What actions should the wife consider taking? This is an unsettling situation for the wife and looking for what others have done when experiencing these situations. Understanding that no two situations are exactly the same, your ideas would be appreciated.
I personally would be afraid to sleep next to someone who had no idea who I was. You never know what is going on in that confused head of theirs. The type of dementia they have is also a key factor. Lewy Body tends to lean towards violent outbursts. It's one thing if you ask him if he knows who you are and he responds no and goes on about his business. I feel it's a different ballgame if he is agitated by your presence and constantly tries to get you to leave. That's worrisome.
Sounds like moving him to memory care might be in your best interest and his.
Fast forward a few years and we read an article in the newspaper where a man, who had Dementia/Alzheimers killed his wife because he was sure she was cheating. We weren't laughing when we read that.
Your subject is giving the warning that his brain is not functioning; she needs to place him in order to guarantee her own safety. Some lessons are NOT taught early enough to save lives. :(
There are certain situations an elderly lady probably shouldn’t stay in and, to me, this is one of them. Like Lealonnie said, they go back further in time.
But, that doesn’t mean that they are logical about that time either.
One morning, I was sitting in front of my FIL helping him go to the bathroom. He told me he was late for work. I asked him how old he thought he was. He said 25. As I was reminding him how to go to the bathroom, he said, why? Is that not right? I said, well you are somewhat older that that. He said, “really? How old am I?” He was very calm and matter of fact so I gently told him 90. He said, “Wow!” We laughed together. Then, I got him talking about work and we finished up. He was definitely back in time, but his brain was so off at that point he made no connection that his younger DIL (I think I was about 40-42) was there holding him up so his beans didn’t go swimming🤣
A few days after that, he grabbed and bruised a caregiver and stepped up to me, this man who wouldn’t even let me vacuum in his presence, who had never even sounded cross to me in my almost 20 years with his son.
My DH was there and seeing his father do that to his wife scared him. We knew it was time. He was mean to my MIL and he would lock them in a room together and he didn’t really know her. She wasn’t strong and it just cut her up, even though she tried to talk him down. We had to protect her, she would never have left him and his real self would have chopped off his arm before he would have hurt her.
He was a true father to me and treated me so, so well. He always trusted me even when he didn’t know who I was, until that moment.
His agitation did not go away for months after that, even though he was always kind to me after that. Even with excellent Teepa Snow trained memory care. We used so many of her suggestions even at home, they were wonderful. It just wasn’t enough.
Just a different perspective from in the trenches. So many good wishes to you. This is such a hard situation, especially for his wife.
As their disease progresses, they may have access only to their first 50 years, then 40, then 30, and so on, until they go back to their childhood memories. This is not an orderly reversal – the person may remember more or less on different days and at different times during the day.
This results eventually, in the person with Alzheimer disease thinking they are much younger than they actually are. It is not as though they realize they are, for example, 81, but they can only remember their first 30 years. Instead, it is as though they are the person that they were at age 30. Consequently, they are confused, because they may not recognize their family, since they are looking for the individuals they were sharing their life with at age 30.
Your friend's husband isn't recognizing his wife because now he's at a point in time, in his mind, when they weren't married and hadn't even met yet. She's best off to go along with him and not insist on telling him she's his wife, b/c he's not going to believe her. She's just a nice friend who's there to help him and to stay with him every day. He may have days when he DOES remember her as his wife, and other days when he does not; she needs to roll with the punches to the best of her ability.
Have your friend read this article on the subject, discussing this very thing:
Dementia & Not Recognizing Spouse or Family, by Judy Cornish
https://thedawnmethod.com/dementia-and-not-recognizing-spouse-or-family/
And this 33 page booklet, Understanding the Dementia Experience, by Jennifer Ghent-Fuller which is a free download and a marvelous explanation of how the mind works of a person suffering from dementia:
https://www.smashwords.com/books/view/210580
Here is a list of useful tips from her e-book I found to be excellent:
The “Dont's”
· Do not reason and argue
· Do not demand that they reason or problem-solve
· Do not demand that they remember
· Do not demand that they get their facts straight
· Do not correct their ideas or scold them
· Do not reorient them
· Do not think that they are being uncooperative on purpose
· Do not think that they really do remember, but are pretending not
to
· Do not use a “bossy” dictatorial attitude in care
· Do not act with impatience
The Do's
· Enter into their frame of reality, or their 'world'
· Be aware of their mood or state of mind
· Use few words and simple phrases
· OR use no words, just friendly gestures and simple motions
· Do everything slowly
· Approach from the front
· Wait for a slow response
· Constantly reassure them that everything is 'OK'
· Keep people with dementia comfortable 'in the moment' - every
moment
· Maximize use of remaining abilities
· Limit TV or radio programs which they may feel are frighteningly
real
· Maintain privacy
· Provide a safe physical environment
Language Needs
· Use short words
· Use clear and simple sentences
· Speak slowly and calmly
· Questions should ask for a “yes” or “no” answer
· Talk about one thing at a time
· Talk about concrete things; not abstract ideas
· Use common phrases
· Always say what you are doing
· If they repeat their question, repeat your answer as you did the
first time · Give them a longer time to process information
· Wait patiently for a response
· Be accepting of inappropriate answers and nonsense words
· Speak softly, soothingly and gently
Best of luck.
(Perhaps not a bullet list) Learning to communicate with a person inflicted with dementia is learning a new language. It is not easy and often the learning curve doesn't keep up with the person needing to learn these new skill sets. What you offer is a really good concise list which people could keep on their refrigerator, in their pocket or purse. It is an excellent referral list.
Never demand.
Do not argue.
So important.
Staying neutral with reflective listening is helpful "I hear you saying . . . "
"I understood you to say . . . "
Thank you,
Gena / Touch Matters
What kind of Dr are you?
Your response indicates to me that you do not know about dementia.
Create a memory book with pictures of him and her together throughout the years of their marriage. Show it to him throughout the day.
In the evening, many seniors have Sundowner's Syndrome. Turn on more lights in the late afternoon. Keep a consistent routine and a consistent environment.
Consult his doctor. He may benefit from a mild anti-anxiety medication to calm the agitation and anxiety.
Create a bedtime routine for him that allows him to go to bed earlier. He may not be as bothered by her presence earlier in the evening and can be asleep before the "I don't recognize you" phase starts.
Create a mini apartment for the wife in the home that she "can go to" when he says it is time for her to leave. He may be ok with her going to "her apartment" when he thinks it is time for her to leave.
Also it is vitally important that you as the wife and caregiver get to understand the disease and how the brain changes to know how to help him control the disease without the disease controlling him and taking over your household.
I hope this proves to be helpful and hope the best for you with your daily caregiving needs.
She would leave the room, go out one door and come back in another way and he was fine.
The other options are....
She can say..."oh, "Sally" had to go to the store, she will be back in a little while"
or
"Sally asked me to come by and see if you wanted to play a game of cards while she went to get her hair done"
The important thing is do not argue saying "don't be silly I am your wife" is not going to help. With dementia you deal with the reality of the moment. You learn to redirect, deflect, walk away, tune out.
DO NOT ARGUE . . .
WITH DEMENTIA YOU DEAL WITH THE REALITY OF THE MOMENT.
YOU LEARN TO REDIRECT, DEFLECT, WALK AWAY, TUNE OUT.
Grandma. You rock --- with expertise, support, education.
I rewrote to emphasize your points which are critically important.
Thank you! Gena / Touch Matters
Thinking she is a stranger is not unusual. Like said, tell a little white lie.
I would consult with a geriatric psychiatrist about meds to counteract the agitation. Have the spouse watch some Teepa Snow videos about dealing with dementia patients. She may need to agree that she's "a friend here to keep you safe because the doctor said you need someone around in case you fall" or some other therapeutic fib that will lessen the agitation and upset around this "stranger".