My mom passed a year and a half ago. My father has Alzheimer’s. My 2 brothers and I take “shifts” in caring for him at night and on the weekend. We have a day lady during the week. I have tried to walk away and have gotten slammed with emotional backlash so here I am still. I feel this course of care is wrong for my father as he sits all day and watches tv or sleeps. I feel we are helping him become a vegetable. I have tried doing puzzles with him but he gets mad. I tried to get him to sit outside today, but he won’t. I won’t take him to a restaurant because he yells now and people won’t understand what’s wrong with him at that moment. I was threatened by the brothers that they will use my “third of the inheritance to get additional care if I walk away.” My answer was a huge YES! I stated the money is for his care and he needs to be in a proper memory care facility. I found a beautiful place not far from the house. He’s to the point where he is having accidents and, depending on the day, can get mean. I think he would be better off with people like him and skilled memory care staff who can tend to him 24-7. My brothers think he should be kept home. It’s been a year and a half. We are all exhausted. But it seems I’m the only person who is able to admit they can no longer do this. While I love my father, I can’t sacrifice my marriage over this. And I am literally covering half the month while they do less days. This is unfair since they are the ones who want to keep him home. How can I walk away without being made to feel like the villain here? Has anyone else had this problem? I feel so alone right now.
Tell your brother to go ahead and use your 1/3 and pay for the care that you would provide on your "shifts"
I think if you placed him in Memory Care he would become more involved being around others.
Sell the house, use assets to pay for the best care that he can afford.
It will get to a point where his house will not be appropriate as he declines and will money be used to make the changes needed or will he or I should say his caregivers be forced to care for him in a place that is not safe for his needs at that time.
Tell your brother to do what needs to be done to use your "inheritance" and begin to enjoy your nights and weekends with your friends and family.
If you can’t do the care willingly, just stop. Your brothers can do more themselves, or hire care, but it will come out of the total estate, including their ‘shares’. If they try paying themselves in advance, they will need to OK it with your father', and it would be very tricky in terms of POA responsibilities – you can keep some evidence that they are doing this simply for their money hopes, not for father’s best interest.
Give them the glad tidings that they are talking rubbish.
Make your brother's step up to the plate and do their fair share but if they do or don't.... I would let them know they can have my third of the fabulous inheritance because I'm out. I will happily visit periodically where I can be a daughter, not a caregiver. You need to love yourself first (that is what your parent would want you to do) and take care of your family.
Sorry you are going through this but you will make it. Hugs and Peace.
i am fortunate to have longterm insurance for my husband and myself but it costs more than i can afford so i am working in my 80s. But i am determined that we will not live with my daughter or her kids.
thats what facilities are for.
there is no reason why the facility has to be a bad one. There is no reason why family members cant do body checks for family members there for bedsores or bad food or conditions or care.
i do not believe that family members need to give over their lives to care for others no matter how they love them. I truly believe that care that is received in that instance can be substantially worse than finding a good facility.
YES YES YES!!! Have you been keeping track of the extra hours you've been covering for your brothers? If so, then make them make those hours up before you do another shift. And THEN (when they have made up all the hours they owe you) announce your plan to step away entirely. They deserve this for their despicable plan to make YOU the fulltime caregiver.
I know what it's like to get roped into being the 'Designated Caregiver' because it happened to me. Once it does it's damn near impossible to get yourself out without being made into a vilified, hated, guilt-tripped, judged scapegoat.
I established boundaries and I will never get used and played by my family or anyone else's ever again. My sibling and relatives who are not helping with the caregiving for my narcissistic abusive mother think that I'm not nice enough about it. My attitude on that is they can show up or shut up.
They always shut up because nobody wants to do it and put up with the BS that comes with caregiving. My mother also knows that if dementia shows up to the party, I will not care for her. Of course this makes me the a**hole of my family. A title which I will own proudly rather than ever be taken advantage of again.
Who has POA? If you, get Dad formally diagnosed with Dementia and you make the decisions. If you are not POA, you can file for guardianship and use Dads money to pay for it. A lawyer could verify what I said.
You could walk away and see what happens. If brothers do not walk up to the plate, then call APS and tell them there is money there for Dads care.
Your brothers have every right to be angry over possibly having to place your father and to see everything he ever had get handed over. They want to preserve some kind of inheritance for themselves and that's fine. It's not for you though. You do not want to be your father's caregiver. It's your choice and it's okay if you don't want to do it.
Do your brothers know that no amount of money has ever bought back a moment of time?
If they want to sacrifice and be caregivers for what could be years, give them your blessing and let them do it.
Then walk away and leave them to it. Visit your father if you want to but as a daughter and not a caregiver. Good luck.
Q1 Are you female?
If yes then start here.
"I am NOT a maid to the men of this family. Not for Dad. Not for YOU Brother #1 or YOU Brother #2.
I am DONE with that.
A family home care plan only works when it works for EVERYONE in the plan. It no longer works for me. So it is time for a NEW PLAN.
This is what I am suggesting;
Both brothers need a BIG dose of reality. Starting with;
1. More education on Dementia. What it is. How it progresses.
2. 1. A needs assessment for Dad.
Then re-do the Care Plan based on his needs.
If family cannot provide all the care provided - then non-family help is needed eg hired aides.
From DAD's funds.
NOT from ONLY your share (WT4#@$🤬). Just rediculous.
If/when care needs cannot be met well at home, moving into 24/7 becomes necessary. As you point out, it can bring socialisation which is a plus.
No-one is born knowing this stuff so I give them a tiny little break.. but as my elders would say - they need their heads banged together!
They are willing to let YOU drown in the bog for THEIR inheritance. Downright selfish.
PS Bet they are calling YOU selfish for stepping back, right?
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