My mother is in an ALF and I am the only one near to her that can visit. She has early dementia, bi-polar, depression/mania and has a narcissitic personality disorder. She has relied on me since my dad died in 2009. My husband wants to visit his mother in Florida who is 91 and other family members too. We plan to leave on the 26th of Dec., how do I tell her my plans? What words do I use? She will not like it but I feel she will survive. I can call her every other day if that will help. Any suggestions?
Is there anyone who can come visit for a few days? Another sib? Is she on meds? Can you hire someone from one of those home care agencies (i.e., Home Instead, not a CNA or RN) to come visit her a couple of hours a day? You'd need to start that NOW and check out 2-3 people to find one who is compatible, maybe have them come while you're there so you can check their personality also. Or is there a church that has a ministry to shut-ins nearby? Sis's church has something called the Stephen Ministry and a woman has been coming to visit Mom on Saturdays for a couple of months now. Maybe a caregiver can set up a Skype or FaceTime call with you. Also, alert the ALF staff and her doc. Best of luck to you; enjoy Florida and know that you need this time away more than she needs you there.
With her personality, it probably won't make any difference to her if you twisted yourself into a pretzel to take care of her while she's gone. She's still going to be unhappy that you have a life beyond her. And that's OK. She'll survive and you'll feel refreshed when you return (if you can, since you're going to be dealing with your husband's mom). Good luck and keep us posted.
I can't make her be happy if she is not a happy person to begin with. I don't think she is as bad off as she wants me to believe. She's the type of person that doesn't have any problem lying to your face, she has done that to me alot.
You have the luxury of knowing in advance that you need to be gone. Not only can you set up some kind of service (such as a visiting caregiver) if you feel it's necessary, but you can also make a decision about how to inform your Mom in a way that is the healthiest FOR HER. You are pre planning how to tell her out of your own guilt about leaving. Don't do that! The sooner you tell her, the longer she will have to ruminate about it and possibly even make herself sick over it.
Once you have everything technically and administratively arranged, it may be best to tell her either at the last minute OR actually just leave as if it were an emergency and then either tell her by phone that you are gone or have someone there tell her for you if you feel that would be more humane.
I would try NOT calling HER to check on her (call the staff instead to find out how they think she's doing). Let the staff try to encourage her to participate in activities as a distraction. If she doesn't have you to lean on daily, she may be more willing to do that. THAT's what my mom did. As long as she thought I was coming, she kept waiting for me and would not go to activities. But on the days I had to work, I'd ask the staff to remind her that I wasn't coming, and those days she would go play bingo, etc. Give your mom a chance, she may surprise you. Maybe not, but you don't know yet.
When I say to have things administratively coordinated, how far away will you be and for how long? You should consider whether you want to set in place a temporary health POA if they can't reach you in the case of an emergency.
If you would allow me to introduce some metaphysical woo woo here, IMO, the universe operates on vibration. Psychic studies have been done (some at universities) about owners leaving their anxiety ridden dogs when going on vacation. The very interesting thing that came out of the research was that the dogs who had the LEAST anxiety when their owners were gone were the ones whose owners had been able to let go of their OWN anxiety over leaving their dog and just have a good time. The conclusion was that having a happy dog back home may be more a matter of training the owners to put negative thoughts about the dog being left behind out of their minds. Working with dementia patients is more emotional, more visceral, more vibratory; more like it is in the animal brain. Wouldn't it be interesting if this concept could hold true in people with impaired brains, who aren't able to think with as much of their intellect anymore?
You know your mom better than anyone, but this time away is respite for you, and since this is maybe a long term situation, you need to learn to relax and not make decisions out of guilt. Your husband and family need you too, so you must find a balanced way not to spread yourself too thin. This is probably going to be emotionally harder on you than it is on your mom.
And lose the guilt. Just another narcissistic ploy. Don't buy what they're all selling. You'll feel SO much better!
All of this does rely on StandingAlone's very good advice. You're going, if she doesn't like it too bad. Yes she will most certainly survive. Do NOT let her attitude spoil your party, or even worse make it difficult for you to support your husband and enjoy visiting his family. Bon voyage, have a great time x
In the next couple wks talk to the ALF director and staff and tell them your plans and enlist their help to reinforce your trip with mom and how much fun and outings and activities are planned during that time and "won't it be nice mrs smith to be able to join us on our shopping outing at X or now you'll be able to join Joan and Susan at the dance New Years dance we're having.." .
Mom will be fine and the time will pass quickly. Don't worry, you spend a lot of time with her and now it's time to support husband in his visit to family.
Don't think its necessary to call everyday unless you want to. Just be prepared that the calls might tug your heart strings if she sounds unhappy. Don't let it spoil your time away. Please enjoy your break and safe travels!
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