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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
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The increase in agitation could be your father’s pulmonary fibrosis getting worse. When a person with PF is not getting enough air they will become anxious. Unfortunately this disease does not improve. Is dad on a sedative regularly, for instance Ativan or Xanax? If not please talk to his doctor about prescribing one. To me, nothing is more frightening than not being able to breath. Your father can be struggling from this which is why he is anxious. It’s a fine line providing care to PF patients. In my opinion keeping him sedated has 2 purposes - alleviating fear from not getting enough air and achieving a level of sedation where the person is not overly sleepy which decreases the urge to breathe. I know you said you don’t feel your father is ready for hospice but you may want to reconsider. He isn’t going to improve, unfortunately. His outbursts no doubt take all of his energy and he loses air quickly this way. Good luck to you!
Thank you Shane1124 I have reconsidered and asked his primary for Hospice. Unfortunately his lungs progressing for the worse and I don’t want him to suffer. I have oxygen on all the time and finally the Seroquel is doing it’s job especially at night. He’s also on an antidepressant sertraline so that helps too.
My dad has Pulmonary Fibrosis and his lungs are getting worse. He’s on oxygen. I take care of him 24/7 I will be talking to a Hospice doctor but I feel he’s not at that stage just yet. Maybe I’m in denial. Doctors just tell me to keep him “comfortable” Im doing my best sometimes I feel doctors just want me to give up 😔
It might take time to find the right drug to help. Just stick with the Doc and let him know this isn't working. So sorry. Sometimes you can't find an answer, but keep trying. You have posted this under lung disease. Does your Dad become more agitated with shortness of breath? What lung disease does he have? Is he on oxygen? When enough 02 isn't getting to the brain confusion and hallucinations are common. Is your Dad receiving the medical care he needs at home? Is there any chance he may need hospice in the future? You don't say how far progressed his disease is. So sorry.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Unfortunately this disease does not improve.
Is dad on a sedative regularly, for instance Ativan or Xanax? If not please talk to his doctor about prescribing one.
To me, nothing is more frightening than not being able to breath. Your father can be struggling from this which is why he is anxious.
It’s a fine line providing care to PF patients. In my opinion keeping him sedated has 2 purposes - alleviating fear from not getting enough air and achieving a level of sedation where the person is not overly sleepy which decreases the urge to breathe.
I know you said you don’t feel your father is ready for hospice but you may want to reconsider. He isn’t going to improve, unfortunately. His outbursts no doubt take all of his energy and he loses air quickly this way.
Good luck to you!
Best wishes to you.