Obviously I’m overwhelmed emotionally. Today is Friday. I told them early next week would give me time to get things together. I have been touring care facilities & getting our ducks in a row, but had been repeatedly told no one had a spot for a man. Now they can take him today? I don’t know where to start. He has anosognosia, so complete denial he has any problem other than occasional “brain fog”. Refuses to take any medication other than Xanax. Last neuro-psych evaluation puts him at moderate dementia with increasing Parkinson’s symptoms. He is extremely agitated at night although he hasn’t been physically violent (yet). It’s a step that needed taken. At the moment my head is spinning.
This care center is about an hour from our home, but has a sister facility in our town that he can be transferred to when they have an opening, so he shouldn’t be so far away forever. He doesn’t know I’m placing him. Although I can discreetly pack some clothes I’m unsure how to pack some of his personal items he would probably like to have. I can make additional trips early on to take him some things, although I’m sure he’ll be angry with me so I doubt I can stick around to help set up his room. Should I just pack some small things for now or what do you recommend? He can take things like his recliner, bedside table, TV, laptop, etc. though I’ve been discouraged from taking his cell phone, Do I wait on taking the bigger things or would that help him settle in sooner? It’s going to be hard enough to move him, much less set him off by seeing his things packed in the car, but I can’t take them ahead of time. How do you do it? I can’t think of anyone off hand that could come to the house to move the stuff once I get him out the door, although I could make a second trip the same day. I appreciate any suggestions. It will be hard enough on all of us as it is.
Perhaps a friend or relative can be loading up a moving van while you take your hubby out to breakfast, or lunch. The friend can drive behind the moving van.
The friend can direct the movers to set up the room. You can join the friend, while the facility keeps hubby busy.
No matter how it goes, it will be hard. Maybe for quite some time.
Come back here. We will listen.
Taking him this afternoon seems sudden -- I'd take him tomorrow. Don't worry about packing things unless you can do it when he's asleep. Make two trips tomorrow if needed -- one with him, then another with his clothes and toiletries. His bigger items like the chair, laptop, etc. can wait until next week. You can find someone to assist with that by then.
Just breathe -- I know it's really, really hard.
Obviously, I was naive in thinking that I could set his room up close to what he has at home. And I understand that he is not in the general population of the home where he might have more liberties, he is in the locked dementia unit. But I thought if he had the comforts of home, he might settle in better. I couldn't even put his clothes away. They said they would unpack for him so they would know what he had. The courtyard isn't accessible as the state deemed the walking path a tripping hazard, so unless I took him somewhere, he can't go outside there.
I was already thinking about all that he would be giving up to move into a facility - his dog, his family, his home, his freedom. And I know that the Alzheimer's will eventually take all that, but every time they told me what he couldn't have out of what little I took there, it was just soul crushing. They tried to reassure me that its harder on the family and that the residents usually adjust within a few days, but I just couldn't picture leaving him there with virtually nothing, completely out of his element. Then they said that I would notice what seemed like a significant decline once he was placed, but it wasn't that he really declined, it would be because I didn't realize how much I actually did for him at home, so not to be too upset by it. I think he'd decline out of sheer boredom & lack of stimulation. It was awful. I brought his stuff back home with me and ugly cried all the way. I hadn't actually toured this home, but it's a sister facility to one I had. I don't remember residents' rooms anywhere being so empty. Ultimately, I let them know I would not be bringing him in. Unless he gets physically violent or significantly declines at home, I'll keep him home longer and just do what I can to make it work, but this place was not the right one for us.
That facility you went to seemed like a very restrictive MC unit . Perhaps others aren’t as restrictive about having some personal things . Perhaps some have more than one level of care . Maybe keep looking as you need to be safe too and to take care of yourself .
Best of luck .
Also if you make additional trips with additional items , he may still be very angry . I made that mistake with my mother . It didn’t go well , she was very agitated when I came.
So the next time I came , I called the facility from the parking lot . They sent someone out to get the items from me and they brought them to my mother’s room .
Tough situation . I feel so bad no one can help you with the move . Best of luck .
Good luck, and I hope it goes well.
I know two families who have been waiting for 6+ months to get their loved ones into memory care and it's taking a toll on them all. One family the mom nearly burned her house down were it not for a neighbor seeing smoke coming from the kitchen window. The other family the dad is becoming belligerent - threw his walker at his daughter - and he's sundowning earlier and earlier in the afternoon and the meds are no longer controlling his symptoms.
Just because he calls doesn't mean you need to answer the phone. Again, his brain is broken and your conversation will not change that. You cannot reason with a broken brain. He will get the care he needs. You will get peace of mind knowing he's where he needs to be.
It does not sound like your husband has been prepared and won't be ready this soon. It also sounds as if you are overwhelmed, and your head is spinning. Maybe you are not ready to be rushed into accommodating the facility's offer.
At least not today. Legally, is he beyond his right to receive "informed consent?"
I do think that you need the help of the facility.
However, if you think you can hold on until a room opens up in the nearby facility, you will not have to move him again. That would be a benefit because moving someone with dementia and confusion does not help them.
What is the requirement on taking away his cell phone? Isn't that a red flag?
And you said a dementia facility. Is that a locked ward in Memory Care?
I would wait. When dH becomes violent, (call 911 when he is agitated), he can be placed in a behavioral hospital, get his meds regulated. Then, the transfer to the dementia unit may be easier; him not blaming you; maybe he will cooperate since he cannot come home. We hear all the time about how facilities won't take someone who is violent or a behavioral risk. Have they met him, done an assessment?
Hoping this can go smoothly for you both. Of course you do not want to be in danger, ever. Do what you need to do to protect yourself and your teen living at home. Having someone, almost anyone, nearby as a witness may help.
Guess I don't really have a good answer for you.
Have you consulted an attorney about a patient's rights?
Can the dementia unit legally hold him against his will?
But wishing you and your husband well.
You do need help, do not try to do this on your own.
It's always better to handle the big stuff before the crisis, if at all possible IMO.
I hate listening to my husband's demands to come home, but I also know that I could never care for him without full-time help. He is very resistant to my suggestions and feels that he can do things that just are not safe. I would never be able to keep him off the stairs, and I would definitely need someone to stay awake at night; he often gets up in the middle of the night and thinks he needs to go to work. The hour's drive will give you some time alone to listen to the radio or reflect on things other than his care.
It's one thing to care for someone who can cooperate in his care; it's another to care for one who doesn't think he needs care. Your task at this point is to keep him safe and take care of yourself.
By the way, I'm not too good at following my own advice. I still obsess about bringing my husband home.
Good luck!
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