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My mom is 86 and has lived in a memory care unit for 3 yrs now. She is always unhappy and scared. Her memory isn't that bad yet, but she is getting more forgetful. She still knows the people around her and other things.


Her worst problem is anxiety! She has always had anxiety issues for most of her life, but they seem to be getting much worse. She takes the highest dose of Xanax that she can safely take and she takes it 4 times a day. She also takes a pill for depression once a day at night. The Xanax isn't new — she has taken it for at least 10 yrs.


She is very argumentative with me and staff. I go see her every other day, but she is never happy. It's getting harder to harder to visit her. I start the visit in a happy and good mood, but 10 mins into the visit she is complaining and being mean. I leave mentally drained after every visit. Sometimes I sit in the parking lot before I go in and just wish I didn't have to go. Then the guilt eats me up! I am the only visitor she gets because my children stopped going because she gets them so upset and my brother and sister live in other states.


Mom has always had macular degeneration and it's end-stage, so her vision is very poor. I bought her a bigger TV, but she has no interest in it. I take her to activities when I am there, but she complains most of the time (though she does participate).


I just don't know what to do anymore and I don't think the staff does, either. It's terrible for her to be so anxious all day long. That is very hard on her.


I bring her to my house once in a while, but that is probably coming to an end, too, because the last holiday was so bad with her that everyone was upset. I always host the family and I can't have her ruining everyone's holiday.


I am trying to come up with things that she can do to occupy her time when I'm not there and when there isn't an activity going on, but her vision makes things hard. Also, she has no coping skills and she constantly wants someone with her and that is impossible.


I would take any suggestions anyone has that might help make things at least tolerable for her. I am all out of ideas. Thank you for reading; I know this was long!

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She needs a specialist to evaluate her medications. The Xanax may not be working any more because she has been on it so long. However it is addictive so she can't just wean off of it without oversight. She may need another medication in addition to it, or a combination of different medications. Ask the facility if they can have someone come in, and then for the staff to monitor her progress and get ongoing guidance until they have the right combination.

In the meantime, you can and should cut back on your visits with her. You may be unintentionally triggering her complaints and negativity, so some breaks may be healthy for her as well as for you.
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Reply to MG8522
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Is her anxiety related to fidgeting? If so, she needs to keep her hands busy. Busy hands keep the mind focused. There's special blankets/ items for this and squishy toys. I tried those pop caps or whatever they are,mom didn't like them. I got a sponge toy that she squeezed and it really helped. It was like one half of the brain races and the other half the hands were. I've heard dolls and stuffed animals can help calm down their anxiety too. I don't know if it's a mental block but they feel more relaxed when they've got something to do or care for? It might be a comfort to have something there so she doesn't feel all alone. A stuffed cat/dog,pony,doll with long hair to brush? Have her name it so you can ask her how's ___ doing? There's other things than meds that can help. How about one of those sound machines? Something like that app called Calm?
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tam1086 Feb 17, 2025
I did get her and cat that is life like...It meows and purrs when she pets it and she does enjoy that. She always had cats when she was at home. I wanted to get a radio for her room and I am currently looking for one that she can use. Her vision is so bad that I will have to have it be easy for her to turn on and off. I don't know if she will actually use it but if it helps I will try it. I have touch lamps in her room so she doesn't have to fumble with switches and I have a large touch button that tells her the time and day and she does use it. Her dementia isn't too severe yet her anxiety is her biggest obstacle.
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Consider having a geriatric psychiatrist added to her care team. My mother is seen by a PA from that office.

The PA comes right to her facility. The Director of Nursing at your Mom's facility can make that happen.
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Reply to cxmoody
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Is her hearing okay? Audio books on CD, smart phone or even cassette tapes might hold her attention for a while. It migjt even improve her mood if you bring ones yourself. Thrift stores usually have a decent selection for a reasonable price.
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Reply to MyNameIsTrouble
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JanPeck123 Feb 16, 2025
I agree about music being calming. Especially music that she enjoyed when younger.
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Hi
it sounds like her medication needs changing
It doesn’t appear to be working
time to speak to her doctor and mention her bad mood swings
yes- there comes a time when you have to forget about any unfounded guilt and realise that fir your mental health and family it may not be wise for mother to stay again if it’s causing issues
maybe sone calming music left on did your mum
if she has a tv can it be tuned into you tube and Google calming music ?
Will a little present cheer her up alter her mood any
a tiny cake if her health allows
divert attention to something else
if it’s getting too much it screams you need a break
tell her you are going on holiday and be back soon n just rest and switch off?
sounds tho like the doctor needs to be consulted
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Reply to Jenny10
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Ask for the psychiatrist to reevaluate her. She definitely needs readjustment of her medications.
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Reply to Taarna
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Medical question, this, because she is going to require some medication for her anxiety or anxiety/depression. MD may start with a trial low dose anti-depressant. They can really help those for whom they work, but this really is a medical issue for medical intervention. And that requires knowing the patient.

Guilt is entirely inappropriate to this situation. You didn't cause this. You can't fix this. Guilt requires causation and a refusal, out of evil intent, to fix things. The proper word is "grief" and this is all worth mourning. Your mom is agitated and unhappy and you can fix it. She is in pain and you are standing witness to it. That's very painful, but you aren't a felon. Words are VERY important, so don't use "guilt".

Do know that there are very few fixes when things get this bad. The only answer is peace and peace comes with death. Meanwhile you have to do the best you can with medical help, but in aging in this country or really anywhere else there is no happiness. It is a time of loss and pain and grieving. I am so very sorry.
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MissesJ Feb 10, 2025
“Your mom is agitated and unhappy and you can fix it.”

Oops, I’m sure you meant cannot fix it.
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If you are using the facilities Dr to manage her meds, I suggest a Neurologist. Facility Doctors are MDs. They know a little about everything and a lot about nothing. I agree her Meds may not be working because she has been on them so long.

I agree about the fidget blankets and maybe a doll or stuffed animal. The audio books? With my Mom, her mind jumped around. She would be talking and I'd answer back and then she would look at me like I was nuts because, she was now on a different subject. I don't think a Dementia mind could follow an audio book. I don't have Dementia and can't.
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Reply to JoAnn29
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Hi.

Sounds as you are in the exact same pattern as I am. Mom has been in AL since mid November. We continue to work with her doctor on medication to help with the anxiety, after months of Xanax unsuccessful. As well, Seroquel unsuccessful. We're now trying Risperidone in liquid form. It's only been a couple of weeks, and mom is known to often refuse her medications so we don't really have a good handle on this yet. I am considering bringing her back home but know this comes with a great deal of challenges. But as I'm with you, as I'm at AL so often, thinking home care may be back on my radar. Holding off for now. Good luck to you.
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tam1086 Feb 17, 2025
Good Luck to you too! It's so difficult and the quilt is tremendous! I just want mom to be content and not so nervous all the time. The dr has tried changing her meds but she is super sensitive to med changes and the last time I allowed them to change the Xanax she was so completely out of it and ended up falling and broke her shoulder! I also feel the withdrawal from Xanax would be absolutely horrible for her and I hate to do that to her. They are currently adding a med for depression in the evening time, and I am hoping that gives her some comfort.
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Sometimes when being on a medication for a long time, the body develops a resistance to its effects.
Have a neurologist or psychiatrist versed in geriatrics see about changing to a different medication,
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