Dad was not sleeping and being feisty refusing to get in bed at night, kept rolling through the house insisting we carry him home. Then when we say we could not at the time (for reasons mentioned in another post), he would try to get out the door.
This was upsetting to me but my hubby would get factual with why he could not go home and why he had to leave our home if he didn't stop doing what he was doing. They both would end up in a yelling match only to make up later.
Due to my husband insisting we get him into a nursing home right away and bypass trying to get him into his home, I wanted to make sure he would be well health-wise wherever he ended up.
So during one of those episodes last week and at the insistent prompting of hubby to send him to hospital and then a nursing home. I called the ambulance hoping they would give him something to take the edge off. All they did was evaluate him for confusion, ordered a ct scan, and discharged him about five hours later.
Then I found what I thought was another great option for evaluation in regards to medication for agitation and sleep. We took him to that hospital and then it went horribly wrong. They were taking so long in getting him admitted that I started to have a change of heart (not a good feeling). They told me because of the issues I stated he could not be released and was being sent to a behavioural unit.
It has only been a week but now when I call to check on him attitudes are no longer positive and staff are huffy and dad still has no meds.
I'm worried and hope being in this behavior unit for something simple does not cause nursing homes (if that ends up being the end game) to not want to take him on.
I'm trying to understand how the hospital was able to place him in a particular facility against your will? I've heard medical staff say a person cannot return to their own home alone but he was living with you. I would think you can remove him from this location and place him in a facility of your choosing. It sounds like you need to have someone advocate for you. Can you speak with your father's doctor or a social worker? I think what I'm hearing is that it was believed placement would be quicker and easier if he were placed directly from a hospital instead researching facilities and then placing him.
Caregiving can place a strain on marriages. Sorry for what you've been going through. We had to cancel a vacation this year because we couldn't take my father and could find anyone to care for him.
That may be the case.
If, as it sounds, he is unlikely to be able to be SAFE and contented in his home, it may be time to take that choice out of consideration.
MY OWN dear LO was a significant “escape risk” in her early days in AL, and I finally had an assessment done by an amazing g geriatric psychiatric assistant who worked with the residence. Her meds were adjusted, and there was an almost immediate improvement.
You are a bright, intuitive, very caring daughter. Time to give your good thoughts a longer trial, and above all, time to relax and let your ideas enough time to play out before you change your mind again and switch to something else.
The pain when my dear LO was trying desperately to escape her lovely new surroundings was devastating to us, but from it, I learned that no solutions when dealing with elderly LOs are likely to be perfect, or even pretty good.
Seek solace in being able to keep Dad safe and as comfortable as possible. It will be unfair to you to try to do any more.
Oh, my goodness. Yes. This.
But here is more on why I mean it went wrong. So they got him medically clear around 4 hours and then the entire process stalled out in the emergency room. After 5 hours I asked my hubby to come get information because it was to be just one paper to sign. Finally, the lady brings me the paper to sign only for me to later find out that he would not be in the hospital where we were but one across town. Before signing the paper is when I started changing my mind but by then they were telling me I could not remove him from the emergency room because of the issues I had mentioned requiring evaluation.
Now he is in that facility but yet they’ve not made any attempt to add on a medication. Yesterday when they finally let me speak to him, I could still hear the confusion that caused the agitation but yet they have not tried one medication. Oh, he is doing fine but I don’t know when the physiatrist is planning to discharge.
I was hoping since he was under my care this time that I could get him on medication to help with his anxiety which I was also hearing and seeing during visits with the previous nursing home.
I also feel bad that I can’t care for him in a home within walking distance because of social security rule with SSI income. For the most part, he was doing okay in a small setting but that not sleeping was getting us.
He will complain about it wherever he is placed. It's just part of whatever brain disorder he has. You have done everything you can do, please do not feel guilty. Remember the complaints are part of the illness.
If you see him improve it means he is in the proper level of care. Do not think that he is sufficiently "cured " enough to bring him home or to a lesser level of care.
Let the staff do their 24/7 jobs and you and your husband can take so time for yourselves knowing he is safe.
You and your husband are expecting too much from Dad. With Dementia the ability to reason is gone. His short-term memory makes it impossible to remember what you have said to him from day, minute to minute. And this WILL get worse. Processing what you say has slowed down. Arguing with him is useless.
Dementia is hard to live with because it has no rhyme or reason. What they do one day, they can't do the next. From what I read your husband has a hard time dealing with it. I would consider getting him in an AL ASAP. The sooner he is placed, the sooner he excepts it as his home.
I’ve not thrown nursing homes out with the bathwater. I’m just trying to take my time and get him in a good one even if it means travel time but most love ones including my hubby are in a hurry and just want me to get it done. Kind of like the pressure I felt when getting him into that behavioral unit. My dad and mom were big pieces of my heart and I want to do right by him whether at home or in a nursing home.
I hope I’ve not set my expectations too high for dad. Most days we don’t argue and do well together but my hubby just works my nerves. As my daughter says, how can dad tell someone else to stop yelling when he’s been a yeller himself for years and can’t be reasoned with and he does not suppose to have that problem. But I have to give hubby some credit for trying to help with dad even now. He has always been there for dad when his six sons have not but he is not doing well with where dad is now.
So two facilities have his information but I don’t know how soon they would get him approved. One is in our area (rating is down now - don’t really want him there) and the next one is an hour away (decent rating). Plus he will be around all his specialist (heart, prostate, lung, and possibly a neurologist although not geriatric). No travel time will be involved like it would be if placed near me.
So now you have family upset about that idea but I feel it is about him and not about us. Why not have him where he can have access to what he needs and possibly better care even if we have to travel a bit? It would have been an honor to care for him a while longer but it’s not just me in my home.
Another thing is I’ve been trying to buy time in my home to see what the courts decide but no hearing date so far. If he does not get to go back home, I want to put his home up for sale to make sure he gets the proper care and things he needs. Once in a nursing home, his check will be gone and I’ll still have burial insurance to cover. I know how I like to see him dressed and appear cared for as he deserves. He may have not been the best dad but he took care of us.
But you can’t please everyone. Thanks for listening and holding me up, I feel so sad right now regarding dad and my body is going crazy headed for this menopause thing. Just got back from the hospital a few days ago getting a blood transfusion and I hate what they're asking me to do to not require another transfusion. I hope medicine and the procedure have advanced. Sigh!
Appreciate all of you!!!
I would not worry about the nursing home now. It should not be a problem. Where is your husband’s or dad’s PCP? Do you or can you get the help of a Social Worker at the hospital? Things seem to be a little mixed up in your story.
They probably are giving him all kinds ofraters.
I hope someone checked him for a simple UTI which totally changes a person
Prayers.
If/when they determine what medication he might need, NH placement shouldn't be an issue. If you were to choose AL or MC, that might be a problem, unless he was "under control."
One thing to note is certainly no one should be trying to be "factual" with him. That doesn't work with dementia. Hubby helping isn't doing the right kind of help.
Since you mention court, sounds like you are trying for guardianship. If you don't have any POAs in place, it could be why staff seems to be "huffy" with you, as you wouldn't be considered the care person, per se. Keep trying with the hospital he is in to find someone who can guide you. They may not be able to share any medical information unless/until you have some legal standing. Sometimes a good EC atty can get the court issues expedited. Let them do their thing and you focus on getting the court issues worked out.
Your hubby isn't alone in thinking they can be "factual" with someone who has dementia. My YB is 10 years younger and would try to go to great lengths to "explain" things to mom when she said something or asked a question. It's best to keep it simple, and certainly not argue with them. It's like trying to argue with a 2 year old! No one wins and everyone gets upset!!
Is this sibling living in dad's home a minor? If not, they will need to be prepared to move if/when you obtain guardianship and approval to sell the home to pay for his care.
He is still in the behavioral unit (just made a week Wed). They’re finally saying he is doing well enough they’ll probably discharge to home tomorrow. We have to go and pick him up. No aggressive or combative behavior. Just sleep issues which were my main concern. Dad's agitation was behind going home. After speaking with the nurse they are saying they have been trying him on memantine, seroquel, and added back aircept (will know for certain tomorrow), which now I’ll be researching the first two.
I’m sorry my story seems a bit mixed up and confusing. Trust me it has gotten crazier. Once hospice was discharged so that he could try the behavior unit at the hospital it got out of control. Between the hospital and the behavior unit, they had me questioning my decision. First, the website read as if the unit was going to be right there at the hospital after passing all the health screenings. Then we found out he was been sent to a behavior unit across town. So the unit is supposedly still part of their offering just not in the same building. But because I didn’t get to meet anyone or see the building where he would be, I just could not control my crying coming down the road. Good thing my husband was driving. Then the bhv unit staff started with attitudes a few days later as if I was asking too many questions or should not be calling once daily for an update or just to ask how he was doing.
At1234
It’s a sister that never/ever left home. She is one of the ones that depended on our parents for everything in life. Yet said so ugly, he ain’t coming back here (his home) & I don’t want him here (his home) but gladly spent a portion of one of his checks that came to the previous account. At any rate, it would have gone over better with me if she had said if you bring him back here, don’t expect me to be the caregiver. Instead, she was very hostile and ugly. I’m not trying to make anyone do anything just trying to do what’s best for dad even to give him the opportunity to see how he does in his own home. This same sister use to say she had legal authority but never produced documentation for either parent – just mouthed off about it all the time with me. I am pursuing guardianship to hopefully have legal authority.
Moxies
The anxiety came behind wanting to go home. It got to the point where he would refuse to go to bed at night. He needed something to take the edge off, not snowed, or it was going to cause additional problems with his health. I believe that with all my heart. He would set up stewing with his feet patting the floor in a quick motion, rubbing his head and rubbing his head, and pacing the floor in his wheelchair trying to exit the home either out the front or back door. Call each of us one by one saying I told you to take me home.
Learn2Cope
I don’t wish for the nursing home at all but because of dad been caught in the middle (hubby saying he can’t be here long term and two children saying he can’t come back to his home but they will be glad to use his checks), it probably will happen whether he or I want it. He was not placed in a behavioral unit to try and beat the system (not sure if that’s what you are saying because hospice could have helped. I wanted to make sure there would be sleep and not so much anxiety still being experienced once he entered a nursing home again.
Disgustedtoo
Yes, that was another of my concerns after I mulled over things. AL and MC may be out because I don't know how soon I’ll get everything squared away if I obtain the guardianship. The sibling is not a minor. Thanks for understanding about hubby and I. We have always helped care full-time with his parents and with my parents, in the thick, but this is a learning experience. I don't know but something changed in dad and I don't know if it's dementia or that he snapped after losing mom last year. He also had a couple of nasty falls that where he hit his head.
I would explain the house/sibling/check issues with the atty, to see if they can expedite getting legal control for you. Given his "condition", moving back home, esp with negative "children" involved likely won't work, even with care-givers. An assessment after he is stabilized would be good (the court may order this anyway) and then go from there.
Juggling care-givers in a home that isn't yours is likely going to be a LOT of work. If he can qualify for AL or MC, it might be better for him AND you. If he qualifies for NH, the sale of his home can keep him self-paying for a while, and you can pursue applying for Medicaid, if his income is low enough.
Fingers crossed for you! It IS a learning experience for many of us, you aren't alone. Hope some of our advice and/or suggestions are useful.
Seems like his confusion, agitation, demanding to "go home," and acting out meets criteria for an involuntary admission to a psychiatric unit for evaluation and treatment. Yes?
The arguing between your father and husband is concerning that your father may be a case of potential elder abuse. Staff have a duty to report all suspicions.
So, you need to approach this admission from the perspective of asking (not demanding) the doctor and staff what is the problem and how can you help.
Getting problem behavior evaluated and treated actually increases your father's likelihood of being able to remain in a residential facility.
The acrimony between your father and your DH should not have been brought up for discourse at all since the hospital(s) may have speculated on abuse, even though there was none.
Neither of them are paid for my Medicare. Medicare will pay for a certain number of days in nursing home IF the person goes straight there from a hospital ADMISSION. Be careful, frequently they just hold for observation rather than admit then they do not qualify for coverage in a nursing home. Once a person has depleted all their assets Medicaid may cover the cost of a facility after all the monthly income is applied ( social security, any pension or retirement income). The restrictions on how much a person can earn are different in each state. If ye is a Veteran there my be some financial help. None of this is taught in school and we must educate ourselves on navigating this very complicated area. His child(ren) living in his house (is it paid for? Are they paying rent? Etc) will need to move out so it can be sold to pay for his care. So many moving pieces, good luck, we are all in this experience together.
Part of the process of getting him to the behavior unit was taking him to the hospital and getting him medically cleared (blood work, urine & covid test, etc). The first hospital (same branch in our town) after getting him medically cleared refused to help just threaten they would sit him out in the waiting room and report us for not picking him up.
So then we spoke to the behavior unit again who told us to bring him to the next town (exact location of the unit) since the sister hospital wouldn't cooperate. We did and it still ended up being a nightmare but thankfully it is over.
His home is paid for. The sibling living in the home doesn't pay rent.
They did add the three meds donepezil (familiar with and hated), memantine, and Seroquel. However, the Seroquel prescription got screwed up (insurance issue). I've called the behavior unit several times for help with the script but I think it's a case of out of sight and out of mind now.
Hoping a follow-up appointment with his primary doctor will help us continue this emotional journey.
Thanks for all the input! Highly appreciated!
With that being said, I would gladly trade the fifteen meds in for just one, just one, that would ease "some" of the anxiety that leads him to behavior that starts working the nerves of others. Not knock out but calm.