you can do, but what you are doing to yourself just isn't fair to you.

Visit your dad once a week, if you must, let the people get paid to handle dad, do there job.

Detach your feelings, pretend in your head your dad is your uncle. I am so different from my family, I sometimes pretend I must of been switched at birth.

Read up on codependency, read Melody Beattys book, Codependency No More. It will teach you to take better care of yourself.

I'm so sorry you had to hear those words.
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faithfulbeauty Dec 3, 2024
@Anxietynancy,
It has really affected my mental health. I often have trouble concentrating. I know that I have to let this go because if not, I will also need care.
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faithful - I'm going to add something I want you to think about.

Your dad is getting something out of this game, but so are you.

You have the power to stop this game.

What are you are getting out of playing this game? You are not helpless here.
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faithfulbeauty Dec 4, 2024
@golden23,
I'm not getting anything out of it but I see your point. I'm just so use to letting him control me. I know I can and need to put a stop to it because it is affecting me mentally. But this has gone on since I was a child. I know that I'm an adult now but it just part of being brought up the way I was.
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The “ It will be on you “.

Loooooong before my mother got dementia she said these words to me as a child , threatening to jump out a second story window , or to take a handful of pills . Making me cry and beg that she wouldn’t .

Then one day when I was home for the summer from college , she threatened again with a handful of pills.
I knew she wouldn’t take them , and quite frankly I finally realized that even if she did, that it would NOT be on me .
( Mom perpetrated this drama because the neighbors might see me leave the house with a suitcase with my fiancé to go on a trip . This was her way to try to stop me from going on the trip and spare her perceived embarrassment with neighbors .)

I told her “ Go ahead “ and I even pushed her handful of pills closer to her mouth . Guess what ?? She didn’t take them and never ever threatened that again . She also as in the past , ordered me not to tell my father ( that she pulled this threat on me ).

Tell Dad that you are not the nurse .
If he wants to go to the hospital he has to tell the nurse .

I bet you he doesn’t tell the nurse . And whether he goes to the hospital or not , it’s on him.
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Anxietynacy Dec 4, 2024
Oh my waytomisery, I think are mothers were sisters.
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faithful - your dad is jerking your chain and getting something (enjoyment, sense of power?) out if it. It's a game that takes two to play and you are playing it with him. . If you stop playing, the game will end.

I only saw mother a few times a year. (distance caregiver) I trusted that the nurses would call me when something went wrong or more care was needed. They did. Meanwhile I got on with my life. I did not center my life around her unhealthy behaviour.

I agree that Melody Beattie's writings on Codependency would be helpful to you.
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faithfulbeauty Dec 4, 2024
@Golden23,
It is going to end because I'm tired. Life is too short to be constantly stressed.
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Mother said that sort of thing once in a while. This was before she had dementia - but she did have Borderline Personality Disorder. I knew it was due to her problem, amd not my fault. It's not pleasant to hear but you have to detach from what they say and recognize they are words from a brain that is not working right. Build up your own confidence in who you are. There is no understanding the why or how when someone's brain is not working right. Don't waste time trying to figure it out. You can't! (((((hugs)))) I know it isn't easy.
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faithfulbeauty Dec 2, 2024
@golden23,
It is definitely not easy and you are right, There is no point in trying to figure it out.
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So quit answering your phone when your dad calls, and let his calls go to voicemail(especially when you're at work)and then at the end of the day you can choose to listen to them or not.
I'm sure the folks at his facility will notify you if and when there is something actually wrong with your dad, so rest in the knowledge of that, and let the rest roll of your back.
You have to remember that your dads brain is permanently broken, and that yes one day he will die, but not because of anything that you did or didn't do, but because it was his time.
So take a deep breath and try and enjoy whatever time you may have left with him, and try not to make mountains out of molehills.
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faithfulbeauty Dec 3, 2024
@funkygrandma59,
That is what I keep telling myself... That they will notify me if something is wrong. His brain has certainly changed. It is very hard seeing him like this.
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Faithfulbeauty, at least your dad's safe, my mom is aging at home. My worry and anxiety is creeping up about mom being home alone. The fear of her falling, and laying in a puddle of broken bones suffering is often in the back of my head ,much more so as of lately. Holidays and winter are really hard on her.

I kinda feel like you have it easier in that sence. You also have power, where I have none, my brother has it all, but just doesn't care.

Waytomisery has been to he// and back with so many with dementia in her family.

Many of us struggle daily, some full time caregivers here. Which I myself have no clue how they are holding it together.

Turn this around and think about the positives you have in life. All you really have to do honestly is change your number, not that you would but some of us are not that lucky to have what you have.
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faithfulbeauty Dec 4, 2024
@Anxietynacy,
I was my fathers caregiver for over 20 years so I feel your pain. This only ended about 6 months ago. I now that I now have it easier but it was not always that way. I sympathize with anyone who is a caregiver because it is HARD. I do have power but he does not mind reminding me that he is in his right mind and can still make decisions. I hope the situation with your mom improves because I know what the constant fear feels like.
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You need to back away from him. Don't call as much. I had to do this with my momma and the rest of my family because it was affecting my health and life. Blood pressure was through the roof and I was miserable. I use to call momma about three times a week. Don't now. I talked to the nurse and momma has been on anixety meds and I have a therapist that comes and talks to her every two weeks. She can dump on her. I call about once every 10 to 14 days. I have very little to do with my siblings, neice and sister in law. Don't trust them. At one time we were estranged for five years. We have been getting together at christmas for dinner with momma but that is it for the last two years. I noticed a big difference with momma when I quit calling and going over there as much. All she did was dump all over me of everybodys problems and how unhappy she is in assisted living. Told me I have taken everything away from her. My neice has since reached out to me and has apolized for how things are but I still have my guard up because of past behavior. Momma is doing ok. More medical problems but she is 90.
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faithfulbeauty Dec 9, 2024
@akababy7,
I have cut back on calling him. I also have High Blood Pressure. There are also very few people I trust. I do not trust some of his friends and a family member. I think they put ideas in his head about coming home and they there is no respect for me at all. Sometimes I think he has talked against me as well. This is the reason some of his friends and family members have an attitude against me.
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