Every time my mom falls, sneezes, vomits, coughs, or stumbles, her memory care facility packs her off in an ambulance and calls me to go retrieve her. Nine times out of ten, it's a minor illness or injury that you wouldn't even see a doctor for and it always seems to be at night. They never admit her, nor do they ever prescribe meds. During the whole time she's in the ER, she demands to pee every 10 minutes, flirts with any male caregivers, and tells her life story to any sympathetic ear - including, of course, how horrible her children are. I love my mom, but I hate sitting in the ER for hours in the middle of the night, watching this fiasco and knowing I have to go to work the next morning. I'm 55 years old with real health issues of my own and this is taking a toll. My brother refuses to go and my sister makes excuses why she can't, so it almost always falls on me. I'm due for a knee replacement very soon and I don't know what's going to happen when I can't drive and Mom makes her monthly visit to the ER.
My mom lives alone now and mis-manages alcoholic beverages and medications and has turned into a drama queen. She has called 911 four times in the last year and has been in the ER, short-stay wing, behavioral health center, etc. I have learned to stay away from the hospital as much as possible because they are quick to pawn her drama off onto me as quickly as possible to get rid of her.
NIGHTMARE.
Once he went to AL I thought it would die down a bit. I was wrong. Now they know to just call medical transport to bring him back. Costing him $75 a pop. I had to cut off his ER trips involving me. I stopped running to the hospital. If they move him to rehab I will go get clothing for him and bring it. Rehab is his version of Club Med.
If your LO doesn't qualify for Hospice, I'd explore Palliative Care and then make sure those who are implementing it understand what it means and that the facility understands it too. I've read that some companies offer Hospice and Palliative Care in the same agency.
Have you looked into palliative care?