My sister has been caring for Mom for years. Mom has demetia and is a diabetic. She needs to be in a nursing home. She was in one for a month and a half and thrived. How can I make my sister send her where she needs to go? My sister is a good loving person and cares for Mom, but needs the money. I believe this is a big part of why she won't let Mom go-Mom's pension hels support the household. I am quite sure I am not the first person to be in a situation like this. Any advice from anyone?
Loving your parent is not enough to become the best and right caregiver for mom or dad. It comes with all different skills and knowledge. If you feel that your mother does not have proper care you should talk to your sister and ask if she would be willing to learn how to be that best caregiver. Find local support group for her to attend. Bring palliative care to help her. Maybe even find short term classes for caregiver where your sister can learn and become more professional.
My dad lived with me for 5 years and financially we were roommates. His income definitely contributed to the household as I would have never gotten that house had it not been for the fact that I needed a place where I could care for my dad. Once my dad went downhill and I couldn't care for him anymore he ended up in a NH by way of the hospital. Financially the bottom dropped out from underneath me and it was a terrifying mess. Lesson? Never hitch yourself financially to an elderly person because circumstances can change in an instant. It was non-stop stress for many weeks, packing up the house, finding a new place to live, getting a job....But I did it. It can be done. Caring for someone with dementia vs not having the financial help may be a decision your sister doesn't want to make and apparently caring for your mom with dementia seems to outweigh the financial stress if your mom moved into a nursing home.
Maybe your sister simply just doesn't know as much of the technical caregiving "stuff" your mother received in the nursing home. Maybe she needs some caregiver training to better understand diabetes: the meds, how to cook for it, etc. Maybe your sister needs some dementia training- many local communities offer conferences and trainings on how to care for someone with dementia. (Or check out Teepa Snow on her website or on YouTube- she's fantastic!) I'd suggest that you AND your sister do any training together if possible, so she's not being singled out or made to feel like she's not doing a good job. Even though you are not the full-time caregiver for your mom, you are a care partner, and this is info that would be helpful for you as well.
Maybe your sister would be able to provide even better care if she had some time to herself. Many people who are not caregivers cannot fathom how much time, effort & energy goes into caregiving. Many caregivers get sick and pass away before their care receiver, simply because they stop taking care of their own physical, emotional and mental health needs. If you live in the area, maybe you or other family members could spend time with your mother to give your sister regular breaks. Also many states have something called the Family Caregiver Support Program, which may be able to provide respite care to family caregivers like your sister. This respite could be in the home, at a day care facility, or even short-term overnight stays at care facilities. The point is to give the caregiver some time to care for him- or herself; like cars, we people can't run on empty gas tanks. Check with your local Area Agency on Aging for more information on Family Caregiver Support Programs, or other local resources for caregivers.
And I agree with FiveStarCares; maybe you could sit down with your sister and let hre know your concerns and that you are here to support her in providing the best care for mom. Ask your sister what *she* feels she needs in order to do that, and then try to help her as best you can.
I know as I have found myself in the same situation. Family members want my 88 year old father to live with my 93 year old aunt. My attorneys are saying that there isn't much I can do,
2. The assessment should consider not only your mother's health and symptoms, but also the possibility that you have raised that the motivations of others (your sister and you, in particular) may be affecting the nature of the care being given.
3. If the assessment concludes that the situation should change, then you have several options: 1) if there is a Power of Attorney for Health Care, the agent under that power should probably follow the advice of the assessment. If that is not you, then the agent should be provided with the assessment; 2) if the agent does not follow the assessment, most states have procedures in their Probate Codes to involve a judge to compel the agent to provide for the principal as required in the principal's best interest; 3) if there is no Power of Attorney for Health Care (or Advance Health Care directive), and Mom has capacity, she can decide whether to follow the instructions of the report; 4) if Mom does not have capacity and there is no POAHC or AHCD, then an interested party (varies from State to State, but generally a child will have standing as an interested party) can bring a conservatorship proceeding to appoint a conservator who can legally make decisions on behalf of an incapacitated person (conservatee or ward). This is known as a "conservatorship over the person." The person receiving the pension and paying the caregiver(s) is called the "conservator over the estate." They can be the same person or you can seek to have an independent person serve in each capacity to prevent the motivations of a financially interested person from clouding their judgment about what is in the best interest of the principal.
What is a reason someone needs to be pulled out of the comfort of a loving home into a nursing home? Do you suspect abuse? I can see if if the caregiver is ill or elderly themselves of course. My Moms doctor told me many times how lucky my Mom is. A daughters care is better than a nursing home and no one does it for the money. It might have started out that way but it wouldnt have lasted! omg I would pay a million bucks (that I dont have, lol) to have someone take as good as care of Mom as I do!! Nursing homes dont give the same care a daughter would. For your Moms best interest, she should stay put, and help her, give her a weekend off a month or something.
I am not accusing you of this---My sister also wanted my Mom in a nursing home, you know why? so that SHE could visit whenever SHE wanted without coming into my home. This was a totaly selfish act on her part. SHE wants to "drop by" when "she" wants and she has to ask me now and she hates that. (yes a control thing) So, my Mom should go to a nursing home , a strange place, with all different Aides, less care, germs and infections, for my sister? I think not. My sister is a nurse and has never once offered to help me, I asked and begged for years, always an excuse! Seriously, just talk to her, help her and be ever SO grateful that she is taking care of your Mother! Being a daughter of a Mom in my home with late stage Alz/dementia I can tell you its the hardest job in the world. There is no planned breaks, there is nighttime bedwetting even though you spent a hundred dollars on the best diapers, there is cooking , cleaning, feeding, pureeing, laundry up the ying yang, hand holding when there is confusion, singing to them, and diareahea on your feet, and we still do it, I would say thats called Unconditional Love. Help or hire help for your sister, she certainly deserves it, and be ever so thankful to her, she deserves it. Again, the Golden Rule, what would you want if you were in Mom's shoes? I dont know about others but when I get my Mom all cleaned up in her nice warm nightgown in bed in her nice warm bed, and sing her to sleep, I feel so good too, makes it all worth it, some how! lol
But then there's the definition of what makes mother happy. Much, much harder to put your finger on. Especially when the person has dementia and can't say for herself; but actually it is hard for the person anyway. What's she supposed to say? "I can't stand my daughter la second longer, she drives me nuts and I'm bored out of my skull"? It's never going to happen.
I'm facing an issue similar to this, except that it's I who am having the argument with myself. We're about to move house. In deciding where we go next, I aim to give mother the free choice of: either buy her own home and I'll live with her as her caregiver; or move to a good residential setting and I'll hover around, or skip town, depending on how well she settles in. We're having a look at a few options, and I hope she'll try them out. Sincerely, I am content with either. But I'm not optimistic that she'll base her choice on her own, real wishes. Far more likely she'll try to guess what I, or my siblings, or the cat, or the postman come to that, think is best.
Msweet, my rudeness above notwithstanding, I do understand your view that for your mother the pros and cons come down in favour of the NH: it's a valid point of view, and a good NH can be an excellent place for a person with dementia to reach the end of her days. They can accommodate to her changing needs, they can call on extra resources - there are all kinds of points in their favour.
But at the NH they don't love her. And for many old people the limitations of a family home are more than offset by just being at home, not 'in a home'. I think probably the best thing you can do is research alternatives and be ready to suggest them if and when your sister runs out of steam. And meanwhile keep in close touch, and be nice (I'm sure you are already). Best of luck, sorry if I've rambled.
But, convincing your sister of the benefits is tough. Some people like to micro manage the nursing home staff. I made that mistake several years ago. I have stepped back, now.
Take over care of your mom for a week and give your sister a vacation (which she probably needs) and you will also see hands on what it is like for a week (years are even harder).
Until you are supportive, your sister may feel like she is both doing battle to protect herself and mom, while taking care of mom. All the while her employable skills ebb away.
Start with, "Is there anything I can help you with?"