It’s been a struggle to be responsible and take care of my 85 (mom has cancer) and my 90 yr old dad who’s weak and has pre Parkinson’s. They live at home still but I go over there almost everyday and do everything since early 2022 and the burnout is getting to me 😔. No other family members have offered to help. I feel trapped and stuck like I have no life anymore and I’m only 53 just became an empty nester only to take care of my parents now. I haven’t had a vacation in 4 years and I’m mentally drained from all their health issues and mild cognitive decline and just plain depression from being around all of this everyday. I had to quit my job to take care of them. I cry easily, lost interest in things and feel isolated. I have an emotionally abusive brother that has only stopped over to se them 3 times in the last 4 yrs so I also have to worry about him lurking around my parents.. My life is somewhat gone and I’m angry and sad and feel like I have no choice but to be responsible for them. Anyone else just the only one too? Most people I know have siblings that take turns but I don’t and it’s making me feel resentful and depressed.
Tell your parents, I love you but it's been three years and I need to restore and protect my own health and financial security, so do you prefer to hire in-home caregivers or move to a facility (either one, at THEIR expense, not yours)?
If they are selfish and refuse, tell them you cannot continue to handle their issues, and start cutting back. Go only every other day, then just twice a week. Or go cold turkey -- take a vacation, and tell APS that they are vulnerable adults living alone, and let APS find a solution.
I especially like Brandee's suggestion of signing them up for Meals on Wheels. Put their bills on autopay and have their groceries delivered, if you aren't already. Hire (at their expense) a cleaning service if necessary, either one-time or on a schedule.
Regarding your brother, if he has only visited three times in four years, I don't think you have to worry about him.
You truly can't go on like this, and shouldn't have to. It will be good for your parents to have some socialization with new people, whether caregivers coming into the home or staff and other residents in the facility.
I encourage you to stick around on AC and read the current pages and some back pages. I know you will see similar, even mirroring situations. You are far from alone.
You have decisions to make for your future.
I am 82. I would no more require my daughter, now 63, with current retirement, and her hubby, 70, to care for me than the man-in-the-moon. It is selfish and cruel, quite honestly, to require and expect this of our children when they have FINALLY reached age of retirement, kids out and educated, and they have this window of wonderful time in which to explore the whole world until they enter the land of losses that is aging.
There may come a time when you need to sit your parents down and tell them that they will need now to have safe placement and their needs fulfilled by caretakers, so that you can resume your life.
OR you will remain where you are, and perhaps for decades, until you yourself fall to ill to continue the care, or they pass.
You are not a Saint. You are a human with limitations and with needs. Sainthood is a very bad job description if you think about it. You aren't guilty for wanting a life. You didn't cause aging and can't fix it and parents we see on our site are seldom even grateful for your becoming no longer a loving daughter, but a sad, worn out, demanding drill sergeant of a caregiver.
You do, again, have lots to think about. Consider psychological counseling to get the choices lined up and delineated. When you have specific questions, here WE are, and no, we are far from having all the answers. But sometimes it's just a matter of misery MUST have some company!
Again, welcome.
I'm an only too and I managed my father's life for close to a decade. However, I knew I could never have him live with me and I needed to continue working to support my children. Even if they had left home by then I would need to secure my future first. I set really hard boundaries that were not always the easiest to keep. That is what you have to do.
Now you need to figure out how to save yourself. Make arrangements to find your parents a safe place to be. One that does not require you 24/7. Heal yourself and get back into the work force so your children won't have to do this 20 years from now.
The one thing I learned from my experiences is what NOT to do. I have enough funds to afford an AL when the time is needed. While I hope they will help me a bit I do not want to rely on them for anything daily. I won't be making 10 calls a day like my father did over nothing. I won't assume that running me to countless doctors is some sort of treat for them like my father thought. I will never expect them to leave work because my tv remote is not working (my father's favorite).
Please find a way to extract yourself from this and take care of your needs first.
1. Consider professional counseling for you. Stop going over every day. Buy a stack of tv dinners and preprepared meals and leave them in the frig and freezer. Make a stack of sandwiches. Leave them milk and boxes of cereal It sounds like they are still both good enough to call 911 if there is an emergency issue.
2. Make a plan to take a vacation and go back to work.
3. Use their money to pay for professional caregivers for 8-10 hours a day.
4. Or, transition them in to facilities.
I cared for both my parents (with daddy it was respite care for mom, so she could get out and have a break from his 24/7 care. I spent time with him that I found precious and wonderful.)
For my FIL it was 3xs a day trips to his home to feed him, help him dress, force him to shower and dress whatever wounds he currently had (lots of falls that last year). He should have been in a NH the last year of his life.
This was done b/c I refused (oh, so selfishly!!) to bring him into our home to actively die in front of our 2 teenage daughters.
Mom was a combined effort of helping YB in whose home she lived. She felt like a prisoner and I tried to help her whenever and however I could. It was hard, to say the least. I don't think she liked me very much, TBH.
My MIL, I was lucky enough to have divorced her 4 years before her death and even as she was placed in home Hospice, I refused to see her or have anything to do with her. (Long and very typical and boring backstory). My Dh had to retire before he wanted to, to take care of her. He blamed me for that.
Nobody can make you do what you really don't want to do. Yes, you do have to live with the outcome, which may mean that family members or neighbors judge you for--but they don't know the whole story. (My Dh only knew the extent of the hatred his mother held for me the last 3 months of her life when she lost her filter and told him all about what she thought if me, how much she hated me and wished I had died when I had cancer--among a lot of other things. 47 years together and he never once took 'my side'. After this information from his mother, he did believe, but that was 47 years too late. I'm still processing this and it's been a year since she passed.)
So--yeah, you are going to get a lot of people chiming in. Take what feels good to you, what's helpful and know that you most assuredly are not alone.
I don't really think that the amount of care required of you now is sustainable. I hope you will begin now to be honest with the parents that it is time for consideration of 24/7 placement in care that amounts to several shifts with several people working each shift. You are an adult, and will have to make this decision on your own or decide not to.
Please stay and read and read and read. It will help you formulate questions in your mind one at a time, and hopefully we can give you some ideas how to proceed.
I am so very sorry. This is all very tough and there is no good answer in aging care.
You have TWO frail elders on your hands here and I think that even if your brother was a stand-up guy who did his part, the math would still not be mathing. The care you are providing seems unsustainable for two adult children, let alone one!
Yes we are out here. I am sorry you are having to deal with this. I first posted here back in Oct 2024 about the same thing. I moved my parents in with us in May 2024 after mom's hip fracture and it has been up and down. But I'd been taking care of them since April 2022, like you going to their house several times a week, sometimes several times a day! I got some very good advice here and words of encouragement. I may not have been able to jump on any of the ideas at first, but I did wholeheartedly agree that what I was doing and what you are doing is not sustainable. AT ALL! Dad is bed bound now as he's gotten older (stroke in 2002) and mom was diagnosed with Parkinson's in 2019 (PD is progressing).
I have sitters that come every day, so though I may not have to change dad's adult briefs, there is so so much more to do! And like you, many days I cry, am overwhelmed, depressed, sad and angry. And all as my husband and I were just planning for retirement and travel, it all came to a screeching halt.
Do you have POA? If not get that, medical and financial. Do you have them in hospice? Not sure where you live, but if not, talk to their primary care provider about a referral for hospice.
I will say this may take time for you to be ok with, but you really have to think about a nursing home. It's taken me almost a year and being hit by my mom on several occasions during her outbursts to fully accept that a nursing home is where I need to have them. I am an only child and I have no one (but my husband is wonderful and does as much and as best he can) to help with decision making, I am an RN so I can handle the medical stuff and can case manage what needs to be done, but it's too much and TOO costly to continue. Mom's last outburst was in early March and she was so outraged and angry. I dropped to my knees in frustration and started crying, she stood there mocking me, threw her walker at me, then slapped me three times when I stood up. This was the woman I did so much with. My best friend. But it wasn't her. That morning I'd prayed that my decision was right, after that last incident, I knew it was the right decision.
You are doing a wonderful thing and I don't think in years to come you will regret having taken care of your parents, but you DESERVE a life. I'm 56 and I want to enjoy while I am still in good health. You need to enjoy life too!
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