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I have been helping my husband for almost 20 years with chronic illnesses probably caused by his lifestyle choices. He is now under hospice care at home with CHF and pressure ulcers that do not heal due to his peripheral neuropathy caused by rheumatoid arthritis. I do have support from family and friends but as you guys probably know they can only offer so much understanding as they do not "walk in our shoes" - any advice on how to handle this "limbo" stage of our lives would be appreciated - I see lot of posts from sons and daughters who are caregivers for their parents but I guess this is a unique situation or maybe not?
Sherstar, we have many posters who are caring for their spouse, often husband and quite often in their 70s. As your DH has hospice, do you know how long his life is expected to stay in this ‘limbo’? What advice are you looking for – day care options, in home care options, behavior problems, facility placement, etc etc etc.

You are a new poster so you may not have found how much information there is on the site. If you click on ‘caregiving topics’ under ‘resources’ at the top of the screen, you will get an alphabet list to click on. That will give you articles and old discussions about a very wide range of issues. Alternatively you can click on the magnifying glass at the top right of the screen, enter any term that seems relevant, and find every old thread that contains those words. That may give you ideas, of even just a way to be a bit clearer about what advice might be helpful. Best wishes, Margaret
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