I am asking because everything I try fails.I cannot convince my wife, who has dementia, that she is home. She continues to accuse me of lying to her.She walks outside and will sit on the front porch and cry because she wants to go home. Sometimes she will sit in the car and cry. I try to tell her that she is home and safe. But she does not believe me.I am looking for anything people have used to convince someone in a case like this,Any help will be greatly appreciated by me and my daughters.Thank you
First, you can not convince her of anything. She only knows what her mind tells her.
When I first started this journey 9 years ago, my aunt who had been a hospice caregiver for many years told me "they all want to go home".
I have heard that repeated here on this forum so many times.
"Home" to your wife may mean a childhood home, or someplace she feels safe.
It could be people in her life, such as parents, who are no longer around.
It is unfortunate that she doesn't recognize you as her "safe", "home" place.
She likely does feel some connection to you and a trust that you are there for her.
Don't try and argue reality with her. It is no use. Simply continue to be there by her side, and gently reassure her, without any argument of where home is.
Let her know, "I'm here." Then, try a distraction, such as, "Would you like to,,,,?"
For my husband, with vascular dementia, "home" is his bed. He has limited mobility, and his bed feels safe and comfortable for him.
For a long time, he would "see" his brother, who had died 20 years earlier, and wanted to go live with him. He said his brother would take care of him.
I've go to admit, that was a little eerie, as I wondered if he understood his brother was dead, and he wanted to go where he was. He seemed to feel his brother's presence.
I have managed to find ways to respond, without actually saying that his brother died a long time ago.
I think the key is finding a way to engage and repeat, or acknowledge what the person is saying, without actually correcting them. Kind of be in their world with them.
Maybe the next time she is crying in the car, get in the car and take a drive. Go any direction she wants to go.
It must be scary for her to feel so lost, and not know how to get home.
Is there something in your home that your wife has special sentiment for? If so, you can bring her that and reassure her she is where she should be.
I hope this helps. God bless you both.
Here is what I suggested in my book "Dementia Care Companion" about this behavior. I hope it helps.
“I Want to Go Home”
Over time, as it becomes harder to find the right words, the patient will rely increasingly on word substitutions. Sometimes, a word is just meant as a placeholder in a sentence, like saying “Give me my pants” when they want their shoes. At other times, it is the feeling behind the words, rather than their literal meaning, that is intended, for example, “I want to go home.”
When the patient says that they want to go home, this is not always due to confusion. Rather, the patient may be expressing a desire for love, peace, comfort, and security that they associate with home. When the patient feels anxious and isolated, when they feel that no one understands them, that everyone is reprimanding them, bossing them around, or asking them to do the impossible, “I want to go home” expresses a need for escape to a familiar shelter, a longing for the warmth and security that they associate with home.
· Do not try to convince the patient that they are already home. Instead, look for the sentiment behind the words “I want to go home.”
· Apply the techniques you’d use to get to the root cause of behavioral problems. Look for unmet needs, environmental issues, and problems with patient-caregiver interactions.
· Are the patient’s basic needs being met? Is the patient hungry, thirsty, or in pain? Are they bored? Do they have an infection? Are they constipated, or do they need to go to the bathroom?
· Is the environment comfortable? Is it too warm or too cold, too bright or too dark, too noisy, or crowded?
· Are patient-caregiver interactions thoughtful and comforting? Does the patient feel safe? Do they feel loved, cared for, and accepted? Are they comforted with hugs, caresses, companionship, and words of encouragement?
· Go with the flow and redirect. Say something like, “Okay, we’ll go soon,” and then distract the patient by doing something pleasant that takes their mind off of wanting to go home.
The next time, it was the middle of the night. I got up and we got in the car, drove down the street and around a couple of miles and then came back to the house. She didn't say anything and it seemed that she accepted she was home.
Bob, thanks for being an active participant here at the Forum. So few stay and comment.
Home to my mother is where she grew up, with her parents and her siblings. She's completely forgotten the home that she established with my father, where I grew up.
It's just the nature of the disease.
8 ways to deal with false dementia accusations
Don't take it personally.
Don't argue or use logic to convince.
Use a calm, soothing tone and positive body language.
Create a calm environment.
Stick to simple answers.
Distract with a pleasant activity.
Keep duplicates of frequently misplaced items.
Read this website: https://www.alzheimers.org.uk/blog/lying-to-someone-with-dementia#:~:text=When%20someone%20with%20dementia%20unknowingly,of%20the%20world%20around%20them.
In part, it says:
Why might a person with dementia ask difficult questions?
Difficult questions often arise when the person is living in a different reality and/or has different beliefs from those around them.
These differences may become more apparent as dementia progresses but they are not limited to the condition’s later stages. They include:
- behaving as a younger version of themselves (time-shifted)
- beliefs – sometimes strongly held – that are false to others (delusions)
- unfounded suspicions or allegations about others (infidelity, malice, deceit)
experiencing things that aren’t there (visual hallucinations).
Website: https://www.alzheimers.org.uk/blog/i-want-go-home-what-to-say-to-someone-in-dementia-care
In part, it says: When someone with dementia is asking to go home
1. Avoid arguing about whether they are already ‘home'
For a person with dementia, the term 'home' may describe something more than the place they currently live. Often when a person with dementia asks to go home it refers to the sense of ’home’ rather than home itself.
‘Home’ may represent memories of a time or place that was comfortable and secure and where they felt relaxed and happier. It could also be an indefinable place that may not physically exist.
It’s usually best not to try to reason or disagree with the person about where their home is. If they don't recognise their environment as 'home' at that moment, then for that moment, it isn't home.
What not to say to somebody with dementia
Words can be helpful and uplifting, but also hurtful and frustrating depending on the situation. Some words/questions to avoid when talking to a person w dementia.
Try to understand and acknowledge the feelings behind the wish to go home.
Find out where 'home' is for them - it might not be the last place they lived. It could be where they lived before moving recently or it could be somewhere from their distant past.
Often people with dementia describe 'home' as a pleasant, peaceful or idyllic place where they were happy. Encourage them to talk about why they were happy there. This can give an idea as to what they might need to feel better.
2. Reassure them of their safety
The desire to go home is probably the same desire anyone would have if we found ourselves in an unfamiliar place.
Reassure the person verbally, and possibly with arm touches or handholding if this feels appropriate. Let the person know that they are safe. It may help to provide reassurance that the person is still cared about. They may be living somewhere different from where they lived before, and need to know they’re cared for.
3. Try diverting the conversation
Keep a photograph album handy. This could be a physical book or photos on a tablet or smartphone. Sometimes looking at pictures from the past and being given the chance to reminisce will ease the person’s feelings of anxiety.
It might be best to avoid asking questions about the pictures or the past, instead trying to make comments: 'That looks like Uncle Fred. Granny told me about the time he....'
Try shifting the person's focus from home to something else - such as food, music, or other activities, such as going for a walk.
Google TEEPA SNOW. Call her, watch her webinars & You Tubes, buy her books.
Gena / Touch Matters
Take care Bob. It's a long and arduous road....
I hope you have help and support. We are always here to , give are best advice, we can
Thinking of you, 🙏
Her meds are not just about her, you count for something too in this puzzle.
I haven't been cussed at in almost 2 weeks now due to a recent med increase of just 25mg. That slight med change not only helped her, but also helped me.
I will talk to her PCP about this .
Thanks!
Wife asks, "I want to go home."
You make a quick statement then ask her an open ended question as a diversion.
Your reply--try some of these--
Home is wonderful. What do you like best about home?
We are here now. What is the best thing about your home?
I like being at home too. When you are home what activities do you like to do?
The family is at home. What do you want for dinner?
You have a wonderful Mom and Dad. What do you want for dinner?
Your family is wonderful. What are your favorite things to do?
Quick response. Then diversionary open ended question. It should get her off of the loop.
Any time my Mom would ask to go home, I used what was called a "therapeutic fib" by saying her parents were visiting the old county (which they did regularly). If Mom asked about all her siblings, I had to quickly come up with a fib that Mom would understand, and she accepted those "fibs" as she would smile.
That helped me understand where she is when she says she wants to go home. At least gives me a place to start.
Thank you
See if you can watch a Youtuber, his channel name is:
dsalnorcal
His father has dementia, and lives with him. He makes videos and shorts about this experience.
I'm sure this is so heartbreaking for you. But you can't convince her of this, her brain is broken. I'm so sorry.
Best to not convince her, change the subject, tell her you will go home tomorrow, and hope she lets it go.
Are you the only one talking care of your wife? Do you have help?
Go on YouTube and learn everything you can about dementia. Some people like Teepa Snow, there are others, and good books
But I'm very sorry to say you will never convince her she is home. Home is really in are heart, so your wife just may not feel at home in her heart.
If you have old pictures or anything from your wife's past that you can bring out that may help.
Best of luck Bob, we are always here to lend an ear.
Pick up a copy of the book Understanding the Dementia Experience by Jennifer Ghent-Fuller on Amazon so you can learn about dementia and how to deal with your wife and her confusion. She's regressed in time to when you were both young and is looking for the Bob of 30, 40 or 50 years ago, most likely. Here is a link to a good article on the very subject:
https://www.alz.org/help-support/caregiving/stages-behaviors/memory-loss-confusion
Also call her doctor for calming meds which can help a lot. Ativan worked well for my mother.
5 things to remember when someone with dementia is asking to go home
1. Avoid arguing about whether they are already ‘home'
For a person with dementia, the term 'home' may describe something more than the place they currently live. Often when a person with dementia asks to go home it refers to the sense of ’home’ rather than home itself.
‘Home’ may represent memories of a time or place that was comfortable and secure and where they felt relaxed and happier. It could also be an indefinable place that may not physically exist.
It’s usually best not to try to reason or disagree with the person about where their home is.
If they don't recognise their environment as 'home' at that moment, then for that moment, it isn't home.
Advice
What not to say to somebody with dementia
Try to understand and acknowledge the feelings behind the wish to go home. Find out where 'home' is for them - it might not be the last place they lived. It could be where they lived before moving recently or it could be somewhere from their distant past.
Often people with dementia describe 'home' as a pleasant, peaceful or idyllic place where they were happy. They could be encouraged to talk about why they were happy there. This can give an idea as to what they might need to feel better.
2. Reassure them of their safety
The desire to go home is probably the same desire anyone would have if we found ourselves in an unfamiliar place.
Reassure the person verbally, and possibly with arm touches or handholding if this feels appropriate. Let the person know that they are safe.
It may help to provide reassurance that the person is still cared about. They may be living somewhere different from where they lived before, and need to know they’re cared for.
3. Try diverting the conversation
Keep a photograph album handy. This could be a physical book or photos on a tablet or smartphone. Sometimes looking at pictures from the past and being given the chance to reminisce will ease the person’s feelings of anxiety.
It might be best to avoid asking questions about the pictures or the past, instead trying to make comments: 'That looks like Uncle Fred. Granny told me about the time he....'
Alternatively, you could try shifting the person's focus from home to something else - such as food, music, or other activities, such as going for a walk.
4. Establish whether or not they are feeling unhappy or lonely
A person with dementia may want to 'go home' because of feelings of anxiety, insecurity, depression or fear.
5. Keep a log of when they are asking to go home
Certain times of the day might be worse than others. What seems to be the common denominator about these times? Is it near meal times (and would a snack perhaps help)? Is it during times when the environment is noisier than usual? Is it later in the day and possibly due to ‘sundowning’?
If you see a pattern, you can take steps to lessen or avoid some of the triggers.
*******
Your wife wants to go back to her childhood home. She's regressed in time to when she was a young woman and is looking for you as you were as a young man, and the home she lived in then. You're not going to convince her she's home because in her mind, she's NOT home. You need to meet her where SHE is, in HER reality, and stop correcting her. You need to learn about dementia and how to deal with your wife by reading about it.
Good luck
These help me understand what others are doing and help me understand a little of what my wife is going through.
I have tried the your safe here and alot of other things you and others have suggested. Her dementia is getting worse by the day and it is very trying on me to understand what she is going through.
She is on calming meds, seroquel, Haladol and Larzapam . She also takes Citalopram along with her diabetes medicine.
I guess I just have to be happy with the good days and work my way through the bad.