Since setting "boundaries" for myself, reading many eldercare books, and posting/reading on this forum, I realize that my unhappy & controlling mother in an assisted living facility will never be happy again. She's calling our phones (goes to voicemail), threatening to not take her medications, & wanting her living will to be utilized so she can die (doesn't understand what LW truly is). I hear again ALL the bad things about me & her AL place that she's been saying for 2 years. It's a broken record & I've tried it all! She's asked to go to an Internal Medicine dr, so it's coming up in 3 weeks. Now, she's saying cancel appointments, not taking meds, and requesting to die. These are ALL reactionary stabs at me because she wants out of this assisted living place (nice place) & move out on her own (impossible). She's threatening to get her church involved in this & still threatening to hire a lawyer! This manipulative behavior is her way of gaining control of a life that hasn't been happy, loving, or positive in decades. She's almost 89, hasn't been officially diagnosed with dementia, & is refusing any type of depression/anxiety medication except low dose of Xanax at night. The NP knows she's just uncooperative & says unfortunately, this is all she can do.
I know she needs a psych evaluation. How do I get her this without taking her myself (she'll be kicking & screaming)? Could the AL facility & NP make this happen? My presence as her durable power of attorney would only make this worse for her. She despises me, hits me, curses me, & blames me for all her ills.
Is there an agency I can see for guidance?
You guys have been awesome & gotten me this far. I truly appreciate every piece of advice!
You've gotten some really good answers, and great that you have set boundaries. If she is saying she is ready to die, perhaps the best answer is to accept that rather than looking at it as a "reactionary stab" although I've no doubt it feels like that. After all this abuse and bad feeling, aren't you ready for her to die too?!
I just shared this link on another thread. It just came across on my browser feed and I'm still processing it, but it seems relevant - the thought process about when we are ready to say "enough" and just opt for palliative measures. I realize this would be your mom's decision process since she still appears to have capacity (though I'm not suggesting you even talk to her about this as it would probably be a disaster!), but you might find the discussion in this article helpful for managing/calming your own thoughts about it all:
https://getpocket.com/explore/item/why-i-hope-to-die-at-75
Good luck!
Jane
I am good with my mom not wishing to prolong her life; however, with her dementia or whatever is going on, she's off & on with her desires. It's difficult to know. One month she's DEMANDING a new doctor and then the next month, she tells the visiting NP that she's fine with her as PC. Last message I received was cancel doctor appointments! Think I will.
I rescued mthr and placed her in a great memory care. We worked so hard to untangle the fraud, including getting a sizable loan back from the manager of her credit union! Mthr continued to be evil and the ladies here helped me set boundaries about visiting her.
The most important realization I had regarding mthr's hoarding and mental illness is that mthr needs to be considered as an independent person. I can't see her as an extension or any part of myself. She can make her choices and I can disagree with them. But I can't control her or change her. I can respect her bad choices and make decisions based on what she said she wants.
If your mthr does not want to take meds for CHF, I say you allow it. It's a horrible death anyway, and if she's ready for it, let her go. If this is just to manipulate you, she is simply speeding up the timeline she will travel anyway. Stepping away from treatment may allow her to "go home" to heaven sooner as well. I say let her make her own bed, no matter the reasons for her making it the way she does.
Do you really want to put your son in the position that he has to care for you, at the expense of his future?
Her church associate pastor visits, but he has no idea she's this far off...I suppose showtiming kicks in.
I'm praying her visiting NP can call soon & that AL can get her a psych evaluation somewhere. IF it's in an office outside of AL, she'll probably refuse. So, hoping it's a visiting nurse who can do a sneaky evaluation. Fingers Crossed!
I am so sorry to hear all of this. I thought I was was going through a bad time living under the same roof with my 83 yr old manipulative and controlling mom but now I understand it can always get worse. I have put my Mom on a waiting list for an assisted living place (and she guilts me for it every day) and I was thinking, well hoping, that once I got my mother in there that all of my stress, worries, and troubles would be over. But, it sounds like that just because you put a parent in AL doesn't mean that it's the end of stress, worries, and troubles but could be just another load of the same if not worse! This makes me want to just go pack my bags and hit the dusty trail! God help us all. Is there just no hope? Don't "OUR lives matter too"? We are doing our best as daughters, and yes I'm sure our mom's are going through some things too and feel like they don't have any control over their own lives. And yeah, I'm sure when we get to this point we will have some of the same feelings, but so help me God, I will not put my children through what I have been put through. When my time comes, I will check my own self into AL. Don't beat yourself up. You are doing the best that you can, especially under the circumstances with your mom's behavior. I will keep you in my prayers and I hope things will get better for you soon.
If it's for psych evaluation & possible stay, I'm pretty sure her insurance would pay for ambulance. She'd just be so mad but we gotta do what we're forced to do.
I would be on the phone or with her and when it started I would say "I love you mom, but I will no longer take this from you. Good bye" and leave or hang up the phone.
One time on the phone she told me "i'll kill myself and then you'll be happy" and I said "no, I love you but there are two of us in this relationship" She kept on with the "I'll kill myself" and I told her "if you are serious, I'm going to end the call and dial 911 to have someone come and get you to the hospital to stabilize you" well, she backed off quickly.
She started telling her building manager that I was a horrible daughter and she wanted to die. Of course the building manager called me "how could I be so insensible" I cut her off "there is more here that you don't know. If she threatens to kill herself - you should dial 911 so you have no liability"
Just keep your boundaries. Be polite and loving to your mom. But do not engage whenever she starts in on whatever manipulation of the day she tries. Tell her you love her but you have to go.
10 years later my mom and I actually get along really well. It took time and a lot of emotion but she respects my boundaries. She knows what will happen if she does not because I'm consistent in enforcing them. Good luck
She also feels that death is really all she has to look forward to. Can you imagine? And maybe even all she wants, although it scares her.
It is a tormented life if you can call it a life. And she also feels like a burden, she feels her family doesn’t love her or cares about her (not saying it is true, it is what she likely thinks).
Although you think she is threatening with dying out of a desperate desire for control, I think at this point in her life there is actually a lot of truth behind the desire to die she is expressing. She refuses the medication for depression because depression makes her not to want to seek any help.
Now you might be thinking “So she is a saint, and I am the bad guy”? And, “Even if all that is true, why is she so incredibly angry at me? All I have done is to try to help her, why Is she trying to make my life miserable?”
The answer is, no she is not a saint, and neither are you, neither one of us is a saint. We are just human beings trying to do our best. And you are not a bad guy at all, you’re a daughter that is exhausted, hurt, and really trying to do her best.
I know how you feel, I have lived it, I live it in certain days more than others. But if there is something I know without the shadow of a doubt is that I really have no clue how I would deal with all my mom is dealing with at this stage of life. ZERO idea.
My mom is the strongest person I know, and if she is still alive is exactly because of her strength and her sense of discipline.
I think that if alll of us thought for a moment how we would deal with all that our elderly loved ones go through, we would likely not know the answer. Would we be miserable and behave accordingly? Would we not want to be bothered and demand constant attention from those closer to us? Would we want to die too?
What do you think? I think the odds are pretty high that we would react very similarly to how our mother or our father, or any other loved one would.
So, all I am suggesting is that you take an step back, and remember that your mom is as fragile of a human being as you are, being in her shoes right now is a very tall task. Don’t forget that Marilyn.
Having remembered that, I think a very valuable resource you have is to give her some of what she is so much hoping for but in a very honest and well managed way, what I mean by that is in a way that she can truly feel your love and relate with it. As daughters and sons we know how to go back to our basic way of giving and receiving love and she will feel it if you go to her without resentment, just with love. Then talk to her, all patients with dementia or even Alzheimer’s are able to reach a point of calmness if they feel at peace, at least for a while, and in that moment you may be able to reconnect with your mom and talk about important things, for example her living arrangements. If she is calmed enough and if you talk to her as her loving daughter you can get her to realize why it helps you and it gives you peace to know she is well taken care of, since you cannot do it even though you would love to be able to. I promise if you get her to reach that moment of a little peace you’ll be able to communicate better with her.
Even if nothing happens it will be really good for both of you to remember and act as you used to. May God bless you both!
2 - her threat to die is manipulation 101 - this is her trying to prevent you from keeping her safe or as she sees it 'WHAT SHE WANTS' but many times we/you have to do as is necessary but not what the person wants - would you let your 3 year old grand-daughter do what mom asks ..... no she needs more supervision than that child
3 - she MIGHT remember what you have done but if you can tweek/manipulate the outcome then you might be where she is happy ..... don't bet your house on it
I once was asked to drive a woman who was not right in the head. There was no way I was going to do that for fear for my life. [Insert- how do I know she wouldn't have pulled a knife on me?]
Thank you, Llamalover47!
She has walked this path; I have not.
All of you are a blessing to me.
Stick to what Barb wrote. If they ask you to take your mother the answer is "No". She is violent towards me. I cannot endanger myself, nor provide adequate care for her."
It is your mother's choice to take her meds or not . There is nothing you can do about that. Don't let her use it to manipulate you.
((((Hugs))))) I know it is hard but you can do it, and need to
If you are "asked" to take her, you say "No, I can't possibly do that; she's violent towards me."
If she needs to be transported in an ambulance, all the better.
If they threaten that "the state will take over her care" you say "yes, thank you, that would be a relief".
Thank you!!
You are within your rights to just step away and send the occasional card. That would be an acknowledgement on your part that you can't make your mom happy. She's safe and cared for in AL; as far as I understand, you've fulfilled your responsibility as a dutiful daughter of a mother with lifelong mental illness.
See, she's competent. She is an adult with choices and agency- e.g., she is allowed to exercise her own powers of decision-making to say Yes, I will not take meds even if it endangers my life".
Uunless she's NOT competent. That really can only get determined through a thorough psych eval. How do you get That? You really need to talk to the NP about that.
Just wanted to thank you for posting about this issue. There were so many helpful answers given. Hope things do smooth out for you. Please keep us posted.
It's an eye-opener to say I'm in a toxic relationship. I am a highly educated person but have let this take over so many facets of my life. Keep praying for me. I truly appreciate it!
Then you are out of the picture and it now is between her and God!
By the way, a service of healing can take on many different aspects of a persons spiritual life.
It may be that she needs more social stemulation. My mother's MC has been excellent at making sure she stays engaged socially and mentally with a variety of activities. As she put it, "I have to go to bed early because if I don't get up for breakfast with the girls, I don't eat." I can see that if she had been placed in AL, she would have been very isolated and without routine in her daily life this would have exasperated her condition. MC makes sure she has daily routine, meds, and social experiences. Also, although she was still able to cook and personally care for herself, we were unaware at how stressed out she was by having to take care of her house, dog and personal self.. all of which had gone downhill in the past year. Just by not having the stress of it all, her mood and personality improved significantly.
Her favorite introduction when she calls is It's your mother. You better get over here. These people don't know what they're doing! YOU stuck me over here. I'm not going to stand for it. I'm glad YOUR daddy is not having to see how YOU'RE handling this and spending all his hard-earned money! Then, she proceeds with all my sins that she's twisted. I rarely recognize where these stories come from. According to her, I've always been a problem & we've never gotten along....really???
I have a question: Why isn't the facility taking the action and calling in a phych to evaluate her. The doctor has the right to do this and i am told that every facility has them on staff. I would request that if they didn't approach this matter than you should. don't talk to the nurses talk directly to the doctor.
Second, i agree with many of the caregivers responses. I would simply tell her she has the right to do what she wishes with her furture. If she choices not to take her medicine, call a lawyer, etc, that is her choice, but when it comes to you, her abuse physically and or mentally is your choice. I would state if you continue to abuse me in these manners i will not come and visit. I will continue to call and speak to the nurses on your health issues and behavior. I will do this because i love and care about you. This is your choice and you need to think it out well. Your family loves you but if you choice to push us away we will have no choice but to stay away. I hope you decide to have a loving healthy relationship with me as i would like with you. than i would say I have to go now , take care of yourself. and leave...............
I would keep in touch with the facility daily but stay away until you hear positive news from the nurses.
This puts the ball in her park now . Maybe staying away and being alone will clear her head, but if it doesn't i wouldn't step in her room until she grows up...............
good luck.....
Sorry this is happening. For me, it screams Narcissism. You are allowed to choose to be mentally healthy. You are allowed to disengage, report threats, enlist appropriate resources.
In recent reading on the Hemingway family, I saw many parallels to my own birth family, who I have very little contact with. While my family has been plagued with Narcissism and Flying Monkeys behavior, severe scapegoating targeted at yours truly, there is also the underlying mental illness, bipolar disorder, BPD, depression, afflicting my family. Several relatives were successful suicides. Several more attempted and were unsuccessful. All threats of self harm must be taken seriously. Please put the necessary phone numbers into your phone, to be ready for the next threat. Responders will be able to pull together medical care for suicidal people quickly, once hospitals, doctors, clinics become involved. Let them do what they do. As one whose childhood was constantly upended by nocturnal parental fighting, including murder and suicide attempts, I didn’t know, as a child, that it wasn’t normal for Dad to destroy the family car in a suicide attempt, or mother to go after father with scissors in a murderous rage. It was accepted part of living, for phone calls to Crisis Hot Lines to bring teams to the house, for suicide prevention response. I suggest you be prepared, notify your best option for suicide threat, and back away, to protect you. You don’t deserve the emotional blackmail. There is so much more to life.
Bless you for ensuring your race. You must be an extremely strong lady. Thanks for sharing.
She’s using you as entertainment I feel you need to stop being responsible for her and stop saying “How high?” when she says jump. I bet there is a girl inside you just busting to say NO!!
Since she has CHF, we visit the hospital a couple times each year. I've already instructed ALF to transport her by ambulance the next time. At first, I thought this isn't Christ-like, but I've had enough. She will be fine, after the embarrassment.
And, off and on, throughout the years, but especially now, she says. "I just need to put a gun to my head," She had a brother do that after his health failed.
I've jumped hoops to try & get her dr requests made for her to pitch fits & refuse to go. So, at this point, I'll cancel.
Eearlier I removed her sharp knife from her room when she was not looking. The facility had someone come and talk to her a few times. She insists she is not suicidal, but she throws around these ideas, perhaps because she is unhappy with the world?