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I didn't mean to - it was a reflex and I can't take it back.


I'm an only child and she lives alone. We had a doctor's appointment yesterday and the doctor couldn't get through to her - she doesn't believe me or her doctor(s) that she is dementia/beginning stage Alzheimer's (she also recently fell and broke her hip).


I've been taking classes, joining support groups, reaching out wherever I can to gain knowledge and the know-how to help her and be with her. My thinking was that an actual diagnosis would help things so that we can get her affairs in order, and do what's best for the situation, but it just made it worse. One step forward... two steps back.


I know I have a lot of pent up anger towards her that has evolved over a lifetime (I'm 60), but am trying so hard to put that aside so that we can tackle the now.


I blew it yesterday... in just one moment.


My only hope is that she won't remember it, but I fear she will as she remembers certain things, and this will definitely be one of them.


I read yesterday "they forget everything, except what we want them to".

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First off, my mother is 94.5, living in a Memory Care ALF with advanced dementia, and calls the other residents 'stupid morons'. There's 'nothing wrong' with HER, mind you, she's perfectly fine. Even though she's getting dressed to 'ride the subway to see mama' who's been dead for 36 years, and never mind there's no subway in Colorado. So, needless to say, denial isn't just a river in Egypt. Many of these dementia sufferers refuse to accept or believe their diagnosis. It goes with the territory.

Now that there's been a physical altercation between you and your mother, you have been slapped in the face (pun intended) with the reality of the situation at hand. Mother cannot live alone and you cannot be her caregiver, plain and simple. She either needs to go into a Memory Care ALF or caregivers need to be hired to come into her home to care for her 24/7. It's just that simple. You stay the daughter, and let others be the caregivers. I will tell you that I could NEVER be the hands on carer for my mother; we have an oil & water relationship and always have. Dementia just exacerbates all of her ugly personality traits and makes her even more insufferable, so that's the truth of the matter, period. I choose to remain on half-way decent terms with her, so she lives in Memory Care. Otherwise, I may be where you're at now, no kidding.

Forgive yourself and plan the next move for mother. What comes next? Memory Care? In home caregivers? Make that call and then make it happen.

Wishing you the best of luck with a difficult situation.
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TCoupe Sep 2021
Thank you, lealonnie1... That's awesome advice, and that's what I've been trying to do - be both daughter and caregiver. I know people do it, but probably not the right thing for everyone.
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You wait 'til it's two in the morning and she soils herself just after you've got her all cleaned up. And it feels for all the world as if she's done it on purpose.

I think you should take this as a sign that you can't be her hands-on caregiver. She may well forget the incident - certainly it's extremely unlikely that anyone could or would want to take it further, even if she tells everyone down to the mailman all about it - but you never will.

At this stage it may not be possible to put alternative care structures in place (because your mother won't agree to them, basically). That needn't stop you lining services and facilities up ready and figuring out the funding, which will also give you something besides tearing your hair out to occupy yourself while you wait until such time as she is no longer in a position to refuse. It is neither fun nor pretty, and I'm sorry for your situation.

Why did she slap you?
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TCoupe Sep 2021
You're right, Countrymouse... She is refusing everything, other than me being her caregiver. After the doctor's visit, where she became agitated and yelled at both the doc and I for lying, she calmed down and we went to the car. All was well until she got agitated again and wants another doctor - yet when I tell her we'll go see another to get a 4th opinion, she refused and I yelled back that we have to stop all of this backing and forthing and start focusing on reality. I shouldn't have yelled. I know. I just pushed her further with that, instead of remaining calm like I usually do. I'm actually a soft-spoken person, known for being calm and patient by family, friends and coworkers! Anyway, that's when she slapped me. After I did the same, she started at me with both fists, but she's very small and I grabbed her wrists to stop her. From there we both cried. I'm not upset at her - I'm upset at myself for losing control.
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Tcoupe, I hope others with direct experience dealing with dementia will offer their advice and perspective on what happened but I’m wondering if you could speak more about the pent-up anger you feel. Is it by chance anger over past mistreatment or abuse, etc. by your mother?

So often on this forum we see well-meaning folks struggling to provide care to an abusive or difficult parent. It seems to be an emotional minefield. Caring for a parent without these issues can be challenging enough on its own!
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CarylorJean Sep 2021
Hi, I do not necessarily agree about past abuse. In my case it's difficult to come to terms with the person standing in front of you is not the person you know. I feel like a period of mourning is necessary to be able to move forward. It is extremely heartbreaking when the person you've known all your life reacts to situation completely differently than they would have in the past and that's what make this disease so soul destroying for lived one to watch.
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Yeah, it's tough...had that experience with my dad. The dementia and anger that comes with it is draining and exasperating. For a skinny guy he sure could pack a wallop! I didn't hit him, but the response was there. I grabbed his arms and we "wrestled" a bit. I'm sorry you're feeling bad. Forgive yourself and move on; learn from this and if the acting out gets worse, consider memory care for her.
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TCoupe Sep 2021
Thank you, Tynagh... I'm sorry to hear about you and your dad. Coming to this site has helped me a lot already, just hearing what others go through and what they do about it. I've been saying for the last few years that learning about the dementia is one thing, but learning how to respond has been difficult. Hugs...
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You didn't blow anything. No one is perfect and just because an elderly person (even if it's a parent) is needy or has dementia, doesn't mean that we all suddenly grow saintly patience for them.
If you have a lot of pent up anger towards her that's been evolving for a lifetime as you say, bring in hired caregivers to look after your mother. I know what happens to a person when they have to become a caregiver to a parent that they harbor a lot of anger and resentment towards because I live it. Only recently have I been able to start clawing my way out of the wretched misery being my mother's sole caregiver has turned my life into.
I've also worked as an in-home caregiver for almost 25 years.
Even when a client has dementia, there must be boundaries even if they have to be forced. Sometimes you also have to be what might seem in the moment to be harsh or even cruel. Like when there's refusal to keep up with hygiene or changing soiled diapers. I have many times had to literally yell and swear in a person's face in order to clean them up or change them. The recovery from a bit of fear and hurt pride is a lot easier than the recovery from a UTI or skin sores because the elder is left in a mess.
People with dementia are often still able to understand boundaries and will only push as far as the caregiver will allow.
I had a client, an elderly woman with dementia. She was very aggressive and violent to her family and her other caregivers. She would hit, kick, pinch, bite and would yell every swear in the book and threaten too.
One time she bit me and I slapped her. Not in the face but on the upper arm. Not so hard as to cause an injury but hard enough that she understood I meant business. I also told her about an inch away from her face that she will not bite me. Then I cleaned her up, she ate a nice meal and was fine. I worked for her for a few years after that. Sometimes she didn't remember exactly who I was but it was never really a problem.
When she would start up with being aggressive and violent, all I ever had to do to get her to calm down was get close to her face and raise my hand. She'd stop right away. Her family didn't do this. That's why they all had bruises, injuries, and bite marks.
Even when a person has dementia, self-preservation instinct can still be present. The violent and aggressive behavior might not be safe with me.
You have to establish strong and serious boundaries with your mother if you're planning on taking care of her. I made the mistake with my own mother and let her get away with far too much. The caregiving will ruin your life if you allow this.
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TCoupe Sep 2021
BurntCaregiver... I'm so sorry things went that way with your mother. Sounds like it's a bit easier to be stern and firm with someone who isn't our loved one. Thank you for your helpful information...
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TC, I would encourage you to NOT be her hands on caregiver.

She obviously feels like physical violence towards you is acceptable and you are harboring a lifetime of anger with her.

I completely understand and I, personally, will NEVER be my moms hands on care because of her belief that she doesn't have to respect me or my personal space or my boundaries. Some moms think that they can do whatever they want to get their way, not okay.

You should walk away and be her advocate and daughter, because she will probably resort to physical violence against you again.
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BurntCaregiver Sep 2021
Isthisrealyreal,

You're right to refuse to be your mother's hands-on caregiver if she has no respect for you. It only gets worse when they need care.
If the time comes when my mother needs to be showered, diapered, and fed I will not do it either.
Hopefully the generations with kids who are not elderly will learn from them and will take some care about how they parent the kids. Especially their daughters.
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Boy, that's really sad. My mom threw a knife at me 2 weeks ago. Luckily she missed. I've found when things are so tense, it's just better to defuse the situation and walk away. I used to scream really loudly in front of her and used to feel awful but it helped release some of the pent up stress. My friend gave me some good advise. She said if your mom treats you badly, you are entitled to show emotions as well, after all we are all human. It's really hard sometimes but if you have a close relationship, she will forget because you are the most important person in her life and that unfortunately is the person who gets treated the worst. Doesn't make sense but that's how it is.
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BurntCaregiver Sep 2021
CarylorJean,

If your mother was able to throw a knife at you, it's time to put her in a care facility for her own safety as well as yours.
What could have happened if she didn't miss? You could very well be dead today.
Put her in a facility for your own sake. I know it's hard to see what dementia does to a person, but when that person is a danger to themselves and others they belong in a facility.
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You're no longer dealing with a rational adult, so try to cut out the physical stuff. Also, there's really no point in trying to get someone with dementia/Alzheimer's to accept the diagnosis. It's terrifying to one who can understand it, and it's pointless to one who can't.

If you can't be the adult in the room, then it's time to get help or place her in a memory care situation.

I'm not blaming you for losing your cool, but physical abuse isn't OK. She has an excuse, but you don't.
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TCoupe Sep 2021
MJ1929, you said exactly what I was feeling and thinking. She has an excuse, and I don't. I can't take it back, but can hopefully learn and move toward more positive because of it. Thank you for your honesty...
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You must take her to a certified neurologist in order that calming meds be prescribed. My mother takes Seroquel. It was started at a low dose & increased slowly as needed. I tell caregivers that my mother only hits/punches with her right hand…so stay on her left side when she’s agitated. It’s a wonder how she can’t lift herself up or turn on her own, but when in that extremely agitated state, becomes like Hercules!
Good luck & hugs 🤗
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TCoupe Sep 2021
Thank you, CaregiverL... I started that process yesterday! Good luck and hugs to you too... I think we all need it.
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I'm not that concerned with your mother's behavior as I am with your reaction to it and your state of mind. Caring for a parent with AD is an indescribably, emotional experience. I can't blame you for striking back. I actually applaud you, not for that moment of regret, but for your trying to understand what's going on with your mom, by taking classes, participating in support groups, and even trying to resolve your pent up anger.

You say “we have to stop all of this backing and forthing and start focusing on reality.” But, sadly, you can't focus on reality, you don't know what hers is. No, you shouldn't have yelled at her. No, you shouldn't have slapped her. Did you tell her you're sorry?

Sometimes we're inclined to be impulsive and react in a regrettable way when we're confronted with situations that upset us. When caring for someone with dementia, you can't play tit for tat. And at the same time it's so hard to turn the other cheek isn't it. We try so hard to understand, but as a caregiver for someone with AD, we're treading on unfamiliar ground and we're going to make mistakes. Let those be teachable moments.

We all have our limits of respectful, compassionate caring. You need to determine what yours is. When we can no longer understand what's going on with our LO; when caring begins to affect our own health and wellbeing; when we feel obligated to care, it's time to look at other options.
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TCoupe Sep 2021
Thank you, sjplegacy... Your response was so true and informative that I'm printing it to refer back to.

I didn't apologize. I was so mortified that I reacted without thinking, She was abusive to me as a child, and after this incident and I physically reacted as an adult (I never have my whole life), it was almost like my mind went to "I will not become her punching bag as an adult".

But, the reason I came here for advice was because I'm now so confused as to how to handle things. She fights and denies everything. I've taken two months off work after she broke her hip to try to handle all of this, get things in order, and decide whether to leave my job and become her full-time caregiver. Family and friends are almost nil, and the ones who are around, she's pushed away over the years.

I wanted to honor her wishes/demands to live at home, and get that time to spend together, but with the help I'm receiving on this site (there are no support groups in my area due to COVID), I think I have my answer, and to save mental health for the both of us, I'm now tending toward going against her wishes and demands. Thank you again... Hugs
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