My Mom is 96 year old with Parkingson's dementia which is progressing very slowly. She is constantly misremembering what she has in her space.. And consequently is constantly blaming the aide for taking her things. For example she has a small doll collection about a handful and says that she had 19 dolls and most are missing. She believes the aide is always taking one. She will yell at the aide about taking her stuff. I try to comfort my Mom that no one wants her dolls and that I know they are still all there. But there is no reasoning with her. It is so distressing because it makes my Mom miserable. She has also started rummaging thorough her things on a regular basis. Even though I have help I'm constantly dealing with my Mom's distress since she lives with me.
We used to spend hours searching for her stuff. Until one day, when she’d enlisted us all to find her purse for the 7th time, I heard her mutter “You’ll never find it this time.” I watched her face closely and she seemed angry when it was found - not relieved.
That’s when it occurred to me that it may not be just dementia paranoia but also attention seeking behaviour. A form of control over us and our time.
After that, I tried saying “Oh, sorry to hear it.” when she claimed some item had been stolen. A grey rock response. Her stories shifted more towards people hosting parties in her house, than things being stolen.
Just wanted to offer a different perspective from my own odd experience.
You can try, and I mean try, to meet them at their level, but after awhile, you crave the company of sane people to be around. Some of these people can be impossible to deal with, and no amount of redirecting or any other techniques would work when a seniors gets stuck in a loop. Sometimes family members are in denial about their loved ones and this person may need a higher level of care beyond home care.
There is nothing worse than harassing an overworked, underpaid aide doing a thankless job for these seniors. Our time and energy is stretched to the max and sometimes to the point of ignoring our own families and health needs to attend to others.
Aides get blamed for everything by seniors and sometimes well meaning family members. This is the worst of the worst I'm describing. Aides can only do but so much, and once a senior gets in their mind to target an aide or a certain family member, that's it. You may want to try another aide or that particular family member can pass the baton to another caregiver.
However, we have to greet these folks with smiling faces and a willing spirit of helping.
Aides keep up front that being dismissed from an assignment has nothing to do with our abilities to care for people with dementia, but a senior or family having a certain preference of another aide or family member, and that's okay.
Meet them where they're at. I had a client who sometimes believed that her parents were there with her, sometimes her brother, or "the kids" I would comment about their welfare and follow up with distract and refocus.
If she was focused on her Things we could discuss the items. No shame or guilt attached as her brain probably doesn't understand those things. But she will definately pick on the emotions attached to those.
Below are two excerpts from my book "Dementia Care Companion"
Accusing Others of Theft
The patient may stash away items or give items away, and forgetting that they have done so, accuse others of stealing. They may gift a scarf to a relative, and upon seeing her wearing it a few days later, may accuse the recipient of theft and demand the scarf be returned. This behavior is common in dementia and a source of consternation by those who are unaware of the illness and the resulting behavior changes.
· When the patient misplaces an item and accuses someone of theft, do not confirm or deny the alleged theft. You cannot convince them that they are mistaken. Instead, help them find the missing item.
· When the patient demands the return of an item, such as a gifted scarf, return it. Alternatively, avoid the problem by never wearing the item in the presence of the patient.
Hoarding
Hoarding is most commonly seen in Alzheimer’s disease, frontotemporal dementia, and Lewy body dementia. Around 23 percent of dementia patients develop hoarding behavior, typically in the early and middle stages of their illness.
Patients hoard all kinds of stuff. They collect, organize, fold and package them, put them away in nooks and crannies, and then spend many busy hours searching in various drawers, cabinets, and wardrobes to rediscover and unpack the items, only to repackage and store them again.
Hoarding typically occurs in tandem with obsessive-compulsive behavior, overeating, and pilfering. What all these behaviors have in common is an underlying sense of anxiety, impairment in impulse control, and memory loss. The patient is trying to get a grip on a life that is increasingly out of their control, with a mind that is no longer able to hold on.
Hoarding is also seen in some older individuals who do not have dementia. Hoarding in older individuals may be a precursor to dementia and a warning sign.
How to Handle Hoarding
Although hoarding can be challenging for the caregiver, it does not help to get angry or scold the patient. Patience, creativity, and humor are better ways of handling all kinds of behavioral problems, and hoarding is no exception.
· Find out what drives the hoarding behavior and try to remove the cause. Is the patient worried that their stuff may get lost or stolen? When they spread, repackage, and store items, are they trying to reassure themselves that they can find the items again? Are they bored from inactivity and a lack of meaningful involvement with the daily household affairs?
· What do they collect and where do they store them? Are the collected items perishable? Are they valuable? By knowing the types of items that the patient likes to collect and where they stash them, you can better decide your next steps.
· Reduce the number of drawers and wardrobes that the patient uses. Label drawers to clearly show what’s inside. You can write “socks,” “underwear,” etc. on sticky notes, then attach the notes to drawers. Or, you can affix pictures to drawers, indicating their contents.
· Make life easy for the patient. Use a large plastic basket for the collected items so the patient can easily find them in one place and pack them again when finished.
· If a particular type of hoarding does not pose a hazard, let it be. But, if the hoarding creates risks, such as food that spoils or clutter that presents a fall hazard, find ways to remove the risk.
· Avoid removing or discarding hoarded items as this may add to the patient’s anxiety. Find other ways to remove any risks. For example, if hoarded food has spoiled, replace it with fresh food.
· The patient may agree to donate some of the items to charity. Take this opportunity to quickly
maybe take pictures of the room and stuff / or keep record of how many stuff are there?
some aides do take things I imagine so Not an altogether dismissal
If funds allow maybe put up a camera
Or a cabinet with lock on it and pack stuff away in it
you keep key?
good luck
I agree a low dose of Ativan to calm mom down is a good idea.
Also, give her a big box of things she can rummage thru to her hearts content. Rummaging can offer a measure of comfort for individuals with dementia, offering recognition of familiar objects and a way to find purpose and meaning.
Giving mom some small job like folding towels or sorting spools of thread may help her as well.
Good luck to you.
So often did this happen with my partner's mother, accusing her long serving Wilma over and over of this and that, that now when either partner or I lose something we always giggle and say "Wilma took it".
There is no reasoning, and there is no argument with a disease like this. Simply express your sympathy with her and attempt to move on. When obsessive thinking and acting out becomes continuous speak with doctor about some try at low dose anti depressant. That can sometimes help a bit. But often doesn't.
At some point you will be left with choices about how long you can continue home care with someone who really needs several shifts of several people each to deal with the continuous problems this condition brings.
Good luck.
Have you tried taking pictures of her things, so that when she thinks something is missing you can show her the pictures to reassure her that they're still there?
That may or may not work, but the important thing for you to remember(since your brain isn't broken)is that your mom can't help what she says or does, and that things will only get worse as her dementia worsens.
So if her care is getting to be too much for you then it may be time to think about placing her in a memory care facility where you can get back to just being her daughter and advocate and not her stressed out caregiver.