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I was told that Nepro would be all he needs. It has nutrients and vitamins. Can someone tell me something else he can be fed that won't leave him malnutritioned?
So sorry you are going through this. Your dad has prostate cancer as well as multiple debilitating illnesses. He is using all his calories to maintain his day to day life.
Your choices of tube feedings are limited due to his ESRD. The Nepro formula is made specifically for ESRD pts as a diet supplement.
His dialysis center should have a registered dietitian that you can ask to meet with to ask for their suggestions.
Chances are your father will never gain weight due to the nature of cancer cells taking over his good cells and the fact that cancer is a muscle wasting illness and often people with cancer lose weight. If you haven’t already please consider getting a hospice evaluation.
He can be tired of living with all of these problems. Dialysis itself will exhaust him.
I hope you will consider hospice for his end of life care.
Thank you. Am I really in that much denial. I see him everyday and his mind is sharp and to me he's seems to be doing a little better each time. But with everyone talking about hospice I'm feeling really out of touch.
I was looking over his medical records online and found a recently added the results from a CT scan of his chest. After having to look up what felt like every other term- that's when I realized he has a lot more problems than I knew or thought. Or actually what we've been told.
I was thinking that I should take a copy of it with us to his next visit with his primary. However I have no idea when that will be at this point. What would you suggest?
I am so sorry that you are going through this. Please speak to hospice and utilize the counseling they offer. You will benefit from understanding that your dad has multiple comorbidities and comfort is probably the most you can hope for.
Prepare your heart and head for his passing. Hugs!
I'm guessing it's normal for the family caregiver to keep thinking and hope that he's not as bad as it sounds. I always feel like I can tell when it's something serious but then usually at some point I'm hit with a bit of reality that there's more than I think or more than I want to admit. The thought of hospice or making him live somewhere else just about kills me. I really don't want to do that to him. Also sometimes I don't want to do this anymore but that guilt will hit me. How dare I feel like this/being so selfish when he is going thru what he is going thru. I am an only child and all of his immediate family is gone. He has no one else.
I agree with willie, with all Dad has going on, he may want Hospice. Maybe have Hospice come in to talk to him to see what he wants. Facilities don't always recommend Hospice. I had to ask. A feeding tube may be prolonging the inevitable. He has lost the ability to swallow. If losing weight, he may not be absorbing the food. I think they can test for that. His body maybe just shutting down. Hospice will make him comfortable and pain free.
Thanks JoAnn. He is actually so afraid of that. So much that when something is wrong and we both know it, he absolutely refuses to let me take him to Urgent Care or the ER because he is afraid they are going to keep him. And each time I tell him, I'm not going to let you do that to me again. If we had just came sooner it probably wouldn't have been so bad and they would have let you come home. But he is good at making me feel guilty.
My husband has a feeding tube and i ask for a feeding that gives the most calories for the least volume. We use 2Cal which has 480 calories. This has sustained him for over 2 years now. We adjust feeding according to his weight and what he eats each day. Whe he eats 480 calories we cut out a feeding. Good luck and prayers sent for guidance.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Your choices of tube feedings are limited due to his ESRD. The Nepro formula is made specifically for ESRD pts as a diet supplement.
His dialysis center should have a registered dietitian that you can ask to meet with to ask for their suggestions.
Chances are your father will never gain weight due to the nature of cancer cells taking over his good cells and the fact that cancer is a muscle wasting illness and often people with cancer lose weight. If you haven’t already please consider getting a hospice evaluation.
He can be tired of living with all of these problems. Dialysis itself will exhaust him.
I hope you will consider hospice for his end of life care.
I was looking over his medical records online and found a recently added the results from a CT scan of his chest. After having to look up what felt like every other term- that's when I realized he has a lot more problems than I knew or thought. Or actually what we've been told.
I was thinking that I should take a copy of it with us to his next visit with his primary. However I have no idea when that will be at this point. What would you suggest?
Prepare your heart and head for his passing. Hugs!
They will help both of you.
https://www.agingcare.com/articles/an-end-of-life-conversation-led-by-gawandes-questions-205721.htm
There are also several articles explaining how hospice works
https://www.agingcare.com/topics/90/hospice/articles
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