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As a general rule, if hospice or any medical staff use terms that don't make sense to you don't be afraid to speak up and ask them directly what they mean.
Transitioning means moving from one phase to another. In the context of hospice it *may* mean that your father is reaching the end of life, but PLEASE don't take my word for it - speak again to your hospice nurse and ask her to explain more clearly what is happening and what you should prepare for.
That’s what this forum is all about - caregivers helping caregivers. Be it advice or explanation of terms or diagnosis one might not feels comfortable asking someone about in person - or perhaps might have been too overwhelmed at the time to ask about. Or whatever...
No need to bite Biomidkids head off - I’m sure she’s/he’s having a hard enough time as it is without being snapped at here when she/he was asking for help.
Please if you have ANY questions regarding your father’s care or the terminology that is used in regard to it, do not hesitate to ask!!! Every hospice organization I’ve worked with has made numerous individuals available to family members for support. The nursing staff, social worker, chaplain, grief counselors, coordinators are all available for you and your loved ones at anytime. If someone doesn’t know an answer to a question you have they will either research it or direct you to the right individual.
"Transitioning" is also a term for "Actively Dying" this means that he is exhibiting one or more signs that the body is giving up. This could be from skin mottling. to a particular breathing pattern and sound. Or it could be certain vitals are indicating that the body is shutting down. PLEASE do not hesitate to ask the Hospice staff what ever question you have. You can call today and ask to talk to the nurse, CNA, Social Worker or Chaplain. Any of them would be happy to explain further. As a matter of fact since your Dad is in this phase it would not surprise me if one or more of your Hospice team will stop by daily. If he is in an In-Patient unit ask any of the staff there as they will be happy to explain what is going on. If you think it is something that your Dad would enjoy ask if they have a Music Therapist that would come and play for him. I have heard from many people that this helps everyone.
My Mother's long term care insurance has a person whose only job is to facilitate transitions. When I chose the long term care Medicaid company for Mom, that person called to meet with Mom in order to get to know her personally and to offer counsel about transitions, as her title is transition manager.
I did not know what this meant so I asked what she did in this role of Transition Manager. She explained that her specialty is to facilitate transitions of a patient from one level of care to another, from one facility to another, from home to a facility, and also from a facility to return home. In Mom's case, the transition manager wanted to make sure that she had been placed in the appropriate level of care and wanted us to know what other options of care where open to us.
In many cases, the word transition is used as a very general term so make sure you ask the person what is the type of transition they are alluding to in your loved one's case.
If in fact the transition is into hospice, make sure that you understand that a percentage of the hospice population does not leave to a funeral home but may transition back to an assisted care facility as well.
Thank you Rainmom, and thank everyone for your kindness and help in understanding the stages a loved one passes through. What a comfort to learn that I wasn't alone in feeling lost and confused at times. To hear that Parkinson's Disease affected your loved one in similar ways brought me comfort. On Friday November 24th, Dad lost his battle with this disease, just 1 month short of his 89th birthday. It was his time to go, he was tired. He is now at peace. Thank you to all.
Lassie, Many times, when a loved one is critically ill, the family only hears certain parts of medical conversations. Sometimes we health care providers talk in "Doctor language ", with many words only used in the medical field. Families are usually overwhelmed with emotion and unable to process all that's been said anyway.
Most probably, Biomidkid "processed" this word after the hospice nurse left. It was NOT unrealistic to ask what it meant on the Agingcare forum in the catagory of "End of life and hospice" section.
Biomidkid - while it’s hard to loose a loved one any day of the year, I think loosing someone during the holidays must be especially tough.
My condolences on the loss of your father. My mother passed at 89 years of age - while it is a long life, it does seem that the body and mind just isn’t meant to carry on at that age. I hope it provides you comfort to know his body and mind is now at peace.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Transitioning means moving from one phase to another. In the context of hospice it *may* mean that your father is reaching the end of life, but PLEASE don't take my word for it - speak again to your hospice nurse and ask her to explain more clearly what is happening and what you should prepare for.
That’s what this forum is all about - caregivers helping caregivers. Be it advice or explanation of terms or diagnosis one might not feels comfortable asking someone about in person - or perhaps might have been too overwhelmed at the time to ask about. Or whatever...
No need to bite Biomidkids head off - I’m sure she’s/he’s having a hard enough time as it is without being snapped at here when she/he was asking for help.
Every hospice organization I’ve worked with has made numerous individuals available to family members for support. The nursing staff, social worker, chaplain, grief counselors, coordinators are all available for you and your loved ones at anytime. If someone doesn’t know an answer to a question you have they will either research it or direct you to the right individual.
This could be from skin mottling. to a particular breathing pattern and sound. Or it could be certain vitals are indicating that the body is shutting down.
PLEASE do not hesitate to ask the Hospice staff what ever question you have.
You can call today and ask to talk to the nurse, CNA, Social Worker or Chaplain. Any of them would be happy to explain further.
As a matter of fact since your Dad is in this phase it would not surprise me if one or more of your Hospice team will stop by daily.
If he is in an In-Patient unit ask any of the staff there as they will be happy to explain what is going on.
If you think it is something that your Dad would enjoy ask if they have a Music Therapist that would come and play for him. I have heard from many people that this helps everyone.
I did not know what this meant so I asked what she did in this role of Transition Manager. She explained that her specialty is to facilitate transitions of a patient from one level of care to another, from one facility to another, from home to a facility, and also from a facility to return home. In Mom's case, the transition manager wanted to make sure that she had been placed in the appropriate level of care and wanted us to know what other options of care where open to us.
In many cases, the word transition is used as a very general term so make sure you ask the person what is the type of transition they are alluding to in your loved one's case.
If in fact the transition is into hospice, make sure that you understand that a percentage of the hospice population does not leave to a funeral home but may transition back to an assisted care facility as well.
On Friday November 24th, Dad lost his battle with this disease, just 1 month short of his 89th birthday.
It was his time to go, he was tired.
He is now at peace.
Thank you to all.
Many times, when a loved one is critically ill, the family only hears certain parts of medical conversations.
Sometimes we health care providers talk in "Doctor language ", with many words only used in the medical field.
Families are usually overwhelmed with emotion and unable to process all that's been said anyway.
Most probably, Biomidkid "processed" this word after the hospice nurse left. It was NOT unrealistic to ask what it meant on the
Agingcare forum in the catagory of "End of life and hospice" section.
My condolences on the loss of your father. My mother passed at 89 years of age - while it is a long life, it does seem that the body and mind just isn’t meant to carry on at that age. I hope it provides you comfort to know his body and mind is now at peace.
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