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Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
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V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
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Your LO should have a thorough physical and medications and options for TX should be discussed. (TAKE NOTES!)
Fatigue is part of the PD itself. You really can't, nor should you try, to make a person do more than they can comfortably do.
Of course, a balanced diet, exercise as permitted and mental stimulation is all a part of the whole.
A good night sleep is also important. If you LO is up many times to use the toilet, that's a bit daunting, but with trial and error, you'll find a happy balance.
ANY disease of 'whole body' involvement will take years to recover from--PD sadly, the trajectory is downhill, so don't have impossible hopes.
2 years out of cancer tx and I still have to nap everyday to make it to bedtime. This is now my new 'normal'.
Your LO needs some tests. Parkinson disease does not necessary make people tired, some meds do, but people are not immune to conditions/ diseases not related to Parkinson’s.
About half of all people with Parkinson’s experience fatigue. However, fatigue associated with Parkinson’s disease is not quite the same as the tired feeling you have after a long day of work or caring for your kids, or after having insomnia for a few nights running.
Parkinson’s disease-related fatigue is often described as the sort of exhaustion that makes it feel impossible to move, as though one has no energy at all. Patients report a deep physical weariness that’s different from sleepiness. You may feel as though even simple daily tasks — making breakfast, going to answer the phone, writing a shopping list — wear you out.
Another feature is a debilitating mental exhaustion, sometimes called Parkinson’s apathy, which hinders concentration. You may have trouble getting started on a task, following directions or recalling details.
Figuring Out Causes of Fatigue
The first step in easing the fatigue associated with Parkinson’s disease is to rule out other causes of tiredness, says Liana Rosenthal, M.D., assistant professor of neurology at the Johns Hopkins University School of Medicine and director of clinical core at the Morris K. Udall Center Parkinson’s Disease Research Center of Excellence. “We evaluate patients to see if there are other things contributing to the fatigue besides their disease,” she says.
Sometimes patients may be referred to a sleep specialist for an evaluation. That can help identify causes of tiredness, like sleep apnea. Rosenthal says: “Our aim is to first treat any sleep issues, like insomnia, sleep apnea or other causes of poor sleep. Once we treat and address those issues, we can see if fatigue still persists.”
5 Ways to Break Free of Fatigue
If you and your doctor have established that you don’t have other health, medical or behavioral issues that are causing your fatigue — and that what you’re feeling is truly a symptom of your condition — there are things you can do to fight off exhaustion and feel better. Here are a few suggestions:
~Assess your medications: Parkinson’s drugs boost dopamine production in the brain, and their levels — and that of the dopamine — can vary. “If you’re on too low a dose, you may dip into a low dopamine stage that can leave you fatigued,” Rosenthal explains. You should also tell your doctor about any other medications or supplements you’re taking to see if any of them are causing fatigue.
~Exercise: It may feel counterintuitive to exercise when you’re feeling sluggish, but many Parkinson’s patients find that starting the day with exercise, such as a brisk walk or a yoga class, boosts energy all day. And although exercising vigorously late in the day — within a couple of hours of bedtime — can interfere with sleep, a light workout, such as a walk or some simple stretches, may help you relax and get a better night’s sleep. Experiment with times and types of exercise to find what gives you the best results.
~Take a daily nap: Some people find naps very restorative; others never quite get the hang of fitting one into their day without disrupting nighttime sleep or daily activities. “But a short nap can be an effective way to ease fatigue,” says Rosenthal. As with exercise, experiment with the time of day and length of your nap. As a general rule, longer naps too late in the day can interfere with sleep later and make you groggy. Aim for 10 to 30 minutes in mid- to late afternoon.
~Drink caffeine (but avoid alcohol): “I frequently recommend a little bit of caffeine to my patients with fatigue,” says Rosenthal. “If that’s what you need, especially in that low-energy time after the lunch hour, there’s nothing wrong with it,” unless you find that it affects your nighttime sleep. “What we like to do is think in terms of what makes the most sense for each patient to live a full, good quality of life.” That said, try to avoid having alcoholic drinks in the evening.
It may make you feel sleepy at first, but alcohol is known to cause poor sleep quality.
~Consider psychological causes: There has been increased focus on the connection between depression and Parkinson’s, and fatigue is a significant side effect of depression too, says Rosenthal. Ask your doctor about getting screened and possibly treated (via medication, talk therapy or both) for depression.
************************* Hopefully this article was helpful. Here is the link:
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Fatigue is part of the PD itself. You really can't, nor should you try, to make a person do more than they can comfortably do.
Of course, a balanced diet, exercise as permitted and mental stimulation is all a part of the whole.
A good night sleep is also important. If you LO is up many times to use the toilet, that's a bit daunting, but with trial and error, you'll find a happy balance.
ANY disease of 'whole body' involvement will take years to recover from--PD sadly, the trajectory is downhill, so don't have impossible hopes.
2 years out of cancer tx and I still have to nap everyday to make it to bedtime. This is now my new 'normal'.
How to Fight Parkinson's Disease-Related Fatigue
About half of all people with Parkinson’s experience fatigue. However, fatigue associated with Parkinson’s disease is not quite the same as the tired feeling you have after a long day of work or caring for your kids, or after having insomnia for a few nights running.
Parkinson’s disease-related fatigue is often described as the sort of exhaustion that makes it feel impossible to move, as though one has no energy at all. Patients report a deep physical weariness that’s different from sleepiness. You may feel as though even simple daily tasks — making breakfast, going to answer the phone, writing a shopping list — wear you out.
Another feature is a debilitating mental exhaustion, sometimes called Parkinson’s apathy, which hinders concentration. You may have trouble getting started on a task, following directions or recalling details.
Figuring Out Causes of Fatigue
The first step in easing the fatigue associated with Parkinson’s disease is to rule out other causes of tiredness, says Liana Rosenthal, M.D., assistant professor of neurology at the Johns Hopkins University School of Medicine and director of clinical core at the Morris K. Udall Center Parkinson’s Disease Research Center of Excellence. “We evaluate patients to see if there are other things contributing to the fatigue besides their disease,” she says.
Sometimes patients may be referred to a sleep specialist for an evaluation. That can help identify causes of tiredness, like sleep apnea. Rosenthal says: “Our aim is to first treat any sleep issues, like insomnia, sleep apnea or other causes of poor sleep. Once we treat and address those issues, we can see if fatigue still persists.”
5 Ways to Break Free of Fatigue
If you and your doctor have established that you don’t have other health, medical or behavioral issues that are causing your fatigue — and that what you’re feeling is truly a symptom of your condition — there are things you can do to fight off exhaustion and feel better. Here are a few suggestions:
~Assess your medications: Parkinson’s drugs boost dopamine production in the brain, and their levels — and that of the dopamine — can vary. “If you’re on too low a dose, you may dip into a low dopamine stage that can leave you fatigued,” Rosenthal explains. You should also tell your doctor about any other medications or supplements you’re taking to see if any of them are causing fatigue.
~Exercise: It may feel counterintuitive to exercise when you’re feeling sluggish, but many Parkinson’s patients find that starting the day with exercise, such as a brisk walk or a yoga class, boosts energy all day. And although exercising vigorously late in the day — within a couple of hours of bedtime — can interfere with sleep, a light workout, such as a walk or some simple stretches, may help you relax and get a better night’s sleep. Experiment with times and types of exercise to find what gives you the best results.
~Take a daily nap: Some people find naps very restorative; others never quite get the hang of fitting one into their day without disrupting nighttime sleep or daily activities. “But a short nap can be an effective way to ease fatigue,” says Rosenthal. As with exercise, experiment with the time of day and length of your nap. As a general rule, longer naps too late in the day can interfere with sleep later and make you groggy. Aim for 10 to 30 minutes in mid- to late afternoon.
~Drink caffeine (but avoid alcohol): “I frequently recommend a little bit of caffeine to my patients with fatigue,” says Rosenthal. “If that’s what you need, especially in that low-energy time after the lunch hour, there’s nothing wrong with it,” unless you find that it affects your nighttime sleep. “What we like to do is think in terms of what makes the most sense for each patient to live a full, good quality of life.” That said, try to avoid having alcoholic drinks in the evening.
Continued......
~Consider psychological causes: There has been increased focus on the connection between depression and Parkinson’s, and fatigue is a significant side effect of depression too, says Rosenthal. Ask your doctor about getting screened and possibly treated (via medication, talk therapy or both) for depression.
*************************
Hopefully this article was helpful. Here is the link:
https://www.hopkinsmedicine.org/health/conditions-and-diseases/parkinsons-disease/how-to-fight-parkinsons-diseaserelated-fatigue#:~:text=About%20half%20of%20all%20people,for%20a%20few%20nights%20running.