She lives in a two-story townhouse. She has expensive taste but no money. Refuses to find something closer to me because there is nothing affordable up to her standards like granite countertops, wood flooring, etc. Also refuses a condo.
I just had to drive there because she has C-Diff and clean her up and call an ambulance because she couldn’t get out of bed by herself. We were on our way to a train for a birthday celebration for my husband.
She has always been narcissistic and self-entitled. When the diarrhea first started, I called my aunt and she drove three hours and she wouldn’t let her in. Then refused treatment from EMT that I called. Three days later she could not get up.
I need to have her move and I’m happy to take care of her. I have a new grandson I will be watching so I cannot go back and forth.
At my suggestion, they moved to 5 minutes from me about a year ago. I found the house -- and my mom has very exacting specifications that I had nightmares about. I drove them up here and moved them in. I see them 2-3X per week. I pay their bills, arrange for handyman, to get things fixed, do their taxes, drive my dad to the dr. I haven't written it out like a contract, but there are certain things I am and am not willing to do. I have checked out all kinds of asst living, SNF, continuum of care, adult day care, aides, aging advisors. My mom does not want any of that, though she has accepted a cleaning service. If -- when -- a crisis occurs, I will have to leap into action.
It's still hard and there are lots of things that come up that seem like gray areas on my willing/not willing to do list.
You have gotten a lot of good advice, and even though some of it contradicts others, I kind of agree with it all. Whatever the outcome, you have got to set boundaries and not feel guilty about that and about doing what you want with your life. It's hard to do a "good job" or be a "good daughter" when no matter what, she is going to continue to age and then pass away. She is going to lose control. You can't fix that. I am trying to let go of my own desire/need to put in place what I think they should do. I think I have been offering all these ideas in trying to managing my own anxiety about it all. But stopping with the suggestions has actually made our relationship better. Just offering this in case it rings any bells for you.
I'll rephrase slightly as I see it: You WANT to make her move. For valid reasons - so you can help care for her. But Mother does not see this or agree.
Mother has the right NOT to move. It's her life.
However, you can CHOOSE what YOU do: how & when you help her.
More rephrasing.
"I just had to drive there because she has C-Diff and clean her up and call an ambulance because she couldn’t get out of bed by herself".
How did you know this from your home? Did Mother call you? You could have chosen differently, right? Calling EMS from your home was an option too - you choose to go (as many of us would).. but you choose to go.
"I cannot go back and forth".
Tell Mom this.
Advice Mom to get a falls alarm (if she falls), a key-safe box (to let EMS in) & in-home help as she needs it.
She may choose not to for long while yet (but even the truly stubborn eventually change their mind).
I do not advocate that she move in with you. I moved in with my mother ten hours away from me and it was an undesirable task, to put it mildly.
Don't bother trying to get her to move closer to you. It won't happen unless there is a major change in her life where she realizes that she has to get help from outside resources. Nothing is going to satisfy her like her current home. Now if she was grumbling about her current home, you could suggest she move. However, as long as she is "happy" at her current home and in her current circumstances, she will not move or make the change.
Also, don't even think about watching your mother while you take care of your Grandson. Your Grandson needs your undivided attention and there will be many, many times when both he and your Mom will want your attention at the same time ("when it rains, it pours")
I think you need to have a sit down written contract with your Mom. Included in it will be how to let emergency people into her home if she is unable to get to the door. Also ensure that you know where her POA is and her Medical Directive. Also guidelines on who should be called for what situation. Yes, it is easier if your Mom called you all the time, however, not letting in people to help her is inexcusable after calling for help. Also, how does she know who are the "authorized" people you called to help her? What happens if you are not reachable (like on a plane)?
Stubborn usually goes with "narcissistic and self-entitled". Therefore, protect yourself.
Best wishes.
Find a doctor who will see her at home. There are businesses that provide this.
Set up cameras in her townhouse to monitor her.
If she will not compromise and move this is all that is left until she needs assisted living.
Mother is independant, yes?
So Mother needs to hire her own caregivers.
Mother needs to arrange a key-safe box.
Mother can make her own Doctor appointment (telehealth if preferred).
So, my suggestions, speak to your mothers doctor, and explain the situation and get any kind of diagnoses for what is going on. Get the Power of Attorney and a Living Will done in case of emergencies, hopefully you have these and/or can convince her to do this. When your Aunt visited she should have called the police for a welfare check. They would have gained entrance to the home and checked out the situation.
You can also check in your area and see if there are any restricted income apartments. They are usually less rent. Until you may get her moved, you could also see if you could find any person in her area that could check on her every day, by calling or visiting. If she has any neighbors that she has been friendly with, or any friends. I am in a restricted income apartment and it is a very nice apartment.
It is a shame and this really upsets me because I am 70 and I have had a pacemaker installed. My daughter & I want to rent a house together but our credit scores are just under 600 and we need a 4-5 bedroom home, she has 3 kids! And we just can't find a place! She lives about 45 minutes from me, so not so bad - but still! But I have already made out Power of Attorney and Living Will just in case I cannot make decisions for myself. These things need to be done at all times of life. We never know when things may happen to us! One day I was fine and the next moment I had a total heart block and could have died at 69. After 6 days in hospital I had to wear a Zoll Life Vest for 3 months. I could not work or drive! I live alone but they required me to have a person present when I showered because of removing the life vest.
Talk to your mother, maybe tell her how much fun it could be for you both to live either together or closer. Like when you take the Grandbaby to the park, Mom can go to and see her Great Grandbaby grow! You could go to lunch together. You have to make her want to be closer to you. Good Luck!
Please do not listen to these other people who say to move farther away and other negative stuff. She is your mother and evidently you care for her, and vice versa.
M is 84. She loves her house, and she knows her way around it almost automatically. Most of the time, she is OK there. She really really doesn’t want to move. She just wants it to be possible to stay there.
Instead of telling her that she HAS to move, give her at least one alternative. It’s that she has a list of agencies that she can call when she needs help, and she has cameras installed through the house so that you can see if she is OK. If she’s not OK, then YOU call the agencies. Your visits are social because you love her, not for unpaid labor. She continues to spend more than her income, so if and when she cannot avoid moving into a facility, it may be Medicaid standard.
It is actually her right to do this – and probably to hope that she dies in her sleep before the crunch comes. If it’s her choice, you both live with it. Talk it through with her, put it in writing to follow up, and keep copies of the written advice.
It’s possible that she will choose this option. Even possible that she will start to consider alternatives herself. It's better than bashing your head against a brick wall, and making you both miserable.
See an Elder Care attorney as it's a worthwhile investment for you right now. Please do not move your mother in with you at your family home.
- Even being a narcissistic, she is frightened. In fact, the psychological disorder may be, in part, DUE to her fears - long long ago established. People create strategies for survival although (often) those strategies are not necessarily in our / their best interest. Those strategies need to be replaced with ones that work ... however, she likely is 'too mature' to go through a psychological consciousness changing path. She is stuck psychologically where she is.
* Clearly, she is on a downward spiral if there is no intervention / care, this will continue to be to her detriment / well-being.
You are very kind to want to do whatever you can for her. I sense change for her will continue to be very difficult. No one likes change or feeling they are losing their independence (and they are, although it is more than 'just' a feeling).
I believe it is especially more difficult for
1) a narcissistic personality and
2) dementia inflicted, or
3) a combination of both.
* I would caution you to 'give in' to her domineering / narcissistic ways as she needs guidance, 'rules,' and boundaries. If you do not have any legal authority, you will be at a disadvantage to providing the care she needs.
* In addition, you need to get control of her finances based on what you say.
- If you are not on her accounts (with her), do this if you can.
- If you can, set limits on her (daily) spending, putting limits on what she can spend.
- If you do not or are unable to help her with her finances, she will suffer as time goes on - spending / wasting her money.
- Does she have investment accounts, CDs? Who manages these. Certainly she cannot do it.
* Perhaps hire a geriatric case manager (many are licensed social workers) if you feel you need professional support / guidance.
- I figure she will overwhelm and/or make mince meat (sorry for this analogy) of your 'new' grandson. He doesn't have the experience necessary to really help her, i.e., setting boundaries. She will end up telling him what to do, what she needs. Although I applaud him for being willing to take this on.
- It is challenging for any of us, with years or decades of experience to deal with a narcissistic personality, it will be much more difficult for a young person. Of course, I do not know him or his background/age. Mother needs boundary setting and she will 'kick and scream' - he'll likely not know what to do - this is how she has LEARNED how to get her own way - likely all her life.
* See an attorney to learn of what you can / could do to mange aspects of her life, including when she is medically diagnosed as being incapable of managing her life - both financially and otherwise. She will need a person in this position at some point, if not now.
* With all this said about boundaries and taking legal control as you can, it is EQUALLY important to allow her to express her feelings and that she knows you hear here / are listening. Do reflective listening:
"I hear you saying XXX" - then change the subject or say, yes, and we need to do XXX, too". You want her to feel validated and in control of her life 'her world,' even though she isn't or can't any longer. Do not belabor ... the validating. Do that and move on (you need to be the 'leader of the pack' in dog training language. I LOVE DOGS and training a dog is really teaching the guardian / owner how to 'take charge' and teach the dog what the leader of the pack wants them to do. They do it when they understand who the pack leader is... Clearly, it isn't this cut and dry, although setting boundaries with loving compassion is critically important (for her well being).
Lastly, be sure to put YOURSELF and YOUR health and well-being first - in order to be available / have the energy to deal / manage her / her care
It is not your job to deal with her medical emergencies.
YOU are entitled to not be at her beck and call because of the choices she is making. My father is the same, but I know in his case it would impossible to move him near me and I am not uprooting my life to live with him either. I love him, but he is impossible. I live in NYC and he lives in CA. Wayyyy too complicated and he wouldn’t know a soul here but me. Wouldn’t work. He will not consider AL (really he will need memory care soon but I call it AL becasue he doesn’t think he has a memory problem). He will never agree to leave his home and the mere suggestion we give something a “try” illicits screaming and threats of killing himself if he ever has to go into “one of those places”. So, I wait for an event that will trigger placement and do what I can from here. All I can do for now. I fully expect at some point to get a call from the ER or the police saying they have my dad. At that point I will say he lives alone and is unsafe there, and work with them to get him placed. This happened over a year ago when someone called the police because he was “ranting and raving” and they were scared he was having a stroke. But at the time he had not been DX with Alzheimer’s so once he calmed down the doctors and I agreed he should go home. Now that he is dx, if it happens again I will advocate they not send him home. It’s sad and a terrible way to live waiting for a disaster, but so many on this forum are in the same boat. You are not alone.
There are three things I try to live by to get through this:
-Do your best for them from where you are. At the end of the day know you have done everything you can while also preserving your own life and sanity.
-Stubbornness and lack of planning on their part does NOT require you live in a constant state of emergency on your part.
-People who need help need to relocate to where the help is. Not the other way around. That place could be near you, or into a facility. This will happen to all of us eventually.
I understand that you are worried about Mom, but she doesn't want you to take care of her so don't. For your own peace of mind, set up an emergency system so that you can get care for Mom when needed. That can be a "Life Alert" or similar button or a voice activated phone system (she can yell and it will call if she can't get to the phone). Will she give you medical POA? If not, a HIPPAA waiver? That way you can talk to her doctors and know how she really is without "mothering" her.
If she is generally healthy but ornery, let her get through the C-Diff and get back to her own, independent life. You can't help someone who doesn't want your help and you will drive yourself crazy if you try. Mom is entitled to make her own decisions (even if they are bad ones) and take care of herself if she doesn't want help.
near death. During his hospital stay he was formally diagnosed with vascular dementia. Amazingly, he recovered enough to come home with me where he lived almost a year until his death. The whole time he demanded to be taken home, but of course he was too far gone to live alone. Sometimes, it takes a crisis. I’d speak to an elder law attorney about what your next steps might be before it gets to that point.
Whatever you do, do not move closer to her. Don't uproot your life to accommodate her unrealistic expectations. You will be miserable.
But, honestly if she's in those kind of health conditions it may be time to consider guardianship. Believe me, its not an easy thing to move forward with, but it may be the only way at this point to keep her safe and you sane.
Have a blessed day, and I hope things get better.
She will move when she is ready and it is right for her. We tried to promote a seniors facility close to us, and this situation she absolutely refused, I am not sure why, it was in her budget, gave her independance and had many services included. When she moved to the apartment she absolutely had to have in home washing, and this took some time to find. In the end she moved closer as we turned the separate apartment in our home to her living space, made some changes and then arranged for PSW support for her other needs, food prep and driving to appointments, etc, this she said worked for her. It is important to note, we did change our situation by her moving closer, we did not become her medical support team, nurse, companion or cleaner, we are just closer to help.
Perhaps you can help find a place that is to her must have requirements nearby, whatever they are, or a place that you can modify. We also had to change the floors for safety reasons after her move, and do some reno on the kitchen. As people age, the standards for living at home change. So you might find something that is close, that you can add to that meets her needs.
I have grandkids that I help with and that is my priority. My mom would love a lot more visits, etc. in AL but I'm not willing to do it. I know she is not happy but life with dementia and RA is not a very happy life. It's just the way it is.
Its no longer what Mom wants, its what she needs. If she needs to stay in skilled nursing fir her Cdiff, then thats where she goes. If found she needs 24/7 care, then she gets place where she can afford it. You do not want to take her on. She sounds like trouble to me. Enjoy you grand.
My dad had an expression when I was growing up. He said, “God helps those who help themselves.”
I didn’t understand what he meant by that expression. I said to him, “Daddy, I don’t understand what you are saying to me. If I help myself then why do I need God?”
His answer was, “He will help you but you will need to do your part. He won’t do everything for you.”
I never forgot that expression. Whether someone believes in God or not, this principle still applies. If we don’t do our part, nothing will change.
Your mom is definitely not doing her part to improve her life. Not only that, she is dragging you down with her. Do your part now and don’t allow her to drag you down. This will force her to act responsibly or suffer the consequences.
I know that you don’t want her to suffer the consequences. I wouldn’t either but even when you drive to her home and you call for help, she doesn’t cooperate with you. So, you have a ‘Damned if you do and damned if you don’t.’ situation here. You can’t win either way.
You have a precious grandchild who is growing up fast. Please take time to cherish that new life.
Wishing you peace as you continue on in your caregiving journey.