Well, like the title says.....I'm so very sick and tired of people telling me how "fortunate", "blessed", "lucky" I am for having to take care of my 90 y/o mother who has dementia, they say "oh, enjoy this time with your mother, enjoy her while she is still here", "I wish I could have done that".....blah, blah, blah!!!!! I'm the one who is here, all by myself, every freaking day (with some help from my youngest daughter), but without the help of my irresponsible, heartless, selfish siblings.
What is so d.....m fortunate, or blessed or lucky about that? How can this people tell me that? When I ask if they have parents with this dementia illness, some tell me their parents are gone, other people tell me their parent is in a nursing home because "I can't take care of her, I have a job, I have other "things" to do, blah, blah, blah.
There is NOTHING, NOTHING remotely enjoyable about caring for elderly people, whether they are related to you or not. It's frustrating to say the very least. I have become a very selfish person, I truly do not care what anybody says, I'm taking care of myself first otherwise, I think I will buy a couple of plane tickets and take her back to Mexico and deliver her to one of my selfish sibling's door. Something stops me from doing this and, as my dear husband tells me, "it's duty, not love, what keeps you plugged in". It's true, I don't like this, I hate this, hate this situation and, since I can't very well take her back because they don't want her there, I'm stuck, hopelessly stuck until whenever she finally rests in peace. My oldest daughter tells me I'm being selfish when I leave her alone for a couple of hours to go work out but she never offers to come here and sit with her so, her opinion is totally irrelevant. I'm going to do what I need to do to survive until my mother dies. Never mind the possibly huge bills we will have to face if she needs to be hospitalized, I guess we will deal with that later.
So, stop embellishing elderly care, it sucks whether you are a daughter or son caring for your parents or a care giver, who has to work and has to be cleaning and changing soiled, smelly people because their relatives can't or wont do it themselves. I have to do it, if only because I have no other choice, but I don't have to like it, and I DON'T!!!!!
Next time someone tells me "I should be grateful for having the opportunity of caring for my elderly, sick mother", I'm going to either slap that person or invite that person to walk in my shoes for a week. Lets see how fortunate, blessed or lucky they feel afterwards.
On the other hand there is something deeply rewarding in being able to ease the suffering of another, especially a loved one. And I believe I am learning so much about life, death, compassion and about myself. I have learned to navigate the health care system, to step out of my comfort zone to be an advocate for another, and that I'd better make d#^%ed sure I have a plan in place for my own old age.
Tryingtomakeit, keep on getting out as often as you can, you need more "me" time to keep your sanity. Keep searching for support in the community. Don't listen to the idiots who think you should do more, and try to forgive the others, they can't help it that they really don't have a clue.
It didn't work. I left with my own mother, who is still with me. Rats! (Just playing)
JessieBelle, thanks for the smile :)
Then ask the homebound, burned out caregiver how much they enjoy theirs.
I'm fed up to *here* with people who say we should be "grateful" that we still have our parents with us. Of course we're grateful for every day we still have with them - if they're healthy enough to enjoy being here. If they're not, we wish they could be rid of all the pain, suffering and humiliation that comes with aging. Who wants to be subjected to constantly aching joints, kids and grandkids coming by to see you only rarely (if at all), the inability to remember your family on sight, urine and bowel incontinence, and the loss of memories you held dear? I mean, if your parent is relatively young, like mine is (74), and is already experiencing problems that most people don't until their 80s, then what is there to look forward to? More of the same, only worse. And I should be grateful for the chance to watch her spiral downwards? Why don't they just ask if we enjoy watching our parent slowly die before our eyes?
And then there's the fact that people who say we should be grateful to still have our parents seem to think that everyone had Ward and June Cleaver for parents. Not true. Trust me.
Sorry...this one kind of struck a nerve with me, because I've had more than one person pull that on me. If there's one thing that this caregiving thing has taught me, it's that I will *never* do this to my children. I am putting a plan in place for my own care, and leaving someone reliable in charge of my well-being if I become incapacitated - and my wishes will be in writing, spelling out exactly what's to happen in terms of my care - and it won't be one of my kids caring for me at home.
Even though I do not have the hands-on care anymore, it is still very tiring. I love my mother dearly, but today she put me through the ringer just with one phone call. She thinks she can move into an apartment. Sigh!
I have three daughters and already told them I do not want to be taken care of by them. I will not do that to my daughters.
My mother has absolutely no enjoyment except for watching Walt Disney movies all day, I've tried to interest her in knitting and putting small puzzles together, give her magazines to read but she just doesn't want to do any of that, so the tv. and the DVD player are on all day. It's a struggle to get her up to go to the bathroom, when she soils herself, it's horrible to clean her, bathe her, etc. She has lost all but 4 teeth so she can't eat anything solid, her joints hurt, I don't think she can see very well either, her doctor told me about 2 months ago that she has lost a lot of weight, but sometimes she doesn't want to eat, I can't force her to eat or drink, she keeps saying she had just had a big meal, it's horrible. She used to sit with my husband and I at dinner but I hated to be eating a nice stake with all the trimmings when she was eating her soup, she wanted to eat what I was eating but when I gave her a piece of chicken or meat cut in to little pieces, she couldn't swallow it. So we decided to take her meals to her room, this has worked better.
I just deal with this situation on a day to day basis, today might be a good day.....or not. She might start emptying the drawers to "pack her bags because the are coming to get her", she might take her clothes off, she might throw up or soil herself. When this happens, I have to go outside and take several deep breaths of very cold air and try to prepare myself mentally for what I need to do. After I take care of that, I come downstairs, sit and have a drink. Text my hubby about it and wait for his reassuring words. I do not think I could do this without his help and support.
One thing really upsets me, and that is the total and complete lack of responsibility from my siblings, it's like we have disappeared from the planet, it's really infuriating and I can't do a damn thing about it, I stopped wasting my time and energy and patience asking them for help, as far as I'm concerned, I have no siblings.
I'm also very scared and worried about my own old age. Right now I'm still healthy, I'm 63 y/o and I can still swim, bike and run and race, I love Triathlon racing, I've done 3 Iron Man Triathlons, the last one at age 60. But who knows what will happen in 10-15 years, I absolutely do not want to put my daughters and grandchildren through this hell. My husband and I have talked about it and we will take care of business when the time comes. We will leave it in writing so our kids don't have to suffer and alter their lives to care for us when we get to be this useless.
I firmly believe that children do not have to care for their parents, they should not feel obligated to do so, and it's not fair to say that "now it's our turn to return the favor", what the heck does that mean? Children do not ask to be born, all of us are born because our parents decided to bring a child into the world or because they were careless and got pregnant by mistake. Whatever the reason, we did not ask to be born, our parents decided that and they are obligated to care for us the best way they can. When you decide to bring a child into the world you are making a life time commitment to care for that child but I do not think that child should give up his or her life to care for the parents when they become old and sick. More and more adult children are put into this situation and it sucks. We are trapped by obligation. I love my mother, or at least, the memory of her, this poor frail, sick woman is not the mother I remember and it's very difficult for me to deal with caring for her alone. I really don't want to put my daughters in this situation. My husband's aunt had a neighbor who live to be 102 years old, the last 2 years were h*ll for this poor woman, her only daughter was herself old and sick too, only 2 grandchildren came to see her once in a while, my aunt was the one who looked after this lady and she told me it was so sad and terrible seeing Mary suffer like that.
I don't know, I better stop. Thank you all for your feedback, I really appreciate it, made me feel better.
Take care.
Have a great day, Life is a journey, not a race, and you do not want to end up leaving this earth before your client. that is NOT A JOKE. I had a type of colitis that was not ulcerative but it was eating away at my colon. I will be there very early. Thank you for allowing me to state the huge concerns of CAREGIVER BURNOUT. AND CAREGIVING IS NOT FOR EVERYONE, REGARDLESS IF IT IS YOUR Parent..
When your life looses it's meaning, when you can't even enjoy the most basic things that should bring you joy, what is the use to keep on breathing.
In my case, I do not enjoy having to watch my mother decline every day before my eyes, I'm just keeping her alive because I have no choice in the matter, but she is suffering and so am I. This nursing homes work so well because no one, NO ONE wants to deal with old, sick, mentally ill people, for the workers there this is just a pay check, for the owners of this places, it's also a way to live comfortably, it's ridiculous what they charge.
I don't want to end up like that, that scares me and upsets me to my core, I don't want to be a burden to my daughters or my grandchildren or even to the people that work in whatever nursing home I end up in, because I wouldn't want my daughters to have to deal with me the way I'm dealing with my mother, having to clean her up and change her diaper, watch her die a little more every day. I'm NO Mother Theresa, that's for sure, I just deal with the smell, the sight of her refusing to eat, drink, watch her struggle to get up from the toilet, watch her loose her teeth one by one, I just close myself to all of this so I can go on.
She suffered all her life, as a child growing up in poverty in Mexico, as an adult married to an A...H..E!!!!! who cheated on her and abused her, growing up in that house I promised myself I will never, ever let a man do that to me and I was right on the money with my husband of almost 42 years. So I ask myself, why is she still suffering, where is God in all of this, where is his compassion and his care for his children, why is he sit up there and watch her suffer every day?? My beliefs are shaky at best, and please do not tell me "this is one of God's mysteries" or "God is just not ready for her", what the ..... is that? If this is the case, what the heck is he waiting for???!!
So yes, this is yet another rant, feels good to unload all of this crap.
My grandchildren tell me "grammy, you will never get THAT old", after they see their great grandmother briefly to say hello. Well, in a way, I truly hope that is true in every single sense of the word. I hope I die before I become a burden to anybody.
Maybe He is waiting for your mother to have some joy given to her from her daughter. Maybe, just maybe God is waiting on you. Oh, more than likely you will become "that old" and hopefully your children will not simply "deal" with you, but interact with you and try to bring you joy in your old age.
There are MANY MANY people who do want to deal with the old, sick and mentally challenged and do not view it as a paycheck but a privilege.
Like I said, each one of us dealing, YES DEALING!!!!! with the care of our elderly parents are NOT having fun, are NOT enjoying seeing our mothers and fathers deteriorate and suffer and no matter what we do, they DO NOT enjoy anything anymore, because they simply can't. Stop being so condescending, you do not know me or know anything about my life. And I change my mind, your opinion offends me because you just called me UNCARING AND COMPASSIONLESS TOWARDS MY MOTHER AND THAT IS NOT TRUE.
And as far as God waiting for me to give my mother joy, I try to give her just that every day, but she simply can't notice or enjoy it.
And another thing, I really hope I don't live that long to become a burden, having my daughters deal with me, because, like it or not, we will be a burden. Why do you think there are so many nursing homes full of old sick people??
So, there you have it, think what ever you want to think about me, I can't change that but do not judge me because YOU DO NOT KNOW ME.
I agree, winning the lotto is "lucky", winning the opportunity to change adult diapers not so "lucky".
Good luck to you,
L
(((((hugs))))) tryingtomakeit
I do not view caring for my mother as a privilege. It is a burden, which affects my health negatively, but I do it to the best of my ability, as I think you do. My mother experiences very little joy too, and there is nothing I can do about it.
Jeanette, I hope you have a better day tomorrow.
tryingtomakeit, sigh, .... I made a few simple statements, why are you so angry? I got the "no compassion" from what you wrote about your mother, her life and how awful it was and now, how awful it is right now and how you just "deal with it". How did she treat you as a child? Was she mean to you? Did she neglect you? Did she do her best to raise you under dire circumstances? Look... simple questions so just relax, ok? I realize many of our parent's whom we've been tasked to take care of have not been the ideal parent. Got it.
Yes, I have spent the last 4 years caring for my loved ones. First my son whom had an accident and spent a year learning to live again. Next was my father whom died of cancer 23 months ago. He died in my arms as I didn't want him sleeping alone or dying alone. He cared for my mother who has Alzheimer's... now I care for her, have did it alone for the past 2 years without my brothers help (they live within 20 minutes of us) BUT... and it's a big ole but... it is NOT my mothers fault she no longer has her faculties and I would never EVER talk so indifferent/uncaring about her nor do I "close myself off" to her and what happens to her. I have did things that were my absolute end of the road...
Nothing what I said to you was judgmental...
Some say it is no different than caring for children, yeah right in their dreams. Some caregivers gave up their careers... some gave up their own families to be with their parents... most of us gave up our friends because those friends couldn't relate. Where is our retirement that we had planned for most of our lives? My parents got to enjoy retirement, why can't I?
And no, we can't hire anybody, it's expensive, we just can't.
I also have found refuge in going back to my athletic life. I am a Triathlete, I enjoy swimming, biking and running and also competing. Last year I decided to reclaim this part of my life so I rejoined the YMCA and now I'm training again. My youngest daughter, (we have 2) who lives next door to us, told me last year, when she found me in the kitchen crying after a very frustrating day with my mother, (she pooped in the bathroom floor and it was a struggle to get her into the shower, while I was trying to clean the awful mess) that I needed to do something for me, she told me if I didn't, I was going to get sick myself. I'm grateful to her for helping me this way, she has dealt with the mess a couple of times and I know she doesn't like it, I mean, who would?? My hope is that she doesn't have to go through this with me or her dad, and they wont.
Twizard, your words helped me tremendously, thank you.
When I get to the point that I can't be pretty independent myself, I'll be stockpiling some good painkillers and booze to take myself out, if we don't have assisted suicide by that time. When people tell me I'll look back on my caregiving days and miss them and miss taking care of my mom I think, "You don't know your *ss from a hole in the ground. People who say that were short-term caregivers and remember it fondly. I won't miss one second of one minute of the responsibility. Not one.
I agree that this forums are a place for us to get our frustrations out and to read and post positive comments that could help ease the burden on one another. I'm also glad to have found this site.
Thanks to all of you who have left me positive messages.
I thought you had died and gone to Heaven and not bothered to let us know.
Glad to see you are still alive and kicking.Hugs
I have never felt my job to be a burden, or it is something that I regret. Either my job with my parents which is a situation that I say "caring for them" "job" it is work, but, every one is different. Allow everyone to express how they feel about caring for their elderly loved ones. Why is the world so critical and on the words we use. Why do or are we here on aging care.com attacking each other? I do not understand this.
Of course 1,000 people feel very different about caring for their aging parents.
There are 1,000 different ways to which they became the care givers.
Some were planned, some were not, some were forced, some were not, some are totally broke, some are not. some parents did not raise their children with the best of circumstances beyond their control, some were not. some parents did raise their children with circumstances in their control and did not do the best interest of the child.
What I am saying is this.
Boni Chak feels this: Love between family is a blessing. Caring for a loved one is a privilege.
Twizard feels this: It is not a privilege or a blessing. It is draining.
Jeanette B feels this: My day is fine, thank you for being concerned. As far as what I said... there are MANY people who do think caring for the elderly is a privilege, did I say YOU DID? No, I did not. Nice to know how you really feel about caring for your loved one.
Emjo23 feels this: I do not view caring for my mother as a privilege. It is a burden, which affects my health negatively, but I do it to the best of my ability, as I think you do.
Ismiami feels this: I agree, winning the lotto is "lucky", winning the opportunity to change adult diapers not so "lucky".
Good luck to you,
That is what five people so I have 995 left to go, and all five of those are very different opinions.
I see one thing that I believe or hope would not allow us as fellow aging care.com members to do. I see the word YOU a lot. I am here to talk about issues I have, or to answer other peoples questions as best as I see fit. if I wanted the world to feel and hear about how I felt then I would not be on the aging care.com website, as that is not what it is for. It is for helping those that need it with issues regarding their aging parents, their aging clients, their aging relatives, etc. or their own aging needs.
I have had many people state how they feel I should be or how I should write or how I should see things.
Where ever anyone is in this world YOU statements are very negative, and appear and I say APPEAR as it could be or could not be, but a feeling a being attacked, verbally by the person writing.
all I am saying is that for TRYINGTOMAKEIT, she wrote this to us, looking for answers, NOT looking for JUDGMENTS or for us to criticize her. She spoke from her heart, and really is look to us for help.
So when I scroll down, all I see is a combative conversation on you feel this you feel that you should feel this you should feel that. Really? is that what Agingcare has come to.
Please, INCLUDING ME, let us all be mindful that the person asking the question is obviously stressed to begin with, it is not my desire to add stress to anyone, but it is my desire to be honest with myself, and to know that I am wrong at times and need to reword things, I need to be very sensitive to what people are writing, because they typically are at their wits end. If I do not feel I can even relate, then I do NOT WRITE BECAUSE, why would I want to add my two cents if it is going to rock the boat and make them feel worse.
Tryingtomakeit:
I ACKNOWLEDGE THAT YOU ARE HURTING, AND THAT YOU ARE FEELING THE WAY YOU DO.
Please know that I for one do hear what you are saying and I have answered in a previous post how I feel you can start dealing with this one by one, but you need to deal with it because YOU ARE IMPORTANT. YOU NEED TO TAKE CARE OF YOU.
To the rest of you whom wrote items on this post, thank you for allowing me to write what I sensed was becoming a very combative, not helpful to TRYINGTOMAKEIT.
WE ALL ONLY HAVE ONE LIFE, IT MAY BE VERY SHORT OR VERY LONG, LET US ALL REFLECT ON THAT AND REMEMBER TO MAKE THE BEST OF EACH AND EVERY DAY, AND KNOW THAT AGINGCARE IS A VERY UP AND DOWN SITUATION. CARING FOR THOSE THAT ARE ILL, AGING, ETC, IS VERY VERY HARD. EACH OF US HANDLES IT VERY DIFFERENTLY. WE NEED TO KNOW OUR OWN PERSONAL LIMITS, AND WE NEED TO KNOW WHERE WE CAN PRAISE THE PERSON FOR ALL THEY HAVE DONE AND KNOW THAT THEY HAVE DONE THEIR VERY BEST REGARDLESS OF WHERE OUR OWN PERSONAL LIVES HAVE LED US.
BE KIND, REALIZE THAT AS I ALWAYS STATE "LIFE IS A JOURNEY NOT A RACE"
BLESSINGS