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I'll spare the details, suffice it to say I feel sorry for the person that has to clean up the bathroom. He walks from the restroom covered in "stuff" to the car (restaurant and golf club house are the two most recent). He gets angry at me for gagging but I have to drive home with the windows open, leaning over as close as possible to the window. I do not handle things that come out of the body (except for blood for some reason).
I have carried a blanket in the car for years, so I cover the seat with that that with the command to him to not touch anything. Get home and I have to deal with the blanket, the car, and of course his clothes, while he showers, all the while I'm gagging. (Tried the Vicks under the nose, didn't help.)
He came home today and declared how sick he is, he must have covid. Sigh. Nope, he's not sick, he's incontinent and won't admit it. At home he makes it to the bathroom but in public, he explodes when he gets to the toilet. At least he gets that far (so no need for incontinence underwear), I should be thankful that he isn't actually going in his pants (although maybe this is a precursor to that?).
How do I handle this? I have no desire to ever go in a restaurant with him again. We have some have-to-do trips coming up (still dealing with dad's estate and house) and I dread the thought of having to hit all his favorite restaurants and staying in a hotel where clean up won't be easy.
I have suggested a diet change to eliminate flour and he won't hear of it. He wants his doughnuts, pizza, and subs. I hope to be able to bring this up with his PCP next week, but that will be difficult.
So, anyone have the voice of experience and can suggest something I am overlooking?

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There absolutely is a need for disposable underwear. I was thankful that my husband agreed to wear them even though they were never actually needed(outside of occasionally at dialysis). In your situation, I would not take him out without them. Explain that it’s a health hazard to the public if there is a chance he might soil public restrooms. I’m sorry you have to deal with this, I know it’s difficult. And always carry necessary cleanup supplies with you, including gloves.

May I ask why it will be difficult to bring this up to his PCP? Perhaps you could use the patient portal to communicate with his doctor prior to the appointment to let him know what’s going on and then he could ask about it.
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graygrammie Aug 11, 2024
He doesn't "go" in his underwear, his body lets loose AFTER he pulls down his pants at the commode, hence the poo on the back of his pants, belt, shoes, all over the commode, etc. If only it were so simple that he's going IN his pants, but he isn't.

Even if I bring it up with the dr., dh can talk circles around everyone and will give every excuse in the book as to why it happens. And then I will face great hostility for having mentioned it to the dr.
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I agree with MidwestOT, there is a need for disposable underwear. I remember when my own Dad (90's) ran into this problem at home. And my Mom (who was in her 90's also) was on her hands and knees trying to clean up the rug or chair.


Dad refused to wear disposable underwear. Mom finally had enough, so the next time Dad had an "oops" she handed him the cleaner and rags. He had to now clean up his own mess. After a few times doing the cleaning, he started to wear Depends. Problem solved.


Oh, turned out my Dad was lactose intolerant, which explained his lack of bowel control at his age. Changing to lactose free milk helped him a lot. But trying to convince my Mom was another story that Dad could no longer have cottage cheese, regular cheese, ice cream, vogurt, anything dairy. She's from the old school that a "little bit" won't hurt.... (rolling eyes).
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graygrammie Aug 11, 2024
I think my husband's issue may be both wheat and dairy. Yesterday he had a doughnut for breakfast. His favorite food is pizza, wheat and dairy. Buffalo wings (wheat in the breading, dairy in the bleu cheese). Cheesesteak subs. Spicy chicken sandwich from McD's. He ate corn recently and of course, the corn came out looking like corn, so that proved, in his opinion, that it is not wheat and dairy. He pointed out that if I take away his wheat and dairy, then he can't eat anything but watermelon. He also doesn't "get" that heart failure causes digestion problems. When I mention that, the name calling begins, Miss Know-It-All, when did you become a doctor. I tell him that I'm just know what I read and he tells me to stop reading.
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If he expects to leave the house, he does it in disposable underwear or he doesn't go. And if he is capable, next mess let him clean up.
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Yes, this is definitely a precursor to that. If you wait till the man has an accident in public, like my mother did, then it's a day late and a dollar short for Depends.

Good luck trying to convince HIM Depends are a necessity, however. I can't imagine him getting angry at you for gagging! I'd never step out in public again with this man, if it were me.

I think it's time for you to give dh a wake up call now. You've heard all about what he "won't hear of"......have you told HIM what YOU won't tolerate?
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My late husband had this issue (explosive diarrhea) with some foods, cheese, milk, ice cream, fried foods, etc. We found out he had a form of IBS and was also lactose intolerant. We would barely make it home from any restaurant. It got to the point where we stopped going out to eat. My dad, on the other hand, is 96yrs with severe dementia and is now incontinent and has to wear disposable pull up diapers - of course we no longer go out to restaurants, but that's where I originally found out he needed to wear diapers full-time - it was a mess and I cleaned up most of it and called on the management to come and help me finish up - luckily it wasn't too bad but uuuggghh - but we never went back again. I would ask your husband to get checked for IBS or lactose intolerance - he could even test it himself at home first - by process of elimination of food types, milk, wheat bread, cheese, beans, etc. That's what we did - then we saw a doctor to confirm. And if he refuses, I would tell him to enjoy him time home alone then, while you go out to dine by yourself. He needs to take some responsibility for himself - unless he has dementia - of course. I would also go handle dad's business alone. Even in a diaper it's still a mess! So, no, just no - he needs to stay close to home! Good luck with all this. It can be very stressful.
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cover9339 Aug 10, 2024
Eating doughnuts could lead to having a blowout,
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I think you should stop taking him anywhere now. That includes travel as well. Even if he’s wearing Depends, if he has a public blowout, you’re still going to have to deal with it. So are those around him. Not pleasant for anyone nearby.

He’s crossed the line now to a whole ‘nother territory. I’m sorry.
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graygrammie Aug 11, 2024
If only I could leave him home. He won't stay home because he is so afraid of missing out on something or he is convinced I'm doing something behind his back. Friday I have to meet my sister (we live an hour apart) to deal with banking for my dad's estate and other related things. He will insist on coming. I dread it.
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No, this is a HARD no, graygrammie. He is to not be taken out in public anymore.

Knowing it’s not his fault: 1) it’s disgusting 2) it’s OSHA violation 3) it’s biohazard 4) the public should not have to deal with this 5) absolutely not, no, do not do this again and I can’t believe you let it happen more than once. (I’m sorry to be harsh, but I think you have likely put up with so much that you have lost the plot on this)

The clubhouse and restaurant should have been shut down for a biological cleaning. I’m sorry, grannie, but you are complicit in this.
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cover9339 Aug 10, 2024
Someone took a poop in a downtown bus shelter, not too long ago. They didn't block off the shelter.
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Unless he's willing to wear good double-duty incontinence diapers, I would not be taking him out again, myself.
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GG,
Can he go to AL for respite stay? And you can go on the trip alone, which you deserve. I read some of your posts and you deal with a lot.
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graygrammie Aug 11, 2024
I so wish I could go on a trip alone. He is very controlling and wants everything his way. He refuses to sleep anywhere but his own bed next to me. My son-in-law's mother invited me to go away a few days and have her husband stay here with dh, and he would have no part of it. I definitely need to get away, and sometimes I feel like the end is in sight. He has outlived the doctor's prediction now by almost a year and a half.
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Clearly he went in his pants because he walked out of the bathroom covered in 💩 and you had to clean the car, etc. Does he not know how to wipe or do yiu have to do that too? The fact that he wasn't embarrassed speaks volumes. I think you are in denial. It's time to stop allowing him to dictate what you will have to put up with and clean up. No more restaurants, no traveling. He needs to stay home while you handle things.
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cover9339 Aug 10, 2024
He's probably not embarrassed because he feels it is nature's call. Mess in his pants, maybe as soon as the toilet was in view the brain was thinking "time to go" and relaxed the muscles before he could get his pants down and sit on the toilet.
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This story reminds me of a senior who used to go to the Walgreens every morning and defecate all over the bathroom. One day one of the employees was tired of cleaning up all the 💩 from this man's accidents so when he came out of the bathroom they made him go back in and clean up his mess. The man was so distraught he had a heart attack a few days later and the wife sued the store over it. Neither the husband seemed to care that he was defecating in this public bathroom daily. Don't be that wife.
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cover9339 Aug 10, 2024
Where is this Walgreens that has a public bathroom? Weird he would hold it until he got there?
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The usual advice is to remove all his normal briefs, so that he only has diapers to choose. And that's at home! Forget about outings that involve him!
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Leave him home, Gray.

Next time, take pictures. Show them to him when you tell him that THAT’S why he can’t go with you.

Have your son check on him. He owes you.

You CAN do this.
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Grammie, I’m sorry, what an uncomfortable and embarrassing mess. Completely unfair to the workers who were left to deal with the bathrooms and to you doing such a gross cleanup. Hubby definitely needs incontinence underwear, like it or not, that’s simply where he is now. My dad had these accidents, despite the Depends, but they made cleanup far simpler. Please refuse to take him to restaurants or appointments anymore. I know he’s been belligerent and abusive, and can imagine how hard it is to draw a firm line with him, but he’s there now. Doesn’t mean you have to get confrontation over poop, you’ll have to insist on going places on your own minus a big explanation. Again, so sorry
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I retired from working at a luxury country club. If he pulled that stunt there, he would be given written notice he is not allowed in the facility anymore.

I would make it clear you will NOT go out in public again with him either. If he can drive himself around to restaurants, he can handle his own crap cleanup. You will need a new car soon at this rate!

Just say NO MORE, you can't deal with it again. You already have twice, that is enough. If it happens again, he cleans everything he did up, before he runs to a shower and leaves you cleaning it! He gets "mad" if you gag? Seriously?

You may need to make it crystal clear that If he starts this incontinence at home, he will be cleaning up after HIMSELF, no exceptions. Tell his PCP right in front of him that he refuses to admit he has become BOWEL incontinent and ask for a referral to a GI specialist. Tell the doctor he has had big "accidents" twice recently.

So sorry you are dealing with this terrible situation.
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Beatty Aug 10, 2024
Incontinence is not a choice.

I have LOs that cannot admit to having incontience. They have disabilities, physical & cognitive, making this area of life problematic.

Whether you call it denial or lack of insight - that doesnt matter. The caregiver needs to deal with it.

Either with a backpack full of supplies as mentioned + True Grit! Or limiting public outings.
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I carry a heavy duty backpack every where we go. My mother has soiled herself so many times in public that it no longer embarrasses me. I just guide her and walk behind her to the nearest public bathroom, clean her up and change her clothes. In the backpack is: several diapers, wipes, two clean complete outfits, extra pair of shoes, mini trash bags and gloves. I also do my best to clean the handicap bathroom so it's not on others. I do inform someone in the office that the trashcan has a clean bag in it and I have wiped down the toilet and/or sink. I periodically go through the backpack and switch out the outfits and make sure all supplies are plentiful to handle any situation. If we aren't near a bathroom, I take one of the small trash bags, rip it into a long piece and have her sit on it until we get home. Then I usually scrape the clothing into the toilet wearing gloves or use a bucket to dip them in and do a small load of her clothes as soon as possible so they don't stain or minimize the stains spraying them with a spot lifter. Hope this helps.
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MargaretMcKen Aug 10, 2024
I am sure that you do your "best to clean the handicap bathroom so it's not on others", but you also have your hands full with your mother. Quite possibly others expect a clean that is a bit more thorough in a public bathroom. "So many times" suggests that perhaps you should cut this down or out, even if "it no longer embarrasses" you.
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Use Depends and avoid taking him out as much as possible . Sorry it’s the decline .
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Yes. Quit public outings.
telehealth appointments where possible.
He stays home (with support) where he can manage better where possible.
Moves into staffed respite care if you need to leave town for a week.
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DEMENTED Aug 15, 2024
I use home health care because I have terrible Vertigo. Norton home health care or Baptist home health care in my city. medicare and champva pay for it. Labs are done at home along with PT, DVT or Asthma treatment. I never have to go out to Dr. office. They will also sign me up for Pallitus or Hospice when the time comes. They make sure I have any needed equipment.
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This reminds me so much of my dad in the earlier days of his illness. Does your husband see a neurologist?
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Yes, I'm thinking they will soon be calling to schedule an appointment as it has been a year. They are strange. If I call, they will tell me she is scheduling six months out. If I wait until the prescriptions expire, then they call and want to see him asap. Scripts expired August 2 and I asked for refills on August 3. Two they already called in (his seizure meds), but the the third, Aricept, hasn't been filled yet. So I am expecting a call any day.
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Reba63 Aug 11, 2024
GG, you're a saint. I'm serious. I feel bad for myself but after reading your posts, I just sit here shaking my head. You need help...I mean support. Your husband sounds like mine only times 10. Alpha-male. Always right. I work full-time and my husband does not appreciate what I do for us. On my lunch hour, a lunch hour, which means - to most people - an hour to relax and re-group...my husband is demanding his coffee and breakfast EXACTLY as he wants it...coffee, extra strong with Haagen Daz Rocky Road in it with Cool Whip, extra hot...etc etc. I thought I was suffering until I read your posts. My email is if you ever need a friend. xo Beck
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Read your replies .

Between your husbands significant cognitive issues , evident by the paranoia that you would do something behind his back , and his low BP which can cause O2 deficit to brain and/or make him pass out he should not be driving . Not even a golf cart . There was a story in the news about a child driving a golf cart in Florida and he hit and killed another child . The article said there are many injuries every year from golf cart accidents , I had no idea that was a big problem .

The other thing , he is not being cooperative . The gerontologist that diagnosed my very difficult mother with dementia told me when they are this difficult because they want to be in control of everything including what the family caregiver does , then they can not live with family anymore . The person has to be in a facility and taken care of by
NON FAMILY.

This is where you are at . Place your husband and go on a vacation
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cover9339 Aug 11, 2024
waytomisery

LOL

Did you mean to place this comment in another thread?
Low BP could cause fecal incontinence?
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Maybe time to place him. Sorry, he would not ho out with me. No more restaurants. This would be the reason I placed my husband. I have told him I would care for him as long as I could but...he could not be stubborn. Once he gets that way, he gets placed.
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You aren’t protecting his dignity.
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He needs to be in diapers now. It's not protecting his dignity to not be using incontinence products. There no shame in being prepared.

It's probably time to stop taking him to public places like restaurants. The other diners and the staff should not have to deal with someone "exploding" and stinking the whole place up. Really, they should not. It's time to start thinking about getting take-out from the favorite restaurants instead.

As for being in the hotel. You should make up what I always refer to as a 'HAZ-MAT' bag.

You get a nylon duffle bag. You pack it with one of those small, hospital basins they always have in the room. A bottle of cleaner ( I highly recommend Fabuloso. It smells great, it's cheap, and it cleans good), a couple of sponges, a roll of paper towels, some garbage bags, a plastic apron, some cleaning gloves, and a couple of face masks.

The Vicks under the nose does nothing except make a person gag more. I cleaned can, nasty bathrooms, and even worse portable commodes for 25 years. I always gagged because it's always gross. It never gets less gross. I used to spray my face masks with little a light scented colonge or spritz. That actually helped. The Vicks is just gross. My husband always used to get me face masks and a couple bottles of 'Amber Romance' cologne spritzer from Victoria's Secret for Valentine's Day. It worked.

You take this with you. You'll be able to handle any clean-ups you may have to do in the car or hotel.
Keep a bag in the car that has a change of clothes, diapers, gloves, masks, garbage bags, and the large wipes that are used for bathing bedbound invalids. They work great cleaning up "accidents" on the go.

I don't think you should take him to anymore restaurants though. Those days are past. You'll be all right going other places though. Just be prepared.
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Oh,this is definitely a precursor of what's to come. You can't fix this. It's time for incontinence products. The mind and body doesn't function as one and it does sound like a dietary issue that you absolutely need to tell the Dr about, in front of your loved one. It could be a combination of food and meds? A prescription that requires to be taken with food and isn't could be causing stomach/ bowel problems. Maybe there's a digestive aide he can take before meals?
You mentioned a hotel trip? Take some bed liners/pads with you along with pull-ups. It is a biohazard as someone else mentioned here. You can get sick yourself from exposure to his feces if you haven't already. I really feel for you as having to deal with this and having to go through the financial processing of his estate, he might be needed for that so maybe this will be his last outing? I was embarrassed/ disgusted when I found my mothers soiled pull-ups on the floor of a public restroom, you can't see what he's leaving behind. Be careful of your stress level with all that's going on, your health matters too!
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Evamar Aug 13, 2024
Burnt,
I think there is so much more to GG’s story.
She made her decision to stay in marriage and I don’t think it is dictated by financial dependence on her husband.
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Gray Grammie, your posts sound as though you are an abused wife. “If only I could leave him home. He won't stay home because he is so afraid of missing out on something or he is convinced I'm doing something behind his back”. You are ALLOWED to go out without him. Take the car keys, walk out and drive off – or call a taxi and get in. You have RIGHTS.

It sounds as though you have more problems in yourself than in his incontinence. Is there some way that you could get some counseling? On the phone to start with, perhaps. You should NOT be letting this man control you.
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anonymous1768885 Aug 11, 2024
Yes she is an abused wife. Her husband wouldnt even let her visit her father by herself.
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I’m so sorry, this sounds like such a difficult situation. I’m wondering if you don’t feel safe as his caregiver. It sounds like it may be time for your children to step in with you and as a united front work toward a safer solution for everyone. It’s very frightening to me that he is driving. I’m no doubt making some assumptions, but I’m concerned for you.
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I don’t want to speak for GG, the OP, but from I understand of her history with hubby, he’s long, probably always, been demanding and controlling. His illness has only exacerbated the situation. She is living with the hope that his illness will take him and resolve the matter. We can all judge her, but none of us have lived it, or fully know her life and reasons for her decisions.
GG, I hope you’ll speak to your adult children, let them know you’re at your breaking point, if that’s where it now is, and make a plan with them to separate yourself from this awful life. If you’re not ready, I still wish you courage and peace
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graygrammie Aug 11, 2024
Daughterof1930, thank you for "getting it."
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You state he's 'not ready' for incontinence briefs and I think that's a bit of a disconnect with your thinking.

Any time you go ANYWHERE your Dh might have a blowout he should be wearing incontinence briefs. That should be a non- negotiable. The time for pandering to his 'wants' at the health consideration has passed.

The LAST TIME we took my FIL to lunch, he had a bowel blowout. It was all over the bench of the restaurant. I looked at FIL and he had this horribly embarrassed guilty look on his face. OF course, the smell hit immediately. I told DH to take his dad to the car and wait for me. (He did so, but did not put down the towels I carried for just this kind of event.)

I quietly got the oldest, most compassionate looking waitress and beckoned her over to the table, explained what had happened and asked for cleaning supplies. LUCKILY, we were seated at the back of the place and there were no clients near us. I was the 'poor soul' who had to clean up. I got some gloves from the waitress and while SHE was willing to help--I didn't let her. I cleaned and then disinfected the spot and threw all the towels away that I had used.

It was beyond horrible and to this day, I don't like to even think about it. I tipped the waitress $50 and left. Making sure the spot he's fouled was as clean as I could get it.

FIL was hugely embarrassed, and I kind of lit in to him. I told him he was going to start wearing depends whether he wanted to or not, I was so tired of taking him places and having to leave b/c he got 'sick'.

Worse still, he insisted on wearing thong style underwear. It was of no use as a 'barrier'. Even plain 'tidey whities' would have helped. A thong is a joke.

My DH sat in silence and later got angry with me for shaming his dad. I told him from now on, HE got to clean up all the accidents.

We so often wait until we're at critical mass before we deal with a problem.

And I hope you let the restaurant know what had happened! This is a serious health issue--and you left it for someone else to find and clean? Yuck.
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Anxietynacy Aug 11, 2024
I'm sure she knows it was wrong, to leave it. I don't believe in judging people that come to us after a mistake that they made and are being honest about that mistake.
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GG. It's one thing to put up with the abuse yourself in your own home, That's your choice.

When others are involved - a possible car or golf cart accident, or exposing others to the hazards of his blowouts - you are making choices that can very negatively affect others. It's not the same ball game.
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