I've been taking care of my mother for 1 1/2 yrs since my dad passed. There have been a few months here and there when I haven't. I moved in with her because she asked me to. When she would get mad because I wouldn't kiss her @$$ she would kick me out and have my worthless sister and her husband move in. Then she would get mad at them and have me back. Once she got mad at both of us and moved in for a month with my oldest sister who hadn't even talked to my mother in yrs.
So this past February she called my from my oldest sisters house and said she wanted to come back home and would I move in and help her. I said ok but things need to change. she agreed.
In the last few months she has been doing some really strange things. I knew her mind was going so I called her doctor. We went in and he diagnosed her with dementia.
I have her DPOA and her health care POA. So I took over on everything. I had too because she started giving things away. She asked me to take her to the bank to get $1000.00 out. I asked her why she needed that kind of money. She said she just wanted it. I said no so she grabbed her purse and went walking down the road. I went out and asked her what she was doing and she told me she was going to get someone to take her to the bank. She cancelled her next doctors appointment when they called to confirm. So I took the phone so she couldn't do that again. I told her she would get it back after the doctors visit. I also fixed the front porch so that she would have a hard time getting around a bench if she tried to sneak out again. I caught her at 2am trying to get out.
So we go to see her doctor she tells him she scared of me, that I stole all of her money, that I went out and bought a brand new car and my husband a brand new truck. she told him I was holding her hostage for a month (I blocked the porch for 2 days). She told him so many lies I was stunned. I would try to defend myself and he got up and with a raised voice said we were both acting like 2 year olds and that he was going to call Adult Social Services. I said really? I'm doing my best to take care of her because she asked me to and gave me the rights to take care of her business. That was HER decision she made at her attorney's office where she had the papers drawn up and signed.
So then he has me go in another room to talk to me. I told him all the crazy things she's been doing, messing up her medications etc. He said he wanted to see us back in 2 weeks and if things weren't better he would call Adult Social Services. My mother told me that he asked her if I had ever hurt her, she tells me she said no. She said he asked her if she was afraid I would, she tells me she said no. She tells me she told him she wants me to be with her and take care of her.
So, the very next day guess who shows up. Adult Social Services. They come in and ask her some questions about if she was afraid of me etc. Then she talks to me and I explained why I had done the things I did even though I feel I shouldn't have to explain myself. This was this past Friday. Today is Tuesday. I gave her back the phones like I told her I would. I told her not to answer calls from anyone she doesn't know...so the phone rings and she answers it. It was for me. I get off of the phone and told her that I had told her not to answer to anyone who calls. She said well it just kept ringing. I said let it ring. She says "hear we go again".
So now I have to walk on eggshells?? Because she going to continue telling everyone I'm a monster? I forgot that part. She has told anyone she can how horrible I am but to my face says she loves me and wants me here.
I said what are you going to do? tell your doctor again so you can end up in a nursing home. She said she doesn't care that it's better than putting up with this.
Who protects the caretaker? What can Adult Social Services do to me? I've been so stressed its insane. I'm crying constantly. I take darn good care of her yet they will believe the rants of a woman with dementia?
I have no one to talk to about any of this. I'm scared. I want to take care of my mother but I don't want to end up in jail because of her. What can I do?
Regarding nursing homes, please do not make a nursing home a "punishment", you are scaring your mother.... with dementia some day she might have to have 24 hour care which you might not be able to do, and you wouldn't be able to get her to even visit one.
I want to take care of her. I do want to be here. I feel responsible for her and I do take d*mn good care of her. But she is the type that isn't happy unless she is causing drama.
Now I'd like to make a few observations from your post.
You know she has dementia yet you expect her to remember not to answer a ringing phone. Much of what dementia'd seniors do is from habit. Pretty predictable that she would answer the phone, don't you think? She probably doesn't even know why you're angry about it. And why DON'T you want her to answer it, by the way? If you're expecting her to look at the caller ID, which it sounds as if you do, I think it's likely you're expecting too much.
I use that as an example. Taking care of dementia'd loved ones is more about manipulation than you think. Example...
When she wanted to go to the bank for a thousand dollars? Instead of no, tell her you'll take her for sure tomorrow. When tomorrow comes,she may or may not remember. If she remembers, take her but suggest she start with $50. You'll take her for more when she needs it. Then take her out to lunch.
Hope some of this makes sense. I know APS being involved is spooky, but, believe me, you and mom aren't their first rodeo.
The caseworker told me I could take the landline from her as long as I let her keep her cell phone. I didn't want to do that but I might have too.
Right now she's pouting and won't eat.
I feel like a failure even though I know I'm taking good care of her. She has no one else. My sisters haven't even asked me if I needed any help.. My oldest sister called one time to make sure she knew that she wants her share of the sale of the house! I said umm she's not dead yet. The other sister calls every other day to ask her how she is doing but hasn't offered to visit or have mom go to visit her.
As I said, I'm new to this. I guess I needed to talk to anyone who could offer support. I don't know all the in's and out's of dementia. I had hoped her doctor would help me but he was horrible to me.
I guess I'll just get back to reading about it. I just really needed someone to talk to
You just can't argue, you won't win. The ability to reason through the simplest things is no longer there.
Don't correct them all the time. It just reminds them that something is wrong, and they can become confused and angry.
Don't play 20 questions. "Don't you remember this or that?" They don't and won't. Don't bother with it.
Don't get mad. This is the hardest for everyone dealing with dementia. You have to remember it's not their fault. It's even harder when the relationship has always been bad.
Fib, lie, use deception, divert attention, trickery what ever you can do to induce a loved one to do what's needed for their welfare and YOURS.
Finally, it only gets worse. Be prepared, lay track ahead of time for the next crisis and take care of yourself. Don't let guilt or others inaction and dumping all the responsibility on you kill you. Stand up for yourself. If putting Mom in care is the only way you will survive, then that's what you do
I do take her to get her hair done. She won't bath unless I push it and she tries hard to get out of it. but I just get things ready and tell her okay get in and she will.
I have to bring her her food and meds even though she's perfectly able to get up and get things herself. She sits in a chair and watches tv all day. this is not new. She has been like this for years. My dad had to cater to her. If you don't jump when she snaps she's pissed. Well, now I tell her it can wait, or it's not going to hurt the truck to be out of the garage I'll put it in later. She knows now she can't threaten me if I don't jump when she says. So that part is nice but she still nags constantly.
The thing about going outside is a laugh. She told them I won't let her go out yet I try all the time to get her to come out with me. She'll stand at the door and watch what's going on .... so she has something to complain about but rarely comes out.
My main thing that I would like to know is am I okay. If the caseworker believes her what can happen. I am very protective of my mom. She makes me mad as heck but I still am very very protective of her.
I'm thinking about cancelling the next doctor appointment because he was such a jerk. I've been going to her appointments with her for years so he knows me and knows I take care of her. Even way before she needed it.
As an elder's memory fades, they still remember how to use a landline from when they were growing up. Cellphone buttons are very small and difficult on poor eyesight. Also clarity of sound, again difficult on an elder with limited hearing.
I would also try to keep reading as much about dementia as possible. The brain changes and the patient cannot be held to the same standard that they were held to previously. Even if the patient was rude, a liar and demanding for 40 years, when they get dementia, they have an excuse. Dwelling on old behavior throughout their life is not productive. I think I might see a counselor about dealing with it and accepting what has happened. You may not get your mom to ever behave in the way you think is proper. She will not be capable. Having high expectations can be very disappointing. Plus, she her dementia will progress.
I would also let go of expectations of her being polite or saying the right thing. With dementia, that's rarely what you do. You may say or do very bizarre things. It's expected and not odd by those who know dementia. You may explain that to others who don't know this. They will just have to adjust and accept it as well.
I wish you both all the best.
With a cellphone all the dispatch gets is the closest cell tower, which could be miles away, unless the cellphone has an option for direct location.
With my cellphone, over the past year I have been getting advertisement calls, so those robo calls have drifted into the cellphone world.
Do take her out more, take her to the senior center. Let her complain and do not defend yourself. As was suggested, become transparent, get yourself an advocate/witness to be around the two of you "two year olds". So sorry your doctor said that. Keep going back, however, you can get a second opinion from a geriatric psychiatrist for your mom. Don't allow criticism to drastically change the way you have done things right for your mom, unless it is warranted.
Call your phone company for features and ideas of how to limit incoming calls through the message center, call screen, etc.
OR, JUST REMOVE THE RINGER ON THE LANDLINE, because it is very important to allow a senior to call out. She can receive calls on the cell phone.
Take care of yourself.
Good luck, don't be afraid to get her professional help.. Don't make it a punishment..
1) Encourage social services to come over on multiple occasions, this will become legal proof in the future to show there is nothing wrong with the physical treatment you are providing your mother. It will also allow them to ask various questions to which no doubt she will answer differently every time, further adding proof that she is not all there to even know what is going on even in her own mind. It also gives a timeline needed in court should any of the bad siblings try to slander you in order to get her money, the social service people can be brought to court to be your witness that you have taken care of her, are not a drunk or abusive or whatever type of person, etc. that your other bad siblings or even your mother may state.
2) Hire a live in person for a while, that will allow your mother to put her madness on someone else so you remain sane yourself too, also it may remind her that going to home is the next step if she continually demands to be put in one. If her mind becomes so bad that it is 100% tormented by puppet spirits driving her to want to go to a nursing home, then let her be put in one for a month trial, you are not deserving of her torturing you daily in anger if she is not happy staying with you. You will go insane too in the end if there is no separation sometimes and warnings to her to control the puppet spirits driving her paranoia. She will see what the truth is by living by herself in the nursing home and most likely tell you to bring her out of it. Video tape her statements and let her watch them back in cases like this, it will help her question the puppet spirits that are deluding her.
But here's the thing. She's now knows she has the upper hand on me. Which she lost until APS came over. Now she knows she can call them anytime she gets mad at me. She's always been a control freak. When I was little even at 5yrs old she would say things to me like if I don't clean my room she's going to leave and never come back or she would say that social services would take me away. She's always threatened me with stuff. And for a minute it was so nice that she couldn't. but now she can again. I keep telling her she's only hurting herself but she says she doesn't care.
For those of you who keep bringing up the nursing home. Please stop. I'm not using it for punishment or whatever. I simply reminded her of what the doctor said and it was only the one time. The part I didn't remind her of is that he told me with the way she is being so aggressive no home around here would take her. She would have to go to one in Detroit.
I wrote here to try and get an answer for how I can protect myself. I've gotten a couple of really good answers. One was harsh but I have read that persons responses on other threads so I expected that. I need support. Which is why I posted here. I'm so depressed I'm crying constantly. I have no help and no one to talk to. I left my home and friends to come here. I can't even go outside for a minute without her pulling something or saying something. She complains about everything. I'm at my wits end already and it's just the beginning. She watches everything we do. And she sits and plots. She plots on how she can destroy me. Why?
So anyway, I made her an appointment to get her hair done Wednesday. She gets her hair permed and trimmed. The lady who does it is just bought the business she worked at. So she needs all the appointments she can get. So now because my mom is mad because I asked her why she said what she did..... she wants me to cancel the appointment. She wouldn't eat her dinner and is is pretending to throw up, and pretending she is dead. Her next doctor appointment is Thursday. So I know she is planning on telling him a bunch of crap.
thank you for reading this
Girl I feel terrible for you!! First things first, you MUST learn to STOP arguing with her. That will be your first big challenge. It's hard to just STFU, but if you learn this one, you're on your way...
If her doc diagnosed her with dementia, well then, he shouldn't be surprised at anything she says, at least my mother's doc wasn't. He usually just chuckled and said "Is that so"?... as far as ANY phones, I personally would take them away from her. She does not need them. If she's doing any sort of irregular stuff with them, then it becomes a hazard to both of you. You're there with her 24/7 (yikes), if she needs something or wants to talk to someone, I'm sure you will provide for her.
If she's acting like a brat right now and doesn't want to eat dinner, so be it. She will not starve missing supper. Go about your business. If you plan on keeping mom at home, before she's too far gone, you need to really do hard ass homework on Alzheimers/Dementia or else you will not make it much longer...
Oh, baby proof the house. Make it where she isn't able to escape without you knowing... nice you have all the alarms, but if you have a gate outside, fix it so she can't get out that way either....
I will never forget the time my very own dear mother escaped and ran down the street hollering someone ( was going to kill her )...gasp!! I had just spent the last 2 hours doing her hair and nails... the mind is a curious thing.
Protect yourself.... let APS come in, who cares?... they'll leave you alone (hopefully) once they realize what really is going on.