Mom's travel update.... So it's time to decide to take mom to Texas for Thanksgiving or not and I desperately need advice. 3 weeks ago I was for it but now I feel that it would be very difficult to travel with mom at this point especially with the crowds at the airport and possible delays (Which is likely during holiday travel). My brother feels that he promised mom that one of us would go with her this holiday for a visit, therefore he wants to send her. He said if I didn't want to take her, he would send her with a friend of the family. He can't get off from work during holidays. So, she may be going either way as I am not her POA and my brother feels he should honor his promise (regardless of moms status). I know I will feel guilty and worry if I don't go but, I don't think it's a good idea anymore and I think we'd both be miserable. What do I do? Do I say, I don't think it's a good idea again and then just let her go with our family friend? I also feel like all my relatives are going to judge me for not wanting to travel with mom for the visit. I want to take her but I don't think it the best thing for her. Feeling stuck between a rock and a hard place. Please give me your thoughts.
Guilt about what? This is a self imposed emotion, you seem to be suffering from FOG..
Fear leads to Obligation which leads to Guilt. All these are non productive ideals.
You can't control what others say or do.
Anyone that judges you for standing up for your convictions is free to travel with her. Just because someone wants something doesn't mean it is a good idea to give it to them. It is easy for your brother to say he is going to do this, because he is dumping the doing part on you.
Stand strong and know that you are doing the best thing by saying it is such a bad idea, I refuse to participate.
If your relatives want to see her, there are ways to do that with technology.
Do not be guilted or bullied into taking her yourself. You would become her personal attendant at all times. That is not fair to you.
EGADS!
Tell him NO, it is not a good idea and NO you will not be involved in traveling with her. If he wants to come to FL and travel to TX with her, LET HIM. Sometimes a person needs to experience what it really means to take care of someone with dementia.
Late stage dementia and crowds do not mix.
Do not be guilted or bullied into doing this.
Go with your gut.
So, are you saying that I should let them take her and just stay home and wait to hear about it or should I object more than I already have that she shouldn't go. I don't think my brother will change his mind. He doesn't have a full grasp of the details of what dementia patients are actually going through during their journey, (I can't educate him on it)he has to do that. That's not to say he doesn't love her or want what is best for our mother. I think he thinks she will enjoy it, and she may for a few minutes, but I think that about it. The cons of her traveling at this point in my opinion outweigh the pros considerably.
I'd likely consult with an attorney in your jurisdiction to see what the options are. I might consider taking legal action to prevent the trip. It's a lot, I know, and no one wants to create discord within the family, but, some things are just too ridiculous to tolerate. No one would take action that was not good for my mom, who can't protect herself. So, no, I wouldn't stand by and let him do this, if I felt it was detrimental to her well being. Other's opinions of me are fine, if, they are based on me standing up for my mom. But, that's just me.
I am just a captive that can be chewed on.
Just decline... it sounds like you have already told him why it isn’t a good idea. You don’t have to convince him... that isn’t your responsibility. As POA, it is HIS responsibility to understand his mom’s condition. Nothing you say will sink in, although I have used condescension successfully in the past, lol.
Just say, “Yup, well, since you are committed to arranging this trip, I wish you the best. We’ll have to agree to disagree on this one. If you get stuck, I am sure you will figure it out.”
And do ABSOLUTELY NOTHING. Don’t talk about it. Don’t brainstorm ideas with him. Don’t talk about it with your mom. Don’t help pack. Don’t talk to relatives about how to get mom there or what they need to know.
You are back to your own life. Ball is officially in his court.
When the rubber meets the road, I would imagine this trip will not happen. He may be suggesting family friend without having yet had a conversation with family friend about any of this. Even if she has indicated she might do this, that doesn’t mean she will follow through.
If she asks what you think - and if she has half a brain in her head, she will - go through what this would look like step-by-step with her including possible pitfalls listed above... do this ONCE. You say, “Sure, I can share with you what I see based on my experience and knowledge of dementia. I ultimately don’t think it is a good idea, but I do understand how it can look appealing from arm’s length. You have a good heart, and it is completely up to you whether you want to take on this level of responsibility.” Then, you don’t talk about it again.
I cannot imagine anyone with caregiving experience would take this on at this stage. It will probably just fall through the cracks.
If anyone in the family asks you if you are bringing mom, keep saying, “Brother wanted to handle that, you’d have to ask him what he is planning to do.” You can even add a “bless his heart, so sweet of him to want to, but he has a lot to sort out because anyone who understands (implying of course that the person you are talking to and you both are very knowledgeable, lol) dementia even at a basic level has to weigh the risks of causing rapid decline for mom. It’s a hard position to be in... so colored by emotion. Poor guy.” And maybe tack on a “I think it is just harder to see for someone who isn’t really in the trenches. My day to day interactions with Mom probably give me an advantage in having a better grasp on her reality... he’ll get there in his own time. I am not worried:)”
(snicker)
It can be very hard for people to understand that people with dementia are experiencing life on a totally different plane than we are. Putting yourself in their shoes, as we try to do for others, no longer works. It is hard to wrap the mind around that. They don’t experience joys as joys most of the time. He needs to realize that just because he THINKS it will be good for her because, in his right mind, he would like it, doesn’t mean it will be good for her. Even if she wants to. The fear and anxiety that comes along with anything outside of a very, narrow routine is huge and hurtful to the dementia patient. It is not kind. Such a paradigm shift, I know.
But, his not seeing it doesn’t make it your problem. Whatever happens, your mother will live. You can’t protect her from everything. Even if it isn’t great, she isn’t likely to remember it anyway. So let it be. Once you have educated him (which you already did) and the family friend (if she asks), this is no longer your burden.
Any family talk goes right back to him. You do not defend, you deflect. This is not on you. And you may have to put your armor on and realize people will talk about you. Oh well. In most families, people do anyway. Good luck.
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