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My mother in law is in a nursing home in New York. She is in good physical health but has moderate Alzheimers. We want to bring her to our home for Thanksgiving - we live in another state, so we would need to take her out of the facility for a least a week, as it is a significant drive. However, when my husband called to confirm everything was OK for picking her up, they said that she cannot leave for more than three days. They said any longer and Medicaid will stop paying for her care because they will assume someone else is able to care for her instead of her being in a nursing home. Is this right?? It doesn't seem correct to me. I did some research and found that NY Medicaid will pay for up to ten days per 12 months of therapeutic leave. But it's unclear to me whether a nursing home has the right instate a policy rescinding beds after a certain period of time. Does anyone know anything about this?

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This is correct. I live in NY, my sister is in a group home and NY law forces the facility to stop collecting the payment if the person is gone for more than three days. She will stay with me two nights and go back.
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For my sister, therapeutic leave is her stay at summer camp, for a week once a year and I have to sign paper work months ahead of time for the approval process.
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In addition to the Medicaid coverage, I'd also explore what time, energy and resources you would need to provide for the time she is in your care. I'd factor all the possibilities that could occur, such as her adjustment to your guests, noise, change of schedule, travel, sleeping issues, resistance to care, confusion, etc. I'd be sure to get as much info from her facility to make sure you know what to expect.
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Thanks so much for your replies. It's disappointing, but it doesn't seem like there's anything we can do with this short notice.

She stayed with us frequently before moving into the nursing home, so we're pretty prepared for all the things that go along with her being here (having the gate set up at the top of the stairs for nighttime, alarms on the doors in case she wanders, etc.). At this point, we're exploring bringing her down to a facility closer to us so that we and her other son can visit more frequently (she's in NY because one of her sons is there and that's where she lived for most of her life, but he works long hours and can't get there to see her as often as he would like whereas if she were down here, we could see her every day).
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Do not move her outside of NY. Her Medicaid will end at the state line. Getting her Medicaid and a nursing home in a new state is a nightmare.
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You say Medicaid. If it is Medicaid or dual Medicaid/Medicare then the Medicaid rules apply. Medicaid is a very generous program but the state administrations thwart Congress long legislated, compassionate intent by hiding information from their own departments and the public.

I have been battling in my state and had reason to research New York for comparisons. New York has one of the best 'Congress intended' Medicaid programs.
Each state has choices in many of the benefit provided, but there are many federally mandated benefits.

My state tried to tell me that a person needing one-on-one attendant care, a person in her space, dedicated only to her, can not receive that in a facility, because facilities historically do not provide that by contract.
The physicians and advocates have all been convinced of that, so they never challenge. I challenged. It is called 'Directed Care' and it is paid for by Medicaid. The facility can not provide such staff so they need to pay attendants from a home care agency to fill the 24/7 and bill Medicaid.

Your case management entity needs to research and comply with federal rules. They probably are applying the rule that time away for 'hospitilization' is not covered. That makes sense because that would cause double billing, but would not be for 'therapeutic leave' with family
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it took just a couple moments to find this for New York.
The google terms are New York Medicaid 'therapeutic leave' and 'bedhold' or 'reserved bed'.

----"Each Medicaid eligible resident who is occupying a nursing facility bed for which the Medicaid program is then paying reimbursement shall be entitled to take up to 10 days of therapeutic leave in any calendar year from any such bed, without the facility’s suffering any loss of reimbursement during the period of leave ". ---

----"Reserved bed days are reimbursed at ninety-five percent• (95%) of the Medicaid rate otherwise payable to the facility for services provided on behalf of the resident. Reserved bed days for non-hospitalization (therapeutic)• leaves of absence outlined in a recipient's medically acceptable therapeutic or rehabilitative plan of care are limited to ten (10) days in a twelve month period".---

You might consider moving her to your state. We did that by applying to the other state months in advance.
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My understanding on Medicaid is that only programs/items required as "dedicated" funding by the Feds (by law, title or CMS) for medicaid must be done by the states; all other programs are within each states purview for funding under Medicaid's "waiver" funding as each state is allowed to manage & administer Medicaid $ uniquely via waivers but within an overall federal guidelines.

Like paying for skilled nursing care in a facility (a NH) is dedicated federal funding, so states have to pay for NH care but states can set criteria for eligibility (medical and financial) and determine the daily room & board reinbursement paid daily to facilities within federal guidelines. But AL is waiver funding, so states can determine if AL will be covered at all. Most states do not cover AL payments under Medicaid or limit the type of AL funding.

Another example is the personal needs allowance (the $ a Medicaid NH resident can keep each month for themselves) some states have this high - like Minnesota at $ 105.00 a mo - but other states have it lower at $ 35 - $ 50 a mo. My mom PNA in TX was $ 60 a mo. Some states are much more socially aware with & to their citizens so decide to spend $ on programs while other states do not.

Ellery - Personally to me trying to point out to your states Medicaid what NYS or MN does is a waste of energy as your states budget & social awareness is what determines what's what. That energy imo is better directed to state Legislature & those that sit on Health & LTCare committee.

Ellery - Out of curiosity, just how were you able to get your family member - who I assume was a legal resident of another state- to get approved for Medicaid in your state in advance?
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----"Reserved bed days are reimbursed at ninety-five percent• (95%) of the Medicaid rate otherwise payable to the facility for services provided on behalf of the resident. Reserved bed days for non-hospitalization (therapeutic)• leaves of absence outlined in a recipient's medically acceptable therapeutic or rehabilitative plan of care are limited to ten (10) days in a twelve month period".--- is New York Medicaid.
I have discovered that institutions that are nationwide do not know or apply the state differences unless challenged.
Based on the quoted statute, I believe, in this case, it is the unknowing decision of the facility. If they were to just bill as usual, recognizing the 10 day limit, there would be no denial from Medicaid. Since the person is with family, there is no other billing.
I have won several appeals on this and the facilities are in question because by not following the guidelines, the encounter and utilization data was skewed for many cases, for many years. It is shown that the entities, lowest in the hierarchy, the home care agencies and facilities, are in the habit of making eligibility decisions. The systems never see the encounter for learning.
We applied months in advance of our move. There was no reason, no statute not to do so We had a move to address. Eligibilty does not begin until state residence is established, but at least all the required eligibility documentation was completed.
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Mmn29 - about moving her......you may want to do a mini weekend with her either at family's home or an extended stay type of hotel with handicapped bathroom in the city where she lives now in a NH to see how feasible a big trip or move is. How she was months, or even weeks ago may not be accurate to her cognitive & ADL ability now after being in a NH. She's in skilled nursing care so may be not the woman you remember. We did sleep over & 1 50 hr weekend alway with my mom when she was in a NH & we did every 3 -6 weeks long day outs (lunch & old hairdresser & shopping trips all in her old 'hood) and it was just not feasible as time went by. In my experience, they are going to be confused & you need to have a shadow for her the whole time especially if the environment is unfamiliar. Little things like getting in & out of a car or going potty become major hurdles and dangerous.

If they are on black box warning drugs, the NH may not be able to give you her RXs needed for a long weekend at all. If so, you will need to get a new RX written and private pay for them as Medicare / Medicaid won't pay for additional scripts. Expect getting any serious pain meds Rx's filled to be not simple & especially a real butt-rash to do if you have an out of state ID and the elder cannot go with you to the pharmacy to drop off & pick up the RX. As an aside on this, if you have close tight friends or family who are MDs...well they can be invaluable in getting through the whole having the needed medications on hand complications.

Good luck in all this.
Please, please realize that if they become ineligible for Medicaid, the costs for care will run anywhere from 5k - 15k a month. Someone will need to sign off on financial responsibility more than likely to get her admitted to a new facility unless its a lateral move to another Medicaid bed in the same state & the new facility has evaluated her that they can provide the level of care needed. I moved my mom from NH#1 to an eons better NH #2 after she was totally approved for Medicaid and within her first year in LTC. It's not simple but can be done with a bit of planning a month or two in advance. If you find you are doing this, let me know & I'll post my suggestions & experience with this, ok!
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I WOULD CHECK WITH MEDICAID AND SEE IF THERE IS SPECIAL PERMISSION FOR TAKING MOM TO BE WITH FAMILY.
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I agree with you going to her. See if the facility is serving Thanksgiving Dinner and if so, ask if you can attend. They usually charge a small fee for this. Or take her out for dinner if you'd rather be alone. Just remember this will be a change in her routine. My Mom never wanted to be out longer than an hour. They tire easily.
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Three days seems a bit quick off the mark! Doesn't this cause horrendous problems if the person needs to be admitted to hospital, for example?
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Churchmouse, yes it does cause horrendous problems. In many states you lose the bed.
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I can definitely attest to the loss of bed in a NH when someone is hospitalized. My dad lost his bed 4 different times for hospitalization - every time he came back, even if he was only hospitalized for 4-5 days, he was moved to another room - at one point, they had him in a ward-style room with 3 other people (that was a nightmare).

I do hope you are able to go see your Mom for Thanksgiving and avoid the hassle of dealing with Medicaid and bed loss. As time goes on, taking her for more than a few hours will become difficult for her as the dementia / Alzheimers progresses.
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