He was transferred there and they have forgot to give meds, left him in waste. They do not responded to his call button and leave him in bed. I asked for two days that they provide a bedside camode but as of today there still was not one so I brought his from home yet still found him in diarrhea-covered bedding. I changed him, cleaned him up and they said I should have left him in bed to be changed. I said they have got to be kidding. I have cared for him for many yrs myself. This was to be for rehabilitation to gain his strength. I don't know how to deal with this. Sugestions please.
But I am curious at the reason for rehab? How much rehab can a person in late stage LBD able to get and retain, and the short term time period it would help, has me a bit confused that you are really accepting your dad's diagnosis.
Also I want to reiterate how difficult it is to get your dad back in if you bring him home and can't take it anymore, it's very difficult to do .
Just a few things to think about before you make this leap.
The social worker asked what my life was like. I told her about my job, going out with friends, dance classes three times a week, yoga class, swimming. She said, “Forget all that. You’re a caregiver now.” She was right. My previous life was over.
You should find another facility for your LO so you can continue to be you.
I would move him into a higher care facility as soon as possible.
Good luck.
Don't bring him home though. Find a nursing home who will accept him that's close by to you. This way you can be a good advocate for him to make sure he receives quality care and still provide for some of his care needs. Only you wouldn't have him living with you and you wouldn't be responsible for every care need round-the-clock, 24/7, 365 days a year. You've already done that and you know what it's like. It will be that again.
It's time for Long Term Care. See who has availability and look at a few places.
Many specialists believe at later stages rehab and other procedures do not contribute much especially to quality of life. Often the question is quality vs quantity.