Follow
Share

My mom went into AL about 3 weeks ago after having in home care for about a year. She is NOT liking it!! A year ago she was walking with a walker and fairly independent. Now she uses a wheelchair and needs assistance to get around. She cannot propel it herself. We got her an electric wheelchair so she would feel like she had more freedom but she is reluctant to use it. She won’t socialize, go to meals and has no interest in changing her attitude. She is in a nice place (apartment style) and the staff for the most part are good to her. They are usually pleasant when they come but often take longer than I think they should to answer her call button. (30 minutes plus…is that normal?) She is in constant pain with her many ailments. When she went into AL she was a 1 person (caregiver or myself) assist. Since being in AL she has gotten worse and now requires 2 people to go to bed, get out of bed or use the bathroom. Since she is a 2 person assist they require her to do PT and OT to get stronger. This makes her hurt more! If she doesn’t do therapy she can’t stay at this AL. (They are only licensed for 1 person assist.) I personally think a lot of her problems are due to depression. If she was happier I think she would go back to being a one person assist. My mom has no desire to live because she is in such pain. We have tried pain management to no avail. We are hoping to get another appointment with a different doctor hoping he/she will have more ideas/options. She doesn’t want to take depression medication since she took it a few years ago and it made her a zombie. She also doesn’t think she is depressed. On top of all of this she smokes and is able to smoke on her patio just outside her door however winter is coming and she will hate going outside!! Now that she is in AL I am only 15 minutes away. If she goes back home with 24 hour care she is 45 minutes away. She also lives in a remote area where as now she is in a city that has bus transportation to dr appointments, shopping or even going out to lunch. It is next to impossible to get her in and out if a car.
Bottom line…I want her to be happy and ideally pain free. The pain may not go away but she can be happy again. Do I bring her home with caregivers or “force” her to stay in AL or a nursing home? Caregivers at home are quite a bit of $$$$ and no guarantee she will be happy and most likely she will still be in pain. Bringing her to my house is out of the question due to her smoking!

This question has been closed for answers. Ask a New Question.
Find Care & Housing
You are not responsible for your mother's happiness.
You cannot control her happiness. You are correct. Bringing her home is no guarantee of happiness. She is elderly and things are not going to get better. In fact they will get worse and there will be more losses, more pain and more unhappiness. I am 82. I can assure you that aging is not about h-a-p-p-i-n-e-s-s. That isn't how aging is spelled. It is spelled in capitals: L-O-S-S.

You tell your mother you are very sad that she isn't happier. That you understand her losses, her grief, her mourning. That she should perhaps see a doctor to see if a mild anti-depressant might help a bit. You tell her that you mourn all this and it is hard to stand witness to her unhappiness, but that this is now the best, in fact the ONLY option. Let her know that running out of money in a home care situation would mean a nursing home, and that would be devastating.
Ultimately, and if she argues with you, you will tell her again that you are sorry, and that this is the best that can be done now.

That's it.
No happiness, no cheering, no banners, no parties. This is about TRYING to pull SOME contentment out for the time we must remain. And I stress the "must" because some of us long for an option. Your mother is burdening with the yoke that is too heavy because she believes you may have an answer. You DO NOT have the answer. THERE IS NO ANSWER.

I am so sorry. But your mom has had her life. Do not let her ruin yours. Do not throw your own life and contentment on her burning funeral pyre. She has no right to that. I say that as an 82 year old mom. Mom's generally come in two types. One will burden you with their own burden and one will lie and tell you "Yeah. Things are good!". You happen to have drawn the former. I am sorry for that because it causes children to feel things they should NOT have to carry.
Helpful Answer (17)
Report
ElizabethAR37 Oct 6, 2024
Totally agree. I've essentially had my life. Chirpy bungee-jumping super-agers aside, at approaching 88 that's the/my truth--which doesn't mean that I'm entitled to be a total grouch and raise havoc for everyone else. I try to be the mom who tells our kids that "Yeah. Things are good." I intend be that for as long as I possibly can, hopefully right up until I make my Final Exit one way or another. I only hope that effective pain and anxiety relief will help that along! Chronic pain is miserable; I'll give it that.
(7)
Report
See 2 more replies
It's only 3 weeks. Give it more time
Helpful Answer (14)
Report

Hi Lisa, I’m so sorry for what you’re dealing with. I have a similar situation. My parents have now been in assisted living for one year and absolutely hate it. But someone on this forum shared with me that often it is not necessarily that they want to go home, but they want to go back to who they used to be. They want the life they used to have back. Unfortunately, their minds and. their bodies are not capable of that. Hearing this just kind of helped me understand. Hope this helps a little. It’s a difficult situation I know!
Helpful Answer (13)
Report
JuliaH Oct 6, 2024
Very insightful, you learned quickly!
(4)
Report
See 1 more reply
Do. Not. Take. Her. Home.
Helpful Answer (11)
Report

You want Mom to be happy . But Mom has no desire to live because she’s in so much pain .

Your Mom may not be capable of being happy again , and that’s ok . She doesn’t have a lot to be happy about due to age , pain , immobility .

If Mom can’t afford homecare then that’s out of the question .

Unfortunately it sounds as if Mom may need SNF nursing home if she can not do PT OT .

See what the new pain doctor says . And does Mom know she needs to improve to stay in AL , rather than go to a nursing home where she would most likely share a small room ? Perhaps it would motivate her . Or perhaps she will say she’s in too much pain for PT .

Some more time will tell .
You don’t say what her medical conditions are or if she may qualify for hospice .
Helpful Answer (10)
Report
MiaMoor Oct 11, 2024
If she has to share a room, the company might do her good. However, she wouldn't be able to go smoke on her balcony - that would be the real kicker!
(0)
Report
See 1 more reply
DO NOT TAKE HER HOME.
Helpful Answer (10)
Report

If you bring her home, you will be at her beck and call and you will wear yourself out physically and emotionally. I know it's hard, but she's better where she is. I envy you that you got her in there.
Helpful Answer (10)
Report

Since my mom has been in AL (1 year), she has decided to use her wheelchair more and more, instead of the walker. This has caused her to get weaker. We have tried to do PT and she will send them away and tell them that she doesn't need them. The only time she actually uses the walker to go to the dining room, is when one of her daughters is there to make sure she uses it. I suspect she won't be happy until she's completely dependent on the wheelchair. My point here is that it's ultimately up to her to stay as active as possible. She knows once she gets to needing two people to transfer her, then she will no longer qualify to stay in the AL, but will need nursing home care. There is nothing I can do about that. If I were you, I would NOT bring her home. There is no guarantee that she would be better off there.
Helpful Answer (7)
Report

It is no longer about what she wants but what she needs.
Helpful Answer (7)
Report

This isn't a matter of what can you do, you already made the decision and it's the best one. You can't expect someone who needs that much assistance to go home. It's a big guilt trip that you want to go away but only you can do that. Stop punishing yourself, you've done all you could do. Worrying about making her happy isn't as important as what you've already done...she's safe and cared for! You can't accommodate any living arrangements, any better, than what she has. Just think what would happen if she dropped a lit cigarette and was unable to pick it up? You think she's just going to be able to jump out of a wheelchair and get water to put out a fire? See? You're good!
Helpful Answer (6)
Report

See All Answers
This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter