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Prolonging life with dementia at play is nothing short of cruelty, in my opinion. Imagine being kept alive with feeding tubes and artificial means, only to have no faculties left, lying there in bed all day? Why??
Sign a very strong advance directive that says that you wish to have all heroic measures available to you regardless of your mental capacity or lack of it, that you expect your MPOA to direct that all heroic measures be carried out until, despite all measures, you are no longer alive.
This will suffice in so far as ANYTHING will suffice, for, if you are severely mentally incapacitated AND severely physically incapacitated, then at some point the medical community, and the person you appoint to carry forth your wishes will come to the conclusion that further intervention is tantamount to torture, and such "heroic" measures will no longer be entertained.
Typically the person that you choose to be your representative is someone that you trust to make the decisions that you would make for yourself OR that would make the decisions that are in your BEST interest in the absence of the ability to make a choice that they know you would want if the situation warranted it.
Meaning- in the absence of a living will/advance directive - your POA/representative would KNOW your wishes and be able to execute what you would want for yourself, but you would TRUST them to make the correct decisions for your quality of life if they KNEW that any other choice would leave you in agonizing pain, in misery, with no quality of life or...were you in your right mind - wishing that you were dead.
So a better question might be - how do you ensure that your end of life planning is done to afford your representative a clear directive of your wishes? If you do not want to give them any leeway to make any other choice - as Alva said, you have to spell it out, in no uncertain terms - that you want ALL heroic measures done in every circumstance, no matter what the outcome. That you do not care what your quality of life will be after. That you want them to try every single time.
That being said - it might be a good idea for you to genuinely understand what that really means. As Grandma mentioned - heroic measures can often be incredibly horrifying for the extremely elderly, frail, or unhealthy. Broken ribs, damage to internal organs, damage to the brain due to extended loss of oxygen, or additional or new disabilities can all be a product of just CPR. Additionally, at what point is the line? If someone is already on life support- but with clear certainty that they are in an irreversible coma - but go into cardiac arrest for example - are heroic measures called for?
In 1990, Terri Schiavo collapsed and went into a persistent vegetative state at the age of 41. Her brain was severely damaged due to oxygen deprivation. Her entire brain, not just part of it. That's young.....like YOUNG. At that age - a lot of people haven't even thought about end of life plans, whether they want heroic measures if something happens to them - of course they do! Why wouldn't they? Except...there are always going to be situations where heroic measures don't make sense. FIFTEEN years later, when the courts and her parents were done arguing about keeping her alive, her husband - her legal guardian - was finally allowed to make the choice that he knew Terri would have made had she been able to do so. Her parents maintained that she could have recovered and that was one of the reasons she was kept alive so long. Her autopsy revealed that her brain damage was so severe that recovery was impossible.
So while I fully support anyone's right to make decisions about their own life and how they want to live it, or as their end of life comes - not live it, I do think that very careful consideration should be given to things like very absolute requirements.
Both mine and my DH's advance directives and living wills (which we have had since we were 24 and 30 respectively) are written in such a way that it is clear that we want life-saving measures, but if there is no expectation of survival or quality of life upon survival we don't wish to have heroic measures because we don't wish to have life prolonged on life support indefinitely if there are on natural or organic signs of life and the only life is from a machine.
But you will have to be very clear in what you want, or your POA will have the ability to speak on your behalf if you do not leave clear wishes.
You make the decisions now, when you are cognizant. Complete a POST indicating what measures you want taken. (POLST goes by other names in some states, it is more detailed than a DNR) Please keep in mind CPR does not always work. If it does you will most likely have broken ribs, broken sternum and possibly punctured lung(s) from the broken ribs. And there is no telling what brain damage may have occurred due to lack of oxygenated blood circulating. Honestly ...if I did not have my POLST or advance directives and I did have dementia I would not want any measures taken to extend my "life". I would hope that a family member would NOT allow CPR, intubation, IV's or tube feeding.
Create a living will/advanced directive (like 5 wishes) and go over it with the person you choose to be your medical decision maker. Obviously don't pick a person that doesn't share your beliefs. But nobody in the medical profession is walking away from caring for people based on a DNR alone, there would have to be a reason to opt for hospice or allowing a natural end to life. And even a frail, confused elder can ask for treatment even if there is a DNR in place, I know because that's what happened with my uncle (unfortunately).
A DNR doesn't mean they'll let you die of a cold. It means they won't try to resuscitate you if you die.
First, though, fill out a medical diregtive that says what treatment you do and don't want for medical care. Just because you state that you want them to do everything they can to keep you alive doesn't mean they will. If you're dying, you're dying. Doctors ultimately will make the call when they decide you can't be resuscitated. If you requested CPR in your medical diregtive, know that your ribs will be shattered as they do it, and you likely won't recover anyway.
Finally, don't appoint a POA who won't respect your wishes.
Short answer, you can't. Once you're no longer able to act in your own self interest, someone does it for you, so get that done now.
Might want to visit a facility and see some folks who are being kept alive because they don't have an advance directive. Every UTI, flu, cough is treated with an intent to cure. With the meds we have now, we can keep people alive long past the time when nature might have taken them. Can't do the same with their brains, though.
You get a Medical Directive done which lists everything you do and don't want.
There comes a time, though, when even a doctor will say "its time". You really don't want measures done to prolong a life of Dementia and pain, do u. CPR, in the elderly, cracks bones. A DNR allows you to die a natural death.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
This will suffice in so far as ANYTHING will suffice, for, if you are severely mentally incapacitated AND severely physically incapacitated, then at some point the medical community, and the person you appoint to carry forth your wishes will come to the conclusion that further intervention is tantamount to torture, and such "heroic" measures will no longer be entertained.
Meaning- in the absence of a living will/advance directive - your POA/representative would KNOW your wishes and be able to execute what you would want for yourself, but you would TRUST them to make the correct decisions for your quality of life if they KNEW that any other choice would leave you in agonizing pain, in misery, with no quality of life or...were you in your right mind - wishing that you were dead.
So a better question might be - how do you ensure that your end of life planning is done to afford your representative a clear directive of your wishes? If you do not want to give them any leeway to make any other choice - as Alva said, you have to spell it out, in no uncertain terms - that you want ALL heroic measures done in every circumstance, no matter what the outcome. That you do not care what your quality of life will be after. That you want them to try every single time.
That being said - it might be a good idea for you to genuinely understand what that really means. As Grandma mentioned - heroic measures can often be incredibly horrifying for the extremely elderly, frail, or unhealthy. Broken ribs, damage to internal organs, damage to the brain due to extended loss of oxygen, or additional or new disabilities can all be a product of just CPR. Additionally, at what point is the line? If someone is already on life support- but with clear certainty that they are in an irreversible coma - but go into cardiac arrest for example - are heroic measures called for?
In 1990, Terri Schiavo collapsed and went into a persistent vegetative state at the age of 41. Her brain was severely damaged due to oxygen deprivation. Her entire brain, not just part of it. That's young.....like YOUNG. At that age - a lot of people haven't even thought about end of life plans, whether they want heroic measures if something happens to them - of course they do! Why wouldn't they? Except...there are always going to be situations where heroic measures don't make sense. FIFTEEN years later, when the courts and her parents were done arguing about keeping her alive, her husband - her legal guardian - was finally allowed to make the choice that he knew Terri would have made had she been able to do so. Her parents maintained that she could have recovered and that was one of the reasons she was kept alive so long. Her autopsy revealed that her brain damage was so severe that recovery was impossible.
So while I fully support anyone's right to make decisions about their own life and how they want to live it, or as their end of life comes - not live it, I do think that very careful consideration should be given to things like very absolute requirements.
Both mine and my DH's advance directives and living wills (which we have had since we were 24 and 30 respectively) are written in such a way that it is clear that we want life-saving measures, but if there is no expectation of survival or quality of life upon survival we don't wish to have heroic measures because we don't wish to have life prolonged on life support indefinitely if there are on natural or organic signs of life and the only life is from a machine.
But you will have to be very clear in what you want, or your POA will have the ability to speak on your behalf if you do not leave clear wishes.
Have those uncomfortable but important conversations.
Get your ducks on a row.
Take away for me is "be very clear in what you want".
Complete a POST indicating what measures you want taken.
(POLST goes by other names in some states, it is more detailed than a DNR)
Please keep in mind CPR does not always work.
If it does you will most likely have broken ribs, broken sternum and possibly punctured lung(s) from the broken ribs. And there is no telling what brain damage may have occurred due to lack of oxygenated blood circulating.
Honestly ...if I did not have my POLST or advance directives and I did have dementia I would not want any measures taken to extend my "life". I would hope that a family member would NOT allow CPR, intubation, IV's or tube feeding.
But nobody in the medical profession is walking away from caring for people based on a DNR alone, there would have to be a reason to opt for hospice or allowing a natural end to life. And even a frail, confused elder can ask for treatment even if there is a DNR in place, I know because that's what happened with my uncle (unfortunately).
First, though, fill out a medical diregtive that says what treatment you do and don't want for medical care. Just because you state that you want them to do everything they can to keep you alive doesn't mean they will. If you're dying, you're dying. Doctors ultimately will make the call when they decide you can't be resuscitated. If you requested CPR in your medical diregtive, know that your ribs will be shattered as they do it, and you likely won't recover anyway.
Finally, don't appoint a POA who won't respect your wishes.
Might want to visit a facility and see some folks who are being kept alive because they don't have an advance directive. Every UTI, flu, cough is treated with an intent to cure. With the meds we have now, we can keep people alive long past the time when nature might have taken them. Can't do the same with their brains, though.
There comes a time, though, when even a doctor will say "its time". You really don't want measures done to prolong a life of Dementia and pain, do u. CPR, in the elderly, cracks bones. A DNR allows you to die a natural death.