Money is a big problem here. Their income is too much to qualify for assistance and yet they don't have enough money to pay out of pocket. My niece is the primary care giver for my sister (88 with dementia) and her husband (92 and just old). Many meds have been tried to help sedate my sis but they don't work for one reason or another. They try to keep her awake during the day as much as possible. Herbal meds do not work. She either chants or screams for hours. My concern is for my niece and my BIL. With neither one of them getting decent sleep, I'm worried that one or both will wind up ill or....... Suggestions please.
I would see an elder law attorney to work on placement that will accept, for the two of them, their income, with Medicaid applied for once income exhausted.
I am so sorry. Sounds as though this just isn't working, and I don't think there is any longer affordable in home care over more than a couple of hours a few times a week, which just won't help you.
I sure do wish you the best of luck.